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trents

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Everything posted by trents

  1. trents
    I think it should be safe to supplement with B-vitamins without consulting your physician since they are water soluble and any excess will be peed out. Get a good high potency B-complex (gluten free). Costco's Nature Made brand is a good choice.
  2. trents
    Wow! Your GI doc seems to be up on celiac disease. That is very rare. You've got a jewel of a doc there.
  3. trents
    Just to camp on what knitty kitty said here, in preparation for the antibody test, the gluten challenge pretest guidelines recommend the consumption of gluten daily in the amount equivalent to two slices of wheat bread for 6-8 weeks. In other words, it takes weeks for the antibodies to accumulate to the point where they can be reliably detected if someone...
  4. trents
    Persistent, elevated liver enzymes was what led to my celiac diagnosis. The liver enzymes were not majorly high but persisted over several years. As soo as I eliminated gluten from my diet the liver enzymes normalized. About 18% of celiacs experience elevated liver enzymes. However, sometimes damage to the liver is irreversible. Not to scare you. You might...
  5. trents
    deanna, look at it this way. Having more than one celiac in the house provides more incentive to move over to an entirely gluten-free household. That would be the best way to ensure those who are celiacs don't get CC.
  6. trents
    Welcome to the forum, Corina! It is unfortunate that a biopsy was not taken during your endoscopy. The damage to the small intestine lining is not always visible until looked at under a microscope. That's why they take biopsies and send the samples to a lab. Usually, before a endoscopy/biopsy is done there is antibody testing performed via a blood...
  7. trents
    I had my appendix removed when I was 25 years old and was diagnosed with celiac disease at about 50 years of age so I don't think your theory that celiac disease or gluten intolerance is caused by a bad appendix holds water. If anything, I would be inclined to make some connection the other way around.
  8. trents
    It is possible to be symptom free if you are truly gluten free. But in reality, many celiacs take so long to get diagnosed that irreversible damage has been done to some body systems and they will not be totally symptom free because of the collateral damage.
  9. trents
    With celiac disease, the goal should not be to cut back on gluten but to totally eliminate it. Recent studies have shown that most people with celiac disease are actually practicing a lower gluten diet as opposed to gluten free. This is particularly true of those who still dine out. Even low levels of gluten exposure can keep the fires of the disease smoldering...
  10. trents
    I would not rule out the possibility of a health issue unrelated to celiac disease or gluten. But first, double-check your pantry and medicine cabinet for unexpected sources of gluten. Don't forget that food companies can and do change formulations such that something you eat regularly that had been gluten free no longer is. Check ingredients closely for...
  11. trents
    Just to be clear, the symptoms don't get worse after being off gluten for a while unless you go back on gluten. What happens is you lose whatever tolerance you had before going gluten free.
  12. trents
    Why does your doctor say you have Hashimotos when your thyroid panel numbers are all within normal range?
  13. trents
    It does look like from the number that you have celiac disease. Judging by the way you spelled "celiac" it doesn't look like you are in the UK. Most definitely, you should be consuming a significant amount of gluten daily right up until the day of the endoscopy/biopsy. Your doctor gave you a bum steer by telling you to go gluten free. What are your...
  14. trents
    If the antibody tests are equivocal then there is a good chance the biopsy will be as well. I say that because the antibody tests measure inflammation and if the numbers are low you would think there is not much inflammation and damage going on in the small bowel lining. This could be true especially in the early stages of celiac disease. However, we...
  15. trents
    I commend you for getting prepared ahead of time. We don't often see that on the forum. That will pay dividends when and if celiac disease is confirmed for your daughter. Another thing you need to consider is that one recent study done by the Mayo Clinic with 300 or so people showed that 44% of first degree relatives of those with celiac disease had...
  16. trents
    My bad. That's what you get when reading something immediately after waking up in the morning. The underlined portions caught my eye and confess I did not read your post carefully enough to understand that your daughter is not yet eating gluten free. Are you in Europe? In the USA she would probably be put on conscious sedation and never even remember...
  17. trents
    Unfortunately, you are sabotaging any testing (either antibody testing or endoscopy/biopsy) for celiac disease by already having her on a gluten free diet. Both kinds of tests are designed to measure the effects of inflammation in the small bowel caused by gluten ingestion for those with celiac disease. For the blood antibody testing the guidelines for a...
  18. trents
    In many health food stores and no amazon you can actually buy pure gluten powder. https://smile.amazon.com/s?k=gluten+powder+for+baking+bread&crid=36YS1FLJCZKGJ&ref=nb_sb_ss_ts-doa-p_3_13. You could mix it in with a beverage and eliminate the starchy calories that bread has. Years before I knew I had celiac disease my wife used to bake our own...
  19. trents
    It's "knitty kittty" but I'm sure she probably figured it out. Yep! Few and far between are those physicians, even many GI docs included, who know much about celiac disease or are not operating from very dated information that they received back in medical school many years ago. You are now an expert compared to what most of them know. And, yep! You...
  20. trents
    You could have NCGS (Non Celiac Gluten Sensitivity) for which there is currently no test. It is ruled out by eliminating celiac disease. Many of the symptoms are similar between the two. NCGS does not damage the small bowel villi, however, so nothing shows up on the tests for celiac disease. You need to have been eating regular amounts of gluten daily...
  21. trents
    k2 has some role in blood clotting but not as much of a factor as k1 apparently: "The body needs both types of vitamin K to produce prothrombin, a protein that plays crucial roles in blood clotting, bone metabolism, and heart health. Vitamin K also helps facilitate energy production in the mitochondria of cells. Vitamin K-1 is primarily involved...
  22. trents
    Just a word of caution here about vitamin K supplementation or eating foods high in vitamin K. If you are on the blood thinner warfarin (aka, coumadin, Jantoven) you need to realize that vitamin K is the antagonist of that blood thinning medication. If you make significant changes to your dietary intake of K you need to make sure you alert your clinician...
  23. trents
    Yes. The less gluten consumed, the less inflammation that is happening. The less inflammation that is happening, the lower the antibody levels will be. Antibodies are involved with the inflammation chain of events. Antibodies are part of the immune system response to an invader (such as gluten for celiacs). Antibodies are marshalled to fight the invader...
  24. trents
    Weak positives, especially if you have been off gluten pre-test, would indicate celiac disease.
  25. trents
    Being off gluten for 10 days could have definitely skewed your test results toward the negative side. The only positive you have in that test battery is the tTG-IGG. The tTG-IGA is considered to be the best, most well-rounded test for celiac disease. Supposedly, it combines good sensitivity with good specificity. The other tests fall short in one or the other...
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