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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Yes, there often are celiac support groups available but whether or not there is one close to you is another question. On the other hand, if there is not one close to you maybe you should consider starting one.
  2. trents
    I have never heard that you need both copies of the celiac gene to be able to develop celiac disease. I believe that is incorrect. Certainly, with both copies of the gene you would be more likely to develop celiac disease but I can just about guarantee you that there are a lot of people with active celiac disease that only have one copy. Furthermore, there...
  3. trents
    "Does it come down to the gluten product I’m consuming?" Possibly. There have been sporadic reports that some kinds of wheat are less likely to elicit gut inflammation than others and there have been some studies that indicate sour dough bread may avoid or at least lessen the inflammatory gut response for some celiacs. I don't think there is enough evidence a...
  4. trents
    Apparently, all it takes is two weeks of being on a significant amount of gluten daily to do enough damage to the villi to show up in a biopsy. This is the standard recommendation for those already having started eating gluten-free, i.e. two weeks back on daily gluten consumption. It actually takes longer (6-8 weeks) of reintroducing gluten in order to make...
  5. trents
    Welcome to the forum, Data! How did your doctor diagnose your "borderline celiac disease"? Did he do bloodwork to test for celiac disease antibodies. Did he do an endoscopy, biospy? All or some of your digestive issues could easily have their root in celiac disease. Mucus in the stool is a common symptom of celiac disease as is oily stools.
  6. trents
    dolson, did you mean to address this post to someone else? I don't have a diabetic child.
  7. trents
    Wait a minute, folks! You are painting the medical profession with a jaded, stereotypical brush that is much too wide. Sure, there are no lack of doctors that fit the arrogant, self-serving, materialistic profile you paint. We have all run into those types. But to say all physicians (or even most) are that way is just no true. I have been helped many...
  8. trents
    Rooks, I would quickly remove your email address from your post. Spammers can harvest it and you likely would be getting tons of spam in your inbox. If people reading your post wish to contact you they can do it with no risk to you simply by using the forum's internal personal messaging system.
  9. trents
    It does get easier. First thing is that through time, education and experience you develop this sixth sense as to where gluten is likely to show up in food items and of the things you need to stay away from so that you don't have to think so hard about it and wonder. You just know and say, "no." You come to realize that the risk is just not worth trying it...
  10. trents
    The villi are microscopic finger-like projections that protrude from the mucosal lining of the small bowel. They are responsible for creating a lot of surface area for the absorbing of nutrients. This is where nutrient absorption happens or doesn't happen. Constant inflammation causes damage to the villi which reduces the efficiency of nutrient absorption...
  11. trents
    Guest Ginny. We don't always know cause and effect but I think the point of the article was to establish a statistical connection. Perhaps in time we will have answer to your questions.
  12. trents
    Are you still eating oats and dairy? About 10% of celiacs react to oat protein the same way they do gluten from barley, rye and wheat. And realize, I'm talking about certified gluten free oats. Dairy, for some celiacs, has been shown to cause villi blunting in the small bowel similar to what gluten does. We often advise people new to the experience of celiac...
  13. trents
    I would contact the manufacturer and find out if this iron product is still gluten free. If they can't assure you it is I would switch to another product that is gluten free.
  14. trents
    Is this a buffered (enteric) iron supplement? Iron supplements can be hard on the gut.
  15. trents
    Thanks for the additional information, MindNumbMama. It gives us a better picture of the precautions you are taking. You seem to be doing what you can do on your end. One thing though. gluten-free bread products are not as nutritious as fortified wheat bread since there are no regulations mandating that niacin and riboflavin be added to the four as is the...
  16. trents
    Short answer: Yes. Did the doctor who did the endoscopy take a biopsy of the small bowel lining and get it tested? I'm just wondering what caused him to tell you don't have celiac disease. The biopsies of the small bowel then need to be sent off to a lab and looked at under a microscope for damaged villi, the proof of celiac disease.
  17. trents
    You're daughter is still eating take out food! Wow! I'd take a serious look at that. There's no way you are going to avoid gluten cross contamination in that scenario unless the eatery is a dedicated gluten free business. Several recent studies have demonstrated that most people who claim to be eating gluten free are actually just getting lower amounts than...
  18. trents
    Low IGA levels can give negative results for the tTG test. The IGA related tests are the ones used to diagnose celiac disease. The tTG-IGA test is the test is the most specific test for celiac disease but it is the least sensitive. The others in the "full" celiac IGA panel are more sensitive but less specific. This might help: https://celiac.org/about...
  19. trents
    Bridget, about 10% of celiacs react to oat protein the same way they do gluten in wheat, barley and rye. And many celiacs find that the protein casein in dairy products causes inflammation of the gut much like gluten does. We often advise people who are just beginning the journey of eating gluten free to eliminate those two foods along with wheat, barley...
  20. trents
    Bridget, The lab values you posted are not helpful because they don't contain reference values. We would need to know what is the threshold value for being positive for each of those tests. Different labs use different reference values. If you don't have celiac disease you may still be gluten sensitive. The symptoms are largely the same. The difference...
  21. trents
    Home test kit using blood sample: https://www.imaware.health/at-home-blood-test/celiac-disease-screening
  22. trents
    Leslee12, please realize that if you are eating gluten free now any testing you would have for celiac disease would be invalid. You would need to go back on eating gluten daily for 6-8 weeks.
  23. trents
    Got it! Why did you eat the chicken sandwich? If you think you have celiac disease or even gluten sensitivity you really need to eliminate all gluten, even trace amounts that might come from cross contamination.
  24. trents
    Don't mean to pry but why are you choosing not to get tested for celiac disease?
  25. trents
    Just be aware that 10% of Celiacs react to oat protein the same way they do the gluten in wheat, barely and rye.
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