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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    You're daughter is still eating take out food! Wow! I'd take a serious look at that. There's no way you are going to avoid gluten cross contamination in that scenario unless the eatery is a dedicated gluten free business. Several recent studies have demonstrated that most people who claim to be eating gluten free are actually just getting lower amounts than...
  2. trents
    Low IGA levels can give negative results for the tTG test. The IGA related tests are the ones used to diagnose celiac disease. The tTG-IGA test is the test is the most specific test for celiac disease but it is the least sensitive. The others in the "full" celiac IGA panel are more sensitive but less specific. This might help: https://celiac.org/about...
  3. trents
    Bridget, about 10% of celiacs react to oat protein the same way they do gluten in wheat, barley and rye. And many celiacs find that the protein casein in dairy products causes inflammation of the gut much like gluten does. We often advise people who are just beginning the journey of eating gluten free to eliminate those two foods along with wheat, barley...
  4. trents
    Bridget, The lab values you posted are not helpful because they don't contain reference values. We would need to know what is the threshold value for being positive for each of those tests. Different labs use different reference values. If you don't have celiac disease you may still be gluten sensitive. The symptoms are largely the same. The difference...
  5. trents
    Home test kit using blood sample: https://www.imaware.health/at-home-blood-test/celiac-disease-screening
  6. trents
    Leslee12, please realize that if you are eating gluten free now any testing you would have for celiac disease would be invalid. You would need to go back on eating gluten daily for 6-8 weeks.
  7. trents
    Got it! Why did you eat the chicken sandwich? If you think you have celiac disease or even gluten sensitivity you really need to eliminate all gluten, even trace amounts that might come from cross contamination.
  8. trents
    Don't mean to pry but why are you choosing not to get tested for celiac disease?
  9. trents
    Just be aware that 10% of Celiacs react to oat protein the same way they do the gluten in wheat, barely and rye.
  10. trents
    On the cereal brands not specifically labeled "Gluten Free," check the ingredient list for things like "malt flavoring" which would be made from gluten containing grains. And even at that, because these particular cereals are made from grains that may become mixed with gluten containing grains inadvertently in the growing, transporting, storage and processing...
  11. trents
    B-complex. The various B vitamins work in concert. But keep taking the B12 as well. Taking high doses of B vitamins is safe since they are water soluble and any excess is just peed out.
  12. trents
    You really need to consider taking a gluten free high potency multivitamin and gluten free B-complex. Vitamin and mineral deficiency goes hand in hand with celiac disease since the damage to the small bowel lining creates nutrient absorption problems. That might be part of why you feel crummy when going off gluten. You are not getting the B vitamins that...
  13. trents
    Silent celiac disease refers to those who have celiac disease but who are asymptomatic or have minimal symptoms. Fatigue and brain fog are common symptoms of celiac disease but also of gluten sensitivity. Many celiacs are largely asymptomatic, at least for a period of time after onset of the disease. But eventually there is enough damage to body systems or...
  14. trents
    To put the question another way, do we really know all the genes involved across the spectrum of a population that predispose one to develop celiac disease?
  15. trents
    Glen, if you have celiac disease, there is a 44% chance your first degree relatives will have it as well, even if they seem asymptomatic at this point in time. If people wait until they have dramatic symptoms, irreversible damage can be done to certain body systems.
  16. trents
    GlenY, to be able to say very much about your test results we would need to know what standard the lab used for baseline. Different labs use different standards so it's like comparing apples with oranges. Do you have access to the numbers that would constitute normal range for each of those test results? Celiac disease and gluten sensitivity both often...
  17. trents
    I get very sick if I eat unwashed quinoa and some other unprocessed grains. It might be from oxalates or saponins but like so many foods, some people are sensitive and most aren't bothered by it.
  18. trents
    It's not clear to me either. Can you access your medical chart and the tests they ran online? There are several IGA tests that should have been run. Unfortunately, most general practitioners and many gastro docs are not very well versed about Celiac disease diagnosis.
  19. trents
    CMCM, would antibodies produced by casein sensitivity be different than that produced by gluten sensitivity? Aren't the antibodies just the marker for inflammatory processes? I believe they may be specific for certain kinds of tissues or organs but I wasn't aware that the causes of that inflammation could be determined by the antibodies. Recently on the forum...
  20. trents
    Anti oat IGA? That's a new one for me. If you do decide to get your daughter a blood test for celiac disease she would need to have been eating gluten regularly for 6-8 weeks before it would be valid.
  21. trents
    Be careful when taking magnesium supplements. They can have a definite laxative effect with some forms of it being worse about that than others.
  22. trents
    Celiac disease certainly can cause stomach distension. celiac disease is an autoimmune disease. Gluten ingestion triggers the immune system to attack the small bowel which causes inflammation. Often celiac disease produces a lot of gas as well.
  23. trents
    Raquel, Welcome to the forum! Elevated liver enzymes is what led to my celiac diagnosis almost 20 years ago. I had mildly elevated liver enzymes for more than a dozen years that could not be explained. I did not use alcohol and was tested for every hepatitis variety known without any positives. Now unlike you, I had no symptoms from the hepatic...
  24. trents
    Yes, it would seem.
  25. trents
    A TTG of 19.5 strongly suggests celiac disease. The TTG test is the least sensitive blood antibody test for celiac disease but the most specific.
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