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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Non celiac gluten sensitivity can also cause harm to your body, so I think you have a false hope to the effect that if you do not have celiac disease you can consume gluten, put up with some symptoms but not harm your body. Among other things, you risk neurological damage in that scenario.
  2. trents
    I have taken the generic equivalent of Zyrtec for years. Occasionally, I will pop a Benadryl to supplement that. You can buy DAO capsules but they are expensive and I'm not sure they provided any help to me though admittedly, I was kind of hit and miss with them. When the bad headaches set in, I take sumatriptan. It is the only thing that works for me...
  3. trents
    I find my migraines are more frequent on the early spring and autumn when certain pollen counts are higher. I think my immune system is overloaded at those times and then when histamines from food and beverages is added in it just pushes the histamine load over the edge.
  4. trents
    I think you have all the evidence you need from your symptoms to conclude that you are either have celiac disease or gluten sensitivity. Stop torturing yourself.
  5. trents
    One take away from this is we may need to more often give the benefit of the doubt to those who post on the forum and are adamant about being gluten free. We have also had a large number of people post on the forum recently who have new onset of celiac symptoms after being largely asymptomatic for years once going gluten free. The article makes me wonder...
  6. trents
    You may have to research that question yourself by contacting the manufacturers. I would start with the pill you are currently using and if you can't get a straight answer try other manufacturers if your pharmacy plan permits you use different brands. But just a heads up. You can get "glutened" from the saliva of your partner through kissing if he has...
  7. trents
    Sorry, but I can't answer your question with any authority. What I can say is that when we get "glutened" the inflammation caused lasts more than a day. It can take weeks for your gut to recover from one incidence of glutenning. But nevertheless, you should adjust your eating habits to get some gluten every day until the test.
  8. trents
    I would suggest you do some research on "histamine intolerance." It is a commonly found in celiacs. It's a bit of a misnomer but the idea is that we aren't breaking down the histamines entering our bodies through what we eat as we should, there's a certain enzyme we don't produce enough of. It's known as DAO I think: https://www.deficitdao.org/en/dao-deficiency...
  9. trents
    Ask the doctor to order a full celiac panel, not just the TTG as outline in this article. This would include the "other" tests: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ The TTG is the most specific for celiac disease but the least sensitive.
  10. trents
    For the serum antibody tests you need to be eating the equivalent of 1-2 slices of wheat bread daily for 8 weeks prior to the test. For the endoscopy, the gluten challenge period is shorter, two weeks. You should have your physician order a "full celiac panel." The TTG is the most specific for celiac disease but the least sensitive. The full panel would...
  11. trents
    Most or all of the symptoms your describe are not uncommon to the celiac experience and gluten related. By the way, elevated liver enzymes was what led to my celiac diagnosis. Within three months of going off gluten those enzymes normalized. Elevated liver enzymes are experienced by about 18% of the pre-diagnosed celiac population but not one of the issues...
  12. trents
    10% of celiacs react to oat protein like they do gluten in wheat, barley and rye. So you might also try eliminating oats for a time and see if there is improvement.
  13. trents
    Guest Jean, you married well!
  14. trents
    Welcome to the forum, Kayla! About 10% of celiacs react to oat protein the same way they do the gluten in wheat, barley and rye. Right now, there is a controversy over whether or not distilled spirits truly are gluten free. Apparently for some people they may contain gluten protein fractions that can cause a reaction. With wines, there is often...
  15. trents
    Inulin is included in many, many health-oriented snacks and foods these days like protein bars and energy bars. Almost any prepared snack food that has high fiber content will have inulin, usually made from chicory root. These are sugar alcohols that are indigestible and notorious for giving many people gas and bloating.
  16. trents
    Consider also that you may be a celiac who is relatively insensitive to small amounts of gluten and that you may be often unaware of being "glutened" when eating out. And you are blessed to have a circle of family and friends who are aware and supportive of your efforts to avoid gluten. But I do not believe that is the norm.
  17. trents
    https://www.beyondceliac.org/research-news/gluten-free-diet-may-not-be-enough-even-in-celiac-disease-patients-who-seem-well/?utm_campaign=Research Opt-In&utm_medium=email&_hsmi=114784253&_hsenc=p2ANqtz-89c0C5U4fNAVIC-0dHGGTC0nJe_UcGwhTRWaqVW7tnmR3P2m8eLD_RDzAO-jZuGjr7mHzsu8-JJKslFQVV9Ll2uAbcKA&utm_content=114784253&utm_source=hs_email ...
  18. trents
    Histamine intolerance?
  19. trents
    Welcome to the forum, Audrey22! If you are truly eating gluten-free, your symptoms should improve within a few weeks. Complete healing of the gut typically takes around 2 years. Having said that, there are several things you need to be aware of: 1. Several recent studies have revealed that most people who claim to be eating gluten-free are actually...
  20. trents
    OpenlyCanadian, I agree with your decision. Enough is enough! I also agree with Scott in that your symptoms seem to go beyond either celiac disease or gluten sensitivity. Some of your symptoms are classic allergy symptoms. It may be to gluten but it wouldn't surprise me if there is also an allergic reaction to something else in your diet or your environment...
  21. trents
    Welcome to the forum, MJ! Complete healing of the small bowel villi takes an average of about two years. That said, I would be more concerned if you weren't belching or your belches were wee little ones all the time. I say this because it could indicate you have low stomach acid. We often see this, particularly with those who have been on PPI (proton...
  22. trents
    So you have been tested for celiac disease and waiting for results?
  23. trents
    Food allergy testing is notoriously unhelpful. There are some specific reasons for this but I won't go into all of that. The bottom line is that there is often poor correlation between the test results and actual symptoms in real experience. And when you send the same sample to two different labs you typically get significantly different results. That should...
  24. trents
    That should have been plenty of gluten to give a valid serum antibody test as long as those eating habits were being practiced at least 8 weeks prior to the testing. But again, the TTG is only one component of the celiac panel and the least sensitive.
  25. trents
    Welcome to the forum, Kate! If you feel your docs are beginning to blow you off there is the option of a home test kit for celiac disease that can be purchased for a round $100 USD. Whether you do another serum antibody test via home kit or have it done through your doctor, ask for a full celiac panel: https://celiac.org/about-celiac-disease/screening...
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