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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    It usually isn't the lactose that's the issue with dairy for celiacs. It's the protein casein found in dairy products. For some people, it can cause villi blunting like gluten does. Digestive enzymes are generally not helpful for celiacs. A good substitute for oats is buckwheat. Highly nutritious and delicious, IMO. Buckwheat is related to rhubarb and is...
  2. trents
    The studies that I referred to above also concluded that most of the subjects who claimed to be gluten free but were not were still dining out. Eateries appear to be the biggest threat to otherwise conscientious celiacs.
  3. trents
    Have you tried the nystatin mouth rinse for the oral thrush?
  4. trents
    Welcome to the forum, Ailish! Some of our forum members have reported "gluten withdrawal" symptoms when first quitting gluten. Also, it can take quite a while to catch on to the many places gluten can be found, not only in the food supply but in medications and supplements. Recent studies have shown that most people who believe they are eating gluten...
  5. trents
    Have you tried pro biotics? I suspect your gut biome mix is out of balance, allowing yeast/fungi to systemically be out of control. If you don't mind my asking, what meds are you regularly on? Could something you are taking be dinging your gut biome? How are your blood sugars?
  6. trents
    Yes.
  7. trents
    A number of autoimmune diseases are associated with celiac disease. It is very common for celiacs to develop other autoimmune conditions over time.
  8. trents
    What antibodies are you talking about as having spiked? Celiac antibodies or COVID? This is not clear to me from your post.
  9. trents
    You may also have non celiac gluten sensitivity. Symptoms are a lot the same but there is currently no test for it so first you rule out celiac disease. The rememdy is also the same, namely, abstinence from glute for a lifetime.
  10. trents
    It also makes me wonder if when a biopsy sample is sent to a lab for analysis of potential celiac disease, whos tissue is being evaluated? Yours or the person who was scoped before you?
  11. trents
    "Dapsone is a small molecule with anti-inflammatory immunosuppressive properties as well as antibacterial and antibiotic properties. It is used clinically to treat leprosy and malaria, and is being investigated for the treatment of a variety of skin infections." (from https://www.alzforum.org/therapeutics/dapsone#:~:text=Dapsone is a small molecule,a variety...
  12. trents
    I have not heard of this particular symptom before in the celiac community. But I wonder if you are experiencing an allergic reaction to gluten or wheat as opposed to a celiac reaction.
  13. trents
    There is a 44% chance that a first degree relative of someone with celiac disease will develop celiac disease. If you had some triggering stress event such as a viral infection, you could still develop celiac disease yourself. With both genes the guns are loaded.
  14. trents
    Extremely likely. That Ttg-IGA is quite high and that test is considered to be the centerpiece of antibody testing for celiac disease.
  15. trents
    All foods contain histamines but some are naturally high in histamines like bananas and avocados and many fruits. Aged, pickled and dried things are especially high in histamines as are canned foods. All foods increase in histamine levels over time when stored as in canned or preserved. There are also over the counter DAO supplements that purport to help...
  16. trents
    Carrying a supply of gluten free protein/energy bars can also help bridge the meal gap when gluten free eat out options are not available. And let me comment on what AlwaysLearning said: "A lot of it really depends on just how gluten free you intend to be. For me, being 100% gluten free means not eating out at all, unless the entire restaurant is gluten...
  17. trents
    I can't find them on Medline.
  18. trents
    The gold standard of distinguishing between celiac disease and NCGS is to have an endoscopy/biopsy done of the small bowel lining. NCGS does not damage the lining of the small bowel as does celiac disease. There is no test at the present time to directly diagnose NCGS. Yes, you need to be on a strict gluten-free diet the rest of your life if you want to keep...
  19. trents
    With great difficulty and inconsistency. Eating out is by far the greatest threat to eating truly gluten free.
  20. trents
    Nothing in those lab results suggests you have celiac disease. Even your iron markers and B12 are all just fine. These are things you would likely be deficient in if you had celiac disease. But you could have non celiac gluten sensitivity (NCGS) for which there is no test at the present time. NCGS produces a lot of the same symptoms but does not damage the...
  21. trents
    Just type the results in the text box rather than attach. What I'm wondering is specifically what IGA and IgG tests were run. Many physicians will only order the Ttg-IGA instead of a full celiac panel that includes several IGA and IgG tests.
  22. trents
    Are they the kind who is willing to bake their own treats or are we talking strictly ready made snacks they can buy in the store? Finding things that are both gluten free and sugar free will be a challenge unless you make them yourself and use sugar substitutes.
  23. trents
    Perhaps you have developed intolerances to other non-gluten foods. This is common among celiacs because of the dysfunctional immune system which turned against wheat in the beginning and now begins to falsely identify other foods as invaders. Have you been checked for SIBO?
  24. trents
    You had no IGA and no IgG? That doesn't make sense. Which IGA antibody or antibodies and which IgG antibody or antibodies were they testing for? Are you saying that whatever antibodies they were testing for in these two categories were negative? Negative is the same as none. Can you post the actual tests and their numbers? Maybe this will help: https://celiac...
  25. trents
    Aprilmon, are you on PPI therapy by any chance? Raw veggies can be difficult to digest, especially if you have low stomach acid and your gut biome is out of balance. Many who have celiac disease have GERD and have been put on Proton Pump Inhibitors which raise stomach PH and cause changes in the mix of microbes. You may be low on the microbes that break down...
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