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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Another factor that needs to be developed here more thoroughly is the nature of job setting. Does the job require frequent attendance at lunch and/or dinner meetings and are these meetings generally "on campus" or off? "The Americans with Disabilities Act (ADA) defines a disability as a physical or mental impairment that substantially limits one or...
  2. trents
    Yes, reach out again to therapists in your area. Lean into this. If you must travel a bit to a larger place to get appropriate counseling support, this may not be a deal breaker. Many therapists do remote sessions through zoom or other online meeting tools these days. You could go in person once in a while and meet with the therapist online most of the time...
  3. trents
    Welcome to the forum, @newtoceliac2024! Celiac disease has a genetic base but the genetic potential requires some epigenetic stressor for the genes to be turned on, such as a viral infection. But the stressor can be a lot of different things. Could pregnancy be one of them? Possibly, but it seems unlikely, especially given the timing of things as you...
  4. trents
    Thanks for the additional information, Doreyn. Sounds like your parents were too rigid when it came to managing food issues in the home. I think most parents struggle at times with trying to make sure their kids get adequate nutrition and they worry when the kids are between growth spurts and their appetites seem to disappear. But if the parents make too...
  5. trents
    You say you have always had issues around eating. Can you be more specific? Has the celiac disease diagnosis compounded this problem? You also mention that you have not had any appetite lately. Are these things connected? Has all this been a frustration to your husband?
  6. trents
    First, realize that you only have two data points to go from so I would not consider that enough to constitute a trend. What you are looking for is a trend and two data points is not enough to establish a trend. Second, all lab values fluctuate somewhat from time to time. That is normal. The next time you get it assessed it might be lower than either of the...
  7. trents
    Welcome to the forum, @Luashlee! You do understand that celiac disease is not an allergy but an autoimmune disorder, right? Just checking because you mention having a wheat allergy. Do you know if the blood samples are being tested by the same lab every time? Different labs concoct these tests differently and used different scales. There is not...
  8. trents
    Sounds like counseling support might be in order at a couple of different levels. It sounds like your physical/psychological health is at risk and your marriage is also at risk if you husband isn't watching out for you in your need to eat gluten free.
  9. trents
    You can also look into third party pay out of pocket food allergy testing if your physician isn't inclined or isn't able to order it through your national healthcare system.
  10. trents
    You might try Allegra or Zyrtec or Claritin to see if it helps with the mucous. They are second generation antihistamines and don't produce the drowsiness associated with Benadryl and other first generation antihistamines. They are over the counter meds, at least they are here in the USA.
  11. trents
    Thanks for the additional information. Sounds like you are on top of it then. Concerning your cough and excessive mucous production, I would suspect you have a number of food and environmental allergies. I, too, have a lot of mucous production during my sleeping ours that some nights causes me a lot of throat clearing and coughing. Sometimes it makes...
  12. trents
    Welcome to the forum, @Staxey! The first thing and of great importance: you should not start a gluten free diet before you get tested for celiac disease. You will invalidate the testing. The testing seeks to detect antibodies in the blood produced by the immune system's reaction over time to the ingestion of gluten. For someone with celiac disease, the...
  13. trents
    Welcome to the forum, @Doreyn! How long has it been since you were diagnosed with celiac disease? Why have you not had an appetite for weeks? That is concerning. Are you a "foody"? Is food really important to you and is it a big part of the family culture you grew up in such as it might be in some ethnic settings? Sounds like it might be for your...
  14. trents
    What do the ingredient lists say? A quick and dirty way to check is to look at the allergen section on the ingredient label. If wheat is listed in the allergen statement or if it or barley or rye is found in the ingredient list then stay away. If not, it's probably okay.
  15. trents
    Welcome to the forum, FuFu! I can relate to an extent in that I suffered from significant GERD during the process of weening myself off of the proton pump inhibitor that I had been on for years and I had to give up those same kind of foods. Took me over a year to get the GERD under control and I used TUMS to get me through the worst spots. One thing...
  16. trents
    Maybe just cut back on the prepackaged stuff.
  17. trents
    You'll just have to experiment. The answer won't be the same for everyone. https://www.goodhousekeeping.com/health/diet-nutrition/a25438225/is-quinoa-grain/ Buckwheat is the seed of a plant related to rhubarb so not a member of the grass family.
  18. trents
    Perhaps something you are eating or some supplement or med you have been taking that was gluten free no longer is. Companies can and do change their product formulations. This has been my own experience. Perhaps, also you have developed a cross reaction to some food whose protein structure is similar to gluten such as dairy, oats or eggs. Yes, it is...
  19. trents
    Psuedo grains like buckwheat (not related to wheat), seeds and nuts are another possibility.
  20. trents
    The pretest gluten challenge recommended daily amounts of gluten consumption is 10g of gluten for at least 2 weeks leading up to the day of testing. That's the equivalent of 4-6 slices of bread and I would go for at least 3 weeks to be sure to get a valid test.
  21. trents
    Welcome to the forum, @Ajackson! Many of your symptoms are classic for celiac disease. I would get retested but make sure you have been eating plenty of gluten for weeks ahead of the blood draw. Ask for these tests: Total IGA TTG-IGA DGP-IGA DGP-IGG
  22. trents
    Fruits and vegetables.
  23. trents
    Welcome to the forum, @leah91! Each lab uses different reference ranges for determining what negative vs. positive is for the celiac antibody blood tests since they each concoct the tests a little differently. So, in order to interpret the results you would have to know the reference range used by the lab who analyzed the blood sample. Another factor...
  24. trents
    I'm beginning to wonder if Mom's of America as well as some in our forum community (including me) went off half-cocked in this matter.
  25. trents
    This might be helpful: Also, do you have scores for that test from your original diagnosis for comparison? And if not evaluated by the same lab it wouldn't help anyway since different labs use different reference scales. There are no industry standards for these tests in that regard. I think the important thing here would be to look for trends over...
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