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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. Thanks KK for the additional information on the role of tTG in the inflammatory process.
  2. Listening to your symptoms and your symptomatic experience with being off and on with gluten, I have no doubt that you have celiac disease. You may also find that other foods like oats and dairy cause similar symptoms as these two non-gluten foods not infrequently cause similar gut inflammation as gluten in the celiac population.
  3. Is tissue transglutaminase the cause of inflammation or the response to it?
  4. I would consider printing out some factual information from studies, such as those published in the NIH journal (which are often linked on this forum) and giving handouts to the doc. If the doc is not open to receiving the information, I would look for another doc.
  5. There is often a withdrawal experience immediately after going gluten-free. Focus on eating simple, fresh foods instead of processed things. Fresh meat, vegetables and fruit. Avoid spices except maybe salt. For the time being, avoid oats and dairy until you start to experience substantial healing. About 10% of celiacs react to oat protein the same way...
  6. Just a coincidence, I think unless the ramping up of the immune system in response to the shot made you more sensitive to any gluten ingested.
  7. The producers seem to be talking out both sides of their mouth. Either that or they don't know what gluten is or where it is found. The trouble with many products that don't have gluten as an intentional ingredient is that some of the intentional ingredients may be cross contaminated with gluten. Since the product isn't being tested for gluten, it's...
  8. Good words, CAROLE! I think you did some excellent summary and gave sound advice.
  9. Yes, there often are celiac support groups available but whether or not there is one close to you is another question. On the other hand, if there is not one close to you maybe you should consider starting one.
  10. I have never heard that you need both copies of the celiac gene to be able to develop celiac disease. I believe that is incorrect. Certainly, with both copies of the gene you would be more likely to develop celiac disease but I can just about guarantee you that there are a lot of people with active celiac disease that only have one copy. Furthermore, there...
  11. "Does it come down to the gluten product I’m consuming?" Possibly. There have been sporadic reports that some kinds of wheat are less likely to elicit gut inflammation than others and there have been some studies that indicate sour dough bread may avoid or at least lessen the inflammatory gut response for some celiacs. I don't think there is enough evidence a...
  12. Apparently, all it takes is two weeks of being on a significant amount of gluten daily to do enough damage to the villi to show up in a biopsy. This is the standard recommendation for those already having started eating gluten-free, i.e. two weeks back on daily gluten consumption. It actually takes longer (6-8 weeks) of reintroducing gluten in order to make...
  13. Welcome to the forum, Data! How did your doctor diagnose your "borderline celiac disease"? Did he do bloodwork to test for celiac disease antibodies. Did he do an endoscopy, biospy? All or some of your digestive issues could easily have their root in celiac disease. Mucus in the stool is a common symptom of celiac disease as is oily stools.
  14. dolson, did you mean to address this post to someone else? I don't have a diabetic child.
  15. Wait a minute, folks! You are painting the medical profession with a jaded, stereotypical brush that is much too wide. Sure, there are no lack of doctors that fit the arrogant, self-serving, materialistic profile you paint. We have all run into those types. But to say all physicians (or even most) are that way is just no true. I have been helped many...
  16. Rooks, I would quickly remove your email address from your post. Spammers can harvest it and you likely would be getting tons of spam in your inbox. If people reading your post wish to contact you they can do it with no risk to you simply by using the forum's internal personal messaging system.
  17. It does get easier. First thing is that through time, education and experience you develop this sixth sense as to where gluten is likely to show up in food items and of the things you need to stay away from so that you don't have to think so hard about it and wonder. You just know and say, "no." You come to realize that the risk is just not worth trying it...
  18. The villi are microscopic finger-like projections that protrude from the mucosal lining of the small bowel. They are responsible for creating a lot of surface area for the absorbing of nutrients. This is where nutrient absorption happens or doesn't happen. Constant inflammation causes damage to the villi which reduces the efficiency of nutrient absorption...
  19. Guest Ginny. We don't always know cause and effect but I think the point of the article was to establish a statistical connection. Perhaps in time we will have answer to your questions.
  20. Are you still eating oats and dairy? About 10% of celiacs react to oat protein the same way they do gluten from barley, rye and wheat. And realize, I'm talking about certified gluten free oats. Dairy, for some celiacs, has been shown to cause villi blunting in the small bowel similar to what gluten does. We often advise people new to the experience of celiac...
  21. I would contact the manufacturer and find out if this iron product is still gluten free. If they can't assure you it is I would switch to another product that is gluten free.
  22. Is this a buffered (enteric) iron supplement? Iron supplements can be hard on the gut.
  23. Thanks for the additional information, MindNumbMama. It gives us a better picture of the precautions you are taking. You seem to be doing what you can do on your end. One thing though. gluten-free bread products are not as nutritious as fortified wheat bread since there are no regulations mandating that niacin and riboflavin be added to the four as is the...
  24. Short answer: Yes. Did the doctor who did the endoscopy take a biopsy of the small bowel lining and get it tested? I'm just wondering what caused him to tell you don't have celiac disease. The biopsies of the small bowel then need to be sent off to a lab and looked at under a microscope for damaged villi, the proof of celiac disease.
  25. You're daughter is still eating take out food! Wow! I'd take a serious look at that. There's no way you are going to avoid gluten cross contamination in that scenario unless the eatery is a dedicated gluten free business. Several recent studies have demonstrated that most people who claim to be eating gluten free are actually just getting lower amounts than...
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