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trents

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Everything posted by trents

  1. trents
    SammieH, I would certainly suggest your daughter not eat the food served in the school cafeteria. She can have no control over cross contamination as kitchen staff will likely use the same utensils to stir, serve and cut non gluten items as they do gluten things. She needs to take her own food from home. Same applies for eating out at fast food places or...
  2. trents
    Walter, I would definitely suggest you start on a good adult multivitamin and on top of that a high potency B-complex. Costco's Nature Made products are gluten free and of excellent quality. I would also add to that a gluten free vitamin D3 supplement of at least 2000 IU, a gluten free magnesium (stearate or glycinate form) and a gluten free zinc supplement...
  3. trents
    So, what are you doing to address your anemia?
  4. trents
    No, my bad! I was wrong about Katie being the OP. Sorry for the confusion.
  5. trents
    Ginger, my question was intended for the OP, Katie munos. Apparently, you and I were posting about the same time and you beat me to it by a smidgen.
  6. trents
    I'm no cardiologist or even a physician of any kind but I do know that a couple of the spinoffs of celiac disease can be: 1. anemia and 2. neurological problems. Have you been officially diagnosed with a gluten-related disorder?
  7. trents
    Lissa, welcome to the forum! The ingredients used in the medication formulation is not the only issue. Pills and caps can be manufactured on the same equipment used to make other meds that may contain gluten. So there potentially can be an issue with cross contamination.
  8. trents
    Yes, it is possible to also have an allergy to a gluten containing grain. Costco sells a delicious gluten free cauliflower crust pizza. My wife, who is not a celiac, actually likes it better than regular pizza.
  9. trents
    Barley is one of the three gluten containing grains to be avoided along with rye and wheat if you have celiac disease.
  10. trents
    No disrespect intended. Just trying to help. Sometimes we as celiacs can get a little tunnel vision.
  11. trents
    Anemia is one of the most common spinoffs of celiac disease. I was slightly anemic before I was diagnosed but not enough to really produce symptoms. Becoming easily fatigued is usually the first symptom of significant anemia. You may also experience rapid heart rate, shortness of breath, feeling chilly like the thermostat has been turned down and brittle...
  12. trents
    I have gotten the impression from participating on this forum for a long time that children sometimes display atypical results in antibody testing. For children under 3 yrs. They aren't reliable at all. "Blood tests are not always accurate in very young children. If your child is less than 3 years old, you may be advised to see a gastroenterologist instead...
  13. trents
    Did the physician not order a tTG-IGA or did you make a typo when you typed TTA-IGA? The tTG-IGA is considered the centerpiece of celiac antibody testing and many physicians will only order that one if they are not willing to order a full panel.
  14. trents
    Yes, I did. My bad.
  15. trents
    We have that information. The problem is with the generic that the OP actually uses.
  16. trents
    Best way to check for CC might be to call the manufacturer and ask if the med is produced on a dedicated line. You can get the manufacturer's phone number from the pharmacy vendor that handles it.
  17. trents
    Don't assume every ill you experience is gluten-related. Especially in the COVID era. I have not heard of gluten caused lymph node swelling. That sounds more like some infection response to me.
  18. trents
    If you go in for celiac disease testing, I encourage you to request the physician to order a complete celiac panel as described in the link above. Many physicians will only order the tTG-IGA test. The complete panel would include the tests under "Other Tests" in the article I linked above. Please be aware that there is a general lack of knowledge in the medical...
  19. trents
    Yes, many of your symptoms are common with both celiac disease and NCGS (Non Celiac Gluten Sensitivity). Your next step is to get tested for celiac disease via celiac antibody testing. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ You can also order a home celiac test from Imaware for about $100 if scheduling doctor...
  20. trents
    "Heinz, Organicville, Walden Farms, and Sir Kensington's specifically label their ketchup as gluten-free. That means it has been tested to under 20ppm gluten content." I do not think this is strictly true. I have recently read the FDA regulations for using labeling something "gluten free" and was surprised to discover that testing is not required unless...
  21. trents
    Great information from an insider! Thanks, Maureen. But it needs to be kept in mind that Mars, or any food company, can change their formulation at any time or change their production lines such that what was gluten free no longer is.
  22. trents
    Your tTG-IGA at 57.6 is strongly positive. This definitely suggests you have celiac disease. There is another diagnostic step that can be taken and that is an endoscopy with a biopsy of the small bowel lining to check for damage to the villi. This second diagnostic step is considered the gold standard of diagnosing celiac disease. If your physician wants...
  23. trents
    We can't tell you anything concerning your IGA test results with the information you have given us. IGA is not a test but a category including several different specific tests. Check this out: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ Can you list the specific tests that were run and the resulting values? We would also need...
  24. trents
    How long have you been eating gluten free? Your symptoms do not necessarily indicate excess stomach acid. You are making an assumption there. Burping can actually be a healthy sign that you are producing sufficient quantities of hydrochloric acid again. Are these big burps or many tiny ones? It is possible you actually have low stomach acid. You can...
  25. trents
    Different studies over the years have reported vastly different numbers but one recent large study (300 people I think) done by the Mayo Clinic found that 44% of first degree relatives of those with celiac disease also had celiac disease. The child's father and her siblings also need to be tested. You probably have celiac disease. You have a positive...
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