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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Yes, symptoms are largely the same as with celiac disease. And the antidote is the same: Life-long gluten free eating and not cheating on the diet.
  2. trents
    You could also have non celiac gluten sensitivity (NCGS) in which you experience most or all of the same symptoms as celiac disease but there is currently no test for it. So, your tests would be negative. But to confirm that diagnosis, you would need to have a biopsy done. With NCGS there will be no villi damage in the small bowel.
  3. trents
    I have not heard of the " house smells like mac and cheese" thing before but the rest of the symptoms your describe are all very typical of those who have celiac disease. Have you been diagnosed with celiac disease and if so, why is your GI doc putting you on a gluten challenge? And if you have not officially been diagnosed with celiac in the past...
  4. trents
    No. Nima was bought out by some medical supply company who seems to have eliminated the sensor and it's capsules from their product lineup. The only Nima products available are used and what you might find in carried over inventory. . . but they will be expensive most likely.
  5. trents
    Yes, indeed!
  6. trents
    Yes, you can post links here.
  7. trents
    Personally, I have not read or heard that celiac disease has any effect one way or the other on the effectiveness of vaccines.
  8. trents
    Then I would assume the liver issue is due to something else. Fatty liver disease? A temporary viral infection?
  9. trents
    18% of celiacs experience liver inflammation before going gluten free. That was me 20 years ago. Liver enzymes normalized with a few months of going gluten free.
  10. trents
    The tTg-IGA is the most specific blood antibody test for Celiac disease. If it is positive, even a weak positive, the chances are very high that you have celiac disease. All the symptoms you list are classic celiac symptoms. No one person will experience the entire range of symptoms that are common to the celiac population as a whole. Did you do a...
  11. trents
    That's because even though the gluten is not an intentional ingredient in the product, the equipment used to manufacture it is not dedicated to just that product. There may be other medications manufactured on that same equipment that uses wheat starch as a filler. And, so cross contamination cannot be ruled out.
  12. trents
    What is often mistaken for lactose intolerance in celiacs is actually casein intolerance. Casein is the main protein in dairy.
  13. trents
    Touche'!
  14. trents
    Don't take allergy testing too seriously. If you google it you will discover it can be pretty unreliable for several reasons. There is often poor correlation between what the tests show and the symptoms you experience in real life. A better option may be to start keeping a food diary and after a few weeks you may start to see patterns between your bad allergy...
  15. trents
    You need to get tested for celiac disease. The first stage of testing is getting a blood draw sent to a lab to check for celiac antibodies. Keep eating gluten until you get tested or the tests will not be valid.
  16. trents
    There is historical evidence that celiac disease has been around for many centuries, long before the advent of modern agriculture with it's herbicides, pesticides, and hybridization. There are many theories as to the apparent increase in celiac disease which include hybridization to increase the amount of gluten and the abuse of antibiotics. Celiac disease...
  17. trents
    No, I was just having a little fun with you, Scott!
  18. trents
    By current FDA standards, it is gluten free in that it contains no more than 20ppm of gluten. That is the current definition of gluten free in the USA and it works for most celiacs. But 20ppm is too much for some celiacs who suffer reactions to that amount.
  19. trents
    Epson salt is magnesium sulfate. It has many uses, external and internal. Did you have preeclampsia? It is used for that in drip form.
  20. trents
    "Elevated antibodies against DGP are often seen in patients who have celiac disease and are on a gluten-containing diet. This is a newer test that may give a positive result in some individuals with celiac disease who are anti-tTG negative, including children younger than two years." https://www.aafp.org/afp/2017/0601/p726.html The next logical step...
  21. trents
    Perhaps the food companies should be required to adopt the 10ppm limit for advertising their products as gluten free. This would motivate them to look into the more sensitive testing methods used by the gluten free certifying bodies.
  22. trents
    Hannah, welcome to the forum! Yes, you are up against a lot of barriers to better health right now. When you are indeed eating gluten free and have not experienced CC for a while, do many of your symptoms improve?
  23. trents
    If the serum antibody tests were strongly positive, I see no reason to have the endoscopy/biopsy done. IMO, the next step would be for you to put your son on a strict gluten free diet and some high potency vitamins to get a jump start on the vitamin and mineral deficiencies. In particular, a good multi vitamin together with high-potency B-complex and...
  24. trents
    Robsimonroberts, you and your wife have a decision to make. If she goes gluten free before testing it will invalidate the tests. However, if testing is unavailable in the near future because of the present state of the healthcare system in the UK, then it might be worth beginning the gluten free diet now to see if her symptoms improve. If they do then you...
  25. trents
    Yeah, you need to be eating regular amounts of gluten (equivalent of 2 slices of wheat bread) daily before the blood antibody test for 6-8 weeks and for at least 2 weeks before an endoscopy/biopsy for the tests to be valid. Really does sound like you need to either go on a gluten challenge and get tested or assume your have either celiac disease or non celiac...
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