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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, Audrey22! If you are truly eating gluten-free, your symptoms should improve within a few weeks. Complete healing of the gut typically takes around 2 years. Having said that, there are several things you need to be aware of: 1. Several recent studies have revealed that most people who claim to be eating gluten-free are actually...
  2. trents
    OpenlyCanadian, I agree with your decision. Enough is enough! I also agree with Scott in that your symptoms seem to go beyond either celiac disease or gluten sensitivity. Some of your symptoms are classic allergy symptoms. It may be to gluten but it wouldn't surprise me if there is also an allergic reaction to something else in your diet or your environment...
  3. trents
    Welcome to the forum, MJ! Complete healing of the small bowel villi takes an average of about two years. That said, I would be more concerned if you weren't belching or your belches were wee little ones all the time. I say this because it could indicate you have low stomach acid. We often see this, particularly with those who have been on PPI (proton...
  4. trents
    So you have been tested for celiac disease and waiting for results?
  5. trents
    Food allergy testing is notoriously unhelpful. There are some specific reasons for this but I won't go into all of that. The bottom line is that there is often poor correlation between the test results and actual symptoms in real experience. And when you send the same sample to two different labs you typically get significantly different results. That should...
  6. trents
    That should have been plenty of gluten to give a valid serum antibody test as long as those eating habits were being practiced at least 8 weeks prior to the testing. But again, the TTG is only one component of the celiac panel and the least sensitive.
  7. trents
    Welcome to the forum, Kate! If you feel your docs are beginning to blow you off there is the option of a home test kit for celiac disease that can be purchased for a round $100 USD. Whether you do another serum antibody test via home kit or have it done through your doctor, ask for a full celiac panel: https://celiac.org/about-celiac-disease/screening...
  8. trents
    I'm guessing a full celiac panel would reveal more information at her present state of gluten consumption and symptoms. OP also needs to be aware that having the genes does not guarantee having active celiac disease. But given her symptoms . . . Good suggestion about the skin biopsy for DH.
  9. trents
    The TTG is the most specific of the blood tests for celiac disease but the least sensitive of the tests that can be done. We are hearing from a lot of people on the forum who are strongly symptomatic like you but get negative TTG values. Here is a link discussing the full battery of tests that can and should be done when serum testing for celiac disease,...
  10. trents
    Good read, KK and good summary.
  11. trents
    Thank you. A very thoughtful reply. I expected most replies to what I posted to be critical.
  12. trents
    "Complex," meaning a collection of the different B-vitamins combined in the same pill, usually including folate (or folic acid). The various B-vitamins and folate complement one another. Someone did say taking too many B vitamins can make you bloat but I have not heard that from other sources.
  13. trents
    Interesting discussion. I have an uncle that was diagnosed with celiac disease 10-12 years ago. For a short while he made some effort to eliminate gluten from his diet but then abandoned all pretense of it. I rode his case for a while about that but then came to realize he had made a decision to just live with it rather than have "gluten free" interfere with...
  14. trents
    Sorry, I misunderstood what you were intending to say. I interpreted your "wheat semolina" consumption to be something you did only that one time in conjunction with taking the clean out laxative.
  15. trents
    My take on that would be that the laxative salt solution prep caused things to move through so fast that the wheat semolina didn't have time to cause much inflammation.
  16. trents
    I would think you cannot have dairy without casein. It is one of the proteins that define milk. There might be some dairy substitute, however.
  17. trents
    The TTG is the most specific for celiac disease but it is not the most sensitive of the test battery you had run. Given that, if the TTG is positive I would think that is a strong indicator that you have celiac disease. The guideline for daily gluten consumption in order to get valid blood antibody tests is eating 1-2 slices of wheat bread (or the equivalent...
  18. trents
    Magnesium Glycinate is very popular. Well-absorbed and therefore doesn't cause as much laxative effect.
  19. trents
    https://www.verywellhealth.com/celiac-disease-genetic-testing-562695 "There are two places you can have the testing done without a doctor's order: Enterolab, a specialized laboratory in Dallas (Enterolab also performs gluten sensitivity testing), and the genetic testing service 23andMe.com. For around $150 (paid at the time you place the order)...
  20. trents
    https://www.verywellhealth.com/celiac-disease-genetic-testing-562695 "There are two places you can have the testing done without a doctor's order: Enterolab, a specialized laboratory in Dallas (Enterolab also performs gluten sensitivity testing), and the genetic testing service 23andMe.com. For around $150 (paid at the time you place the order)...
  21. trents
    In that case, you and your family members should look at getting genetic testing done to look for the celiac gene markers. Although it is true that a high percentage of the population will have some of the gene markers and therefore some potential for celiac disease, it might be helpful for you and your loved ones to know if you have a very strong propensity...
  22. trents
    When you go off of gluten, do you feel much better? I'm just wondering why you need testing confirmation if in fact your symptoms abate when you go off of gluten.
  23. trents
    Okay, then. Seems like you are on the right track and there is nothing else to do except wait for the procedure to be scheduled. Make sure you are eating the equivalent of 1-2 slices of wheat bread daily leading up to the procedure.
  24. trents
    Constipation one of the known side effects of verapamil. There are many BP meds to choose from so I advise talking to your doctor. Does the med have a diuretic effect? If so, you may need to increase your fluid intake to keep your bowels lubricated.
  25. trents
    If you intend to go through with the endoscopy/biopsy you are doing it right. The only question I have is why you are starting there instead of the blood test which would be less invasive and less expensive since you don't have insurance? The first time it was invalidated because your were off gluten. It is true, however, that it takes about 8 weeks of consuming...
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