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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    karyn, Yes, it is overwhelming at first. We have all been there. We understand where you are at. I think it took me (and my wife) about a year before we had a good enough understanding of where gluten is likely to show up in the food supply so that there was consistency in avoiding gluten. It will take more than a few days. A good place to...
  2. trents
    Josh, what led up to your endocopy/biopsy and the follow-up blood work? Were you having classic celiac disease symptoms? Can you give us some more history here? There are some foods (e.g., the protein "casein" in milk) and some meds and some non gluten related bowel conditions (e.g. Crohn's Disease) that can mimic celiac disease but in all these the...
  3. trents
    Be aware that most canned soups use wheat starch as a thickener. If you are going to put your daughter on a gluten-free diet you really need to educate yourself as to how widely gluten is used in the processed food industry and disguised by terminology. It is found in products you would never guess would have wheat, barley or rye in them. Would you expect...
  4. trents
    There are some logical fallacies in this article. For instance, just because casein is used to make Elmer's glue does not necessarily mean that it has a negative impact on the gut. And just because our ancestors drank goats milk instead of cow's milk doesn't require us to conclude that they had discovered cows mile to have a negative effect on human health...
  5. trents
    Good words, CMCM.
  6. trents
    Karen, has any doctor actually tested your daughter for celiac disease? If not, I would push for that if I were you. The first stage, and often the only needed one is a simple blood draw to test for antibodies characteristic of celiac disease.
  7. trents
    I have had success with placing a phone call to the companies. The receptionist usually connects me to the right department to address my question. If the department representative I speak to can't answer my question then they will take my phone number and email address for the purpose of getting back to me after researching the question. That has worked...
  8. trents
    Symptomatically, celiac disease and gluten sensitivity are pretty much the same. The only way to reliably tell if it's celiac disease is to have an endoscopy/biopsy of the small bowel to check for villi damage. But either way, the remedy is the same: totally avoiding gluten. You may also have an allergy to wheat or gluten since the many of the reactions you...
  9. trents
    Good to know. Thank you. This is very interesting. Overuse/misuse of antibiotics has been implicated in the development of celiac disease because of the negative effect it has on gut microbiota. But may antibiotics also be a treatment for it? And maybe the use of antibiotics in meat and milk production is not such a bad thing for humans if residues help...
  10. trents
    I wouldn't hesitate to mention to the dermatologist that you have been having gastro issues and are wondering if you might have celiac disease. Helping the dermo doc make that possible connection will help eliminate the possibility of a missed DH/celiac disease diagnosis. What blood work did the naturopath order? What specific tests? Do you have a record...
  11. trents
    knitty kitty, I have not heard before that antibiotics have immunospressive and anti-inflammatory effects.
  12. trents
    You might have to contact the companies that manufacture the various brands of cooking oil available to you and ask them if the seeds they extract the oil from ever come in contact with equipment also used to process wheat, barely or rye.
  13. trents
    Whew! I'm exhausted after reading that. Whew! I'm exhausted after reading that. You might want to go back and use bullet points or more punctuation to break that up a little bit and make it more readable rather than using an extended run-on sentence narrative style. Anyway, you for sure will not be able to determine if gluten is the principal...
  14. trents
    Then I would certainly get tested to see if the parasitic infection has returned. We do know that certain non celiac medical conditions, some medications, and even senitivities/allergies to some non-gluten containing foods can mimic celiac disease and give positive antibody results.
  15. trents
    First I have ever heard of this phenomenon. If I were you, I would seek an endoscopy/biopsy of the small bowel in order to check for damage to the small bowel villi. During the periods where your antibodies are positive, I would think that would be indication that inflammation and damage are occurring. That in itself should give you pause as to whether...
  16. trents
    RA=rheumatoid arthritis.
  17. trents
    If gluten is the only problem, you should be feeling better by now. You might want to look into SIBO (Small Intestine Bacterial Overgrowth) and a FODMAP diet. Also, are you still eating oats? About 10% of celiacs react to oat protein the same way they do gluten in wheat, barley and rye.
  18. trents
    Your on the right track just continue to educate yourself as to how gluten is hidden in processed food and through cross contamination. It can take days, even weeks, to get over one gluten episode. It can take two years or more for the gut to experience full healing after committing to eating gluten-free and every gluten episode can be a setback...
  19. trents
    Hm! Never thought of alcohol based sanitizers as being a potential source of gluten. But it is something to be aware of for sensitive celiacs who feel they get glutened transdermally. Would depend on what grain it is made from. A lot of it is made from corn or wood.
  20. trents
    This makes sense to me. In my experience there are many things I can eat without problems but if I eat too much of them or too often they upset my system. I've been working on trying not to fall into food ruts.
  21. trents
    Not eating gluten everyday before the scope may compromise the results but not necessarily totally invalidate them. It's hard to say. It may result in a marginal diagnosis that leaves the physician undecided. I should also say that celiacs with dermatitis herpetiformis do no necessarily have damaged small bowel villi, at least not in the beginning. I...
  22. trents
    Three week on gluten before the blood test may not be enough. The recommendation is eating the equivalent of 1-2 slices of wheat bread daily for 6-8 weeks before the blood test and at least 2 weeks before the endoscopy/biopsy. Your symptoms certainly fit with celiac disease but could also be due to other medical problems. Also, there are gluten-related...
  23. trents
    Actually, the standard recommendation is 6-8 weeks, not 4 weeks. Please realize that many doctors are not well-informed about celiac disease.
  24. trents
    Your inconsistency with gluten intake over the five year period may or may not have prevented sufficient healing of the villi to invalidate the endoscopy. However, three weeks of being back on daily regular amounts of gluten should have been enough to generate a valid endoscopy/biopsy. Several things to consider. First, what the doctor can see with the...
  25. trents
    Unless it is proved that fresh meat is a source of gluten exposure by way of what the animals have been eating I do not think supermarkets should be burdened with the task of guaranteeing the fresh meat they sell is gluten free. Many fresh foods are gluten free just by the nature of what they are. I suppose a person could take the extra step of washing their...
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