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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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If you have celiac disease or gluten sensitivity, once you go off of gluten for any length of time you become more intolerant of it than you were when consuming it daily. Getting "glutened" after being off of it typically makes you sicker than a dog. What makes you think you have gluten sensitivity and not celiac disease? The symptoms are largely the...
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Please help - at wits end
trents replied to HollyWhispersWildly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A lower GI does not examine the small intestine. That is done with an upper GI. The part of the small bowel affected by Celiac disease is just below the outlet of the stomach and that is part of an upper GI. There is a stool sample test for celiac disease that has been developed by a certain individual but it is not widely recognized as a valid diagnostic... -
Symptoms in 7 year old
trents replied to Mamaoffive's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I believe food sensitivity tests measuring reactions that happen in a different immune system pathway than is engaged by celiac disease. Celiac disease is not an allergy. It is an autoimmune condition and is diagnosed by measuring IGA antibodies. I could be wrong, but I think food sensitivity tests are just allergy tests and measure IGE antibodies rather... -
Please help - at wits end
trents replied to HollyWhispersWildly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No so, apart from damage to the villi which isn't a feature of gluten "intolerance." That's why I don't like the term "intolerance" as opposed to "gluten sensitivity." NCGS is not the same at all as say, "lactose intolerance." Lactose intolerance just gives you gas, bloating and diarrhea but poses no long term health risks. Non celiac gluten sensitivity,... -
Waiting for the biopsy results
trents replied to aizzo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Tissue trasnsglutaminase (TTG-IGA) would be the only one in that list that would be useful for celiac disease. And there are other celiac antibody tests that should have been run. What was the value for that test? And what is the lab's reference range? It would also be good to know what the value of the IGA is and it's reference range. Low total IGA can... -
Please help - at wits end
trents replied to HollyWhispersWildly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Understood. But realize the antidote is the same for NCGS as it is for celiac disease, i.e., total elimination of gluten from the diet. And it seems to me you already demonstrated that gluten is the issue one way or another. Practically speaking, there's not much difference. -
Please help - at wits end
trents replied to HollyWhispersWildly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
"My blood test which was done on 21st May (5 days after being back on gluten) came back negative," The test could be negative because you were only back on gluten for 5 days. For the blood test, the recommended "gluten challenge" is 6-8 weeks of consuming gluten daily in the amount equivalent to two slices of wheat bread. For the endoscopy/biopsy the... -
Waiting for the biopsy results
trents replied to aizzo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It is possible that you have NCGS (Non Celiac Gluten Sensitivity) which has most of the same symptoms as celiac disease and most of the same health risks but for which there is currently no diagnostic test. It is diagnosed based on symptoms and if symptoms improve when eating gluten free. -
Please help - at wits end
trents replied to HollyWhispersWildly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Holly, welcome to the forum! Once you have been off gluten for a significant period of time and then go back on, say before testing, symptoms are typically much worse than they originally were. You may have NCGS (Non Celiac Gluten Sensitivity) which gives most of the same symptoms and most of the same health risks but for which there is currently... -
Great value products
trents replied to Mikayla Smith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In the USA, if "starch," "modified food starch," ect. is listed in the ingredients, if it made from wheat, it must be so stated. Otherwise, it will be made from some other plant source, usually corn. You may be reacting to the casein (primary protein in dairy) or some added ingredient. Dairy products do not naturally contain gluten. -
Refractory Celiac?
trents replied to J Morgan's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Alkaline Phosphatase is an enzyme that helps break down proteins and is one measure of liver and gallbladder function as well as bone health. -
Zoey, welcome to the forum! Your story is heartbreaking but not an uncommon one unfortunately. Have you looked into celiac support groups in your area?
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A Celiac's Quality of Life: Passages
trents commented on Janet Blenner, Professor's article in Autumn 2009 Issue
Pam, The best way to protect yourself from accidental gluten exposure and cross contamination in the home is for the rest of your family to commit to gluten free eating, at least when not dining out. The second best option would be to keep gluten free food items sequestered in a separate part of the kitchen or the house and make them off limits to others...- 6 comments
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Finally I know the cause of all my problems at last, Lactose !!!
trents commented on Jackie Garrett's blog entry in Jackie's Blog
Okay, I think I see where the misunderstanding is. By "you" were you were referring not to me but to yourself or anyone else as the original poster? You can edit a post or delete it's content entirely but there is a time window for doing so. I am not sure you can entirely delete the post altogether as opposed to leaving it blank. I'm not sure how that works... -
Finally I know the cause of all my problems at last, Lactose !!!
trents commented on Jackie Garrett's blog entry in Jackie's Blog
Sorry, I see a typo in my previous post. I meant to type, I'm "just" a moderator and I don't have the ability to delete posts or blogs. That requires full administrator privileges. You need to send a personal message to Scott Adams who is the forum administrator in order to get that done. Scroll to the top of the page and look in the upper right corner. There... -
Finally I know the cause of all my problems at last, Lactose !!!
trents commented on Jackie Garrett's blog entry in Jackie's Blog
Send Scott Adams this request using the built-in personal messaging tool ("PM" we call it). I'm must a moderator and to delete things requires full administrator privileges. -
Welcome to the forum, Krisit! I'm not sure what you are looking for in your question. Can you express it in a more focused way? In general, you need to avoid all foods that contain any amount of wheat, barley and rye. Those are the three gluten containing grains. But maybe your are asking for more specific advice about which pre packaged, processed...
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My bad. I see what confused me. You quoted the OP who was describing their daughter's symptoms. Anyway, did you notice the poster you quoted said her daughter's symptoms happened whenever she ate something containing gluten, not dairy? Gluten is a protein found in what, barley and rye. Lactose is the sugar in milk. Lactose intolerance has to do with...
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Will COVID-19 cause spike on Celiac Disease?
trents replied to trents's topic in Related Issues & Disorders
Posterboy, you said: "Which would make Celiac disease an Epigenetic disease....instead....and that "Breaks the Model"...." Instead of what? An autoimmune disease? -
If your daughter has celiac disease there is a 44% chance that her first degree relatives have or will develop it. Many celiacs have the "slilent" form with few or no obvious symptoms.
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Finally I know the cause of all my problems at last, Lactose !!!
trents commented on Jackie Garrett's blog entry in Jackie's Blog
Or could it be the other way around? Could celiac disease be the underlying cause of dairy intolerance? By the way, Jackie, are you sure your problem is lactose intolerance and not casein intolerance. Many people mistakenly think they are lactose (the sugar in milk) when they are really casein (one of the proteins in milk) intolerant. Also, did you mean...