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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    No. Milk intolerance does not bring on celiac disease but celiac disease can contribute to milk intolerance. Many celiacs report that their milk intolerance disappeared after they went on a gluten free diet and found healing in their gut. Milk intolerance can exist apart from celiac disease and many people who are milk intolerant do not have celiac disease...
  2. trents
    It depends on what you mean by "compromised." If you mean "dysfunctional" that isn't necessarily the same as "deficient." Dysfunctional can mean the immune system is hyper vigilant which is the case with celiac disease. So dysfunctional might be a better term than compromised.
  3. trents
    Jackie, many people with celiac disease cannot tolerate either the milk protein casein or the sugar (lactose) in milk. For some, casein can cause villi blunting like celiac disease does.
  4. trents
    One of the classic manifestations of celiac disease is an autoimmune skin condition called dermatitis herpetiformis or DH. You also describe many other symptoms which are classic for celiac disease such as GI distress, brain fog and other neurological problems. You need to get tested for celiac disease. The first stage of testing is checking for serum...
  5. trents
    You don't "grow out of it" with celiac disease once it manifests itself, regardless of how old you are when that happens. All the symptoms you describe are common with celiac disease. The next step is to get tested. The first level of testing is a blood draw sent to a lab to detect antibodies that are associated with celiac disease. The second level of testing...
  6. trents
    All over your body? Wow! That's a bummer. Do have dermatitis herpetiformis or eczema or some other skin condition that causes lesions? My understanding is that ringworm enters through breaks in the skin.
  7. trents
    Ectopic heartbeat is a new term to me. How is that different than flutter or atrial fibrillation? Or is it just an alternative term for those?
  8. trents
    You might want to take some antihistamine.
  9. trents
    I'm glad you clarified that. So you are off wheat and not on wheat.
  10. trents
    Better than an ectopic pregnancy I'm thinking.
  11. trents
    One piece of advice for increasing the odds for eating out safely that someone else on the forum gave recently is to call ahead to the restaurant, talk to the kitchen staff and plan menu items that are naturally gluten free. Then take along a bottle of GliadinX to cover the likelihood of getting a small amount of gluten from cross contamination.
  12. trents
    Celiac disease usually brings along other autoimmune conditions in time. Also, it is typical for celiacs to develop other food intolerances. Intolerance of dairy (casein) is the most common ones.
  13. trents
    The most important thing for you to do about this is to begin eating totally gluten free. No medication will help much with the DH until you do that. You need to educate yourself concerning how and where gluten shows up in the food supply. It is found in many foods you would not suspect it to be. Like, soy sauce and canned tomato soup. It can be found in...
  14. trents
    If you plan on getting testing done for celiac disease, please be aware that you will have to go back on regular daily amounts of gluten (equivalent of 2 slices of wheat bread) for 6-8 weeks before serum antibody testing and at least 2 weeks before an endoscopy/biopsy.
  15. trents
    Yousasf, one of the classic signs of celiac disease is a skin condition called dermatitis herpetiformis, or DH for short.
  16. trents
    Yes, but I wasn't sure if you were referring to the pill form or the oral rinse form of nystatin.
  17. trents
    "does Lactose free cheese have Casein?" Lactose is the sugar component in dairy. Casein is the largest protein fraction in dairy. Removing the lactose does not affect the protein. Just for the sake of clarity, celiacs can be lactose intolerant but what I am saying is don't assume that is the issue. It could also be casein intolerance. If you use...
  18. trents
    Casein is the primary protein in dairy so I'm not sure what you are saying here. Whey is another protein found in dairy but seems not to cause problems like casein does for some people.
  19. trents
    Whoops, typo. Let me correct it: "The studies that I referred to above also concluded that most of the subjects who claimed to be gluten free but were not were still dining out. Eateries appear to be the biggest threat to otherwise conscientious celiacs.
  20. trents
    It usually isn't the lactose that's the issue with dairy for celiacs. It's the protein casein found in dairy products. For some people, it can cause villi blunting like gluten does. Digestive enzymes are generally not helpful for celiacs. A good substitute for oats is buckwheat. Highly nutritious and delicious, IMO. Buckwheat is related to rhubarb and is...
  21. trents
    The studies that I referred to above also concluded that most of the subjects who claimed to be gluten free but were not were still dining out. Eateries appear to be the biggest threat to otherwise conscientious celiacs.
  22. trents
    Have you tried the nystatin mouth rinse for the oral thrush?
  23. trents
    Welcome to the forum, Ailish! Some of our forum members have reported "gluten withdrawal" symptoms when first quitting gluten. Also, it can take quite a while to catch on to the many places gluten can be found, not only in the food supply but in medications and supplements. Recent studies have shown that most people who believe they are eating gluten...
  24. trents
    Have you tried pro biotics? I suspect your gut biome mix is out of balance, allowing yeast/fungi to systemically be out of control. If you don't mind my asking, what meds are you regularly on? Could something you are taking be dinging your gut biome? How are your blood sugars?
  25. trents
    Yes.
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