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trents

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Everything posted by trents

  1. trents
    And to be our own medical advocates by being appropriately assertive.
  2. trents
    That is true in the USA as well.
  3. trents
    RMJ, I was just extrapolating on what I have heard Scott say about antibody numbers below the cutoff line for positive, or at least what I understood him to say. He never said normal = zero but he has said that small numbers near the cutoff line may still indicate a celiac process is going on. I respect Scott's opinion in these matters since he has been involved...
  4. trents
    Some would say that normal = zero. In other words, even small numbers indicate inflammation is going on. Have you and your husband had genetic testing done yet? Your hubby certainly has a lot of symptomatic phenomenon that is characteristic of celiac disease. But from the medical community's standpoint, his numbers don't warrant additional testing. I wonder...
  5. trents
    As you are discovering, deanna, there is so much ignorance about celiac disease, even in the medical community, that people will almost always get a negative answer from family members when asking if it runs in the family. Celiac disease is a medical new boy on the block, even though there is historical evidence that it has existed since antiquity. People...
  6. trents
    It should be gluten free and okay for celiacs. However, some celiacs develop and intolerance to corn apart from any gluten issue just as they do dairy, soy, eggs, etc. because of leaky gut.
  7. trents
    I would suggest you get some bloodwork done to get a better idea of what might be causing this. Not every medical problem is related to having celiac disease. How's your insurance?
  8. trents
    Have you had any blood work done lately to check for anemia, vitamin and mineral deficiencies? Read meat is absolutely the best natural source of iron and of the most easily assimilated kind of iron (heme iron). There is a form of anemia called "pernicious" anemia related to being unable to assimilate B12 because of lack of something called "intrinsic factor...
  9. trents
    I wouldn't think one week of vegan eating would bring on anemia unless your iron levels were already borderline. But do keep in mind that there are no vegetable sources of B12 except some fermented cabbage products and B12 is vital to iron absorption.
  10. trents
    The ttG-IGA value needs a reference range to make sense of it. Do you have that. What is the "normal" range? Different labs use different ranges. Can you post the entire blood work? Celiac disease damages the lining ("villi") of the small bowel which is the nutritional absorbing organ of the body. This damage, when not addressed over time, typically...
  11. trents
    Is cost a limitation here? If not, I would order #2 and #3. If you can only afford one test at this time I would go with #2. The tTG-IGA is the one best antibody parameter to detect celiac disease so if #2 is too expensive go with #1.
  12. trents

    link at bottom is spam

  13. trents
    deanna, did you and the children's father get tested as well? Your kids got those celiac genes from either of their parents or both and you don't have to have both genes to provide potential to develop celiac disease. Researchers have recently discovered a third gene that could be implicated in celiac disease so I'm not sure we know all there is to know yet...
  14. trents
    I think it should be safe to supplement with B-vitamins without consulting your physician since they are water soluble and any excess will be peed out. Get a good high potency B-complex (gluten free). Costco's Nature Made brand is a good choice.
  15. trents
    Wow! Your GI doc seems to be up on celiac disease. That is very rare. You've got a jewel of a doc there.
  16. trents
    Just to camp on what knitty kitty said here, in preparation for the antibody test, the gluten challenge pretest guidelines recommend the consumption of gluten daily in the amount equivalent to two slices of wheat bread for 6-8 weeks. In other words, it takes weeks for the antibodies to accumulate to the point where they can be reliably detected if someone...
  17. trents
    Persistent, elevated liver enzymes was what led to my celiac diagnosis. The liver enzymes were not majorly high but persisted over several years. As soo as I eliminated gluten from my diet the liver enzymes normalized. About 18% of celiacs experience elevated liver enzymes. However, sometimes damage to the liver is irreversible. Not to scare you. You might...
  18. trents
    deanna, look at it this way. Having more than one celiac in the house provides more incentive to move over to an entirely gluten-free household. That would be the best way to ensure those who are celiacs don't get CC.
  19. trents
    Welcome to the forum, Corina! It is unfortunate that a biopsy was not taken during your endoscopy. The damage to the small intestine lining is not always visible until looked at under a microscope. That's why they take biopsies and send the samples to a lab. Usually, before a endoscopy/biopsy is done there is antibody testing performed via a blood...
  20. trents
    I had my appendix removed when I was 25 years old and was diagnosed with celiac disease at about 50 years of age so I don't think your theory that celiac disease or gluten intolerance is caused by a bad appendix holds water. If anything, I would be inclined to make some connection the other way around.
  21. trents
    It is possible to be symptom free if you are truly gluten free. But in reality, many celiacs take so long to get diagnosed that irreversible damage has been done to some body systems and they will not be totally symptom free because of the collateral damage.
  22. trents
    With celiac disease, the goal should not be to cut back on gluten but to totally eliminate it. Recent studies have shown that most people with celiac disease are actually practicing a lower gluten diet as opposed to gluten free. This is particularly true of those who still dine out. Even low levels of gluten exposure can keep the fires of the disease smoldering...
  23. trents
    I would not rule out the possibility of a health issue unrelated to celiac disease or gluten. But first, double-check your pantry and medicine cabinet for unexpected sources of gluten. Don't forget that food companies can and do change formulations such that something you eat regularly that had been gluten free no longer is. Check ingredients closely for...
  24. trents
    Just to be clear, the symptoms don't get worse after being off gluten for a while unless you go back on gluten. What happens is you lose whatever tolerance you had before going gluten free.
  25. trents
    Why does your doctor say you have Hashimotos when your thyroid panel numbers are all within normal range?
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