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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, Catherine! Not only can oats be contaminated with gluten-containing grains, about 10% of celiacs react to oat protein the same way they do wheat, barley and rye. Also, it is common for celiacs to develop allergies/intolerances to non-gluten foods. Celiac disease creates "leaky gut" syndrome that allows larger than normal protein...
  2. trents
    Being vegan should not affect test results as long as they are consuming gluten daily. Would it be possible to pack a gluten-free protein bar to take to class with you to get something in your tummy that is portable and doesn't require cooking? You might makeup some hard boiled eggs and keep them in the frig for mornings when you don't feel up to...
  3. trents
    Thanks for bringing that up, Scott. I had intended to mention that to Rachel_17 but it slipped my mind. Related to that is having Rachel_17 and her family members realize that: 1. Active celiac disease can develop at anytime in life. 2. People with the genetic potential for celiac disease will not necessarily develop celiac disease. It requires...
  4. trents
    Rachel_17, you are taking some good steps toward healing. A big part of finding healing will be you finding a sense of taking control of the situation and you are now doing that. We want to emphasize the importance of adding to your vitamins a gluten-free high potency B-complex. Are you vegetarian or vegan? If not, meats are loaded with a lot of...
  5. trents
    Welcome to the forum Rachel_17. 1. It can take months to start feeling better after being on a gluten free diet. It can take a couple of years for the lining of the small bowel to completely heal but because of your youth I would expect it not to take that long if you are truly eating gluten free. 2. It is very common for celiacs to experience other...
  6. trents
    I think you are beginning to discover what most of us have concluded. Namely, the medical profession is just not up to speed on gluten related diseases and so, you must become your own advocate. By now, you probably know more than 90% of the doctors do about gluten related diseases and your best option is continued self-education.
  7. trents
    Just from the TTG values it doesn't look like you have celiac disease. TTG is the most important single test to run to check for celiac disease but there are others that should be run. Do you know if the TTG was the only one the doc ordered? Sometimes the TTG will be negative but some of the other blood enzymes will show positive. It is also the case that...
  8. trents
    An interesting hypotheses indeed. Haven't seen any research to that effect but all knowledge has a starting point.
  9. trents
    If it's been awhile sense you were checked for anemia it might be a good idea to have it redone. Anemia can be tied to poor uptake of B12.
  10. trents
    One of the "theories" behind what appears to be the growing prevalence of celiac disease is tied to the genetic manipulation of wheat down through time to produce strains of wheat that have more gluten. But listen to your own question. You're asking about eating a variety of wheat that is "less damaging" to the intestinal lining. Are you willing to settle...
  11. trents
    Oh! Have you been checked recently for iron deficiency anemia? You mentioned you suffered from fatigue.
  12. trents
    Several of our forum members are really knowledgeable with regard to vitamin and mineral deficiencies. Hopefully, some of them will chime in with some more targeted suggestions. Yes, B12 deficiency is very common in the celiac population and so are thiamine, niacin and magnesium. A good high potency B-complex along with a multivitamin should cover most of...
  13. trents
    Welcome to the forum, Fran4! It is common for people with celiac disease to develop allergies and intolerances to foods that do not contain gluten. Celiac disease sets the immune system on edge and it overreacts to a lot of different things besides gluten to produce similar symptoms. Dairy and soy allergies/intolerances are quite common and we are hearing...
  14. trents
    40% of the population has gluten sensitivity? Laura, can you substantiate that? Some people can be intolerant of some lectins but as a whole they are not considered harmful and are abundant in many common foods that are also highly nutritious. Cooking disables most lectins. https://www.healthline.com/nutrition/dietary-lectins#bottom-line
  15. trents
    Stirling, ditto to what knitty kitty said. I was not disputing the key role of zonulin in regulating intestinal permeability. I was questioning the role of the thymus in the production of zonulin. Sorry the misunderstanding caused you all the trouble of collecting massive evidence for what I agree with you on.
  16. trents
    Two weeks is considered the minimum gluten challenge period for a valid endoscopy/biopsy. Usually, however, physicians want to start with a serum antibody test because it is less invasive and much cheaper. This might seem counter intuitive, but the gluten challenge period for a valid serum antibody test is 8 weeks - longer than for the endoscopy/biopsy. This...
  17. trents
    At this point in time, there is not a test or a reliable diagnostic algorithm to distinguish between the two that would not involve an endoscopy/biopsy of the small bowel. And since you have been off of gluten for a significant period of time, the endoscopy/biopsy would not give valid results. You would have to be back on gluten for at least two weeks. Even...
  18. trents
    Hi, Thomas. The recovery time after getting "glutened" will vary widely from person to person. For me it seem to take a couple of weeks before I start to feel right again after a good exposure to gluten. You will also find that the longer you have been off gluten the more sensitive you will be to it. Most of us find that even after going gluten-free...
  19. trents
    Man! Makes you wonder sometimes if these companies even know what gluten is and where it is found. That's a basic.
  20. trents
    Unless the gluten were altered such that it retained it's density and texture and it's binding qualities minus the peptides that affect celiacs and others with gluten problems. That is the question.
  21. trents
    Most consider Behcets to be an autoimmune disorder, as is celiac disease. We also know that a number of other autoimmune diseases that commonly are seen in the celiac population (Hashimoto, type 2 diabetes, lupus, etc.) are located in the same genome region as is celiac disease. Perhaps that is a connection, though I realize my answer is kind of general...
  22. trents
    A word of caution is in order here. Don't take those allergy/intolerance blood tests (or the skin prick tests) too seriously. They are notoriously unhelpful when it comes to being definitive with regard to what foods actually give you issues. There is often poor correlation there. There are problems in several areas when it comes to those kind of tests. I...
  23. trents
    Welcome to the forum, BecaButterflies! This does not definitively answer your question but perhaps the additional information will help you make a decision. Celiac Disease is a genetic disorder in the sense that we do know it is tied to specific genes that must be present for someone to develop celiac disease. These genes are present in about 4...
  24. trents
    But newcon2021, if you have been steadily cutting back on your son's consumption of gluten then just like the serum antibody testing you have already had done, the scoping with biopsy, it may have the same problem of being inconclusive because a certain amount of healing of the villi may have taken place. It is recommended that your son go back to consuming...
  25. trents
    Inshirah, what kind of test did you have to check for food intolerances? Was this a blood test or a skin prick test or something else?
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