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trents

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Everything posted by trents

  1. trents
    The gold standard of distinguishing between celiac disease and NCGS is to have an endoscopy/biopsy done of the small bowel lining. NCGS does not damage the lining of the small bowel as does celiac disease. There is no test at the present time to directly diagnose NCGS. Yes, you need to be on a strict gluten-free diet the rest of your life if you want to keep...
  2. trents
    With great difficulty and inconsistency. Eating out is by far the greatest threat to eating truly gluten free.
  3. trents
    Nothing in those lab results suggests you have celiac disease. Even your iron markers and B12 are all just fine. These are things you would likely be deficient in if you had celiac disease. But you could have non celiac gluten sensitivity (NCGS) for which there is no test at the present time. NCGS produces a lot of the same symptoms but does not damage the...
  4. trents
    Just type the results in the text box rather than attach. What I'm wondering is specifically what IGA and IgG tests were run. Many physicians will only order the Ttg-IGA instead of a full celiac panel that includes several IGA and IgG tests.
  5. trents
    Are they the kind who is willing to bake their own treats or are we talking strictly ready made snacks they can buy in the store? Finding things that are both gluten free and sugar free will be a challenge unless you make them yourself and use sugar substitutes.
  6. trents
    Perhaps you have developed intolerances to other non-gluten foods. This is common among celiacs because of the dysfunctional immune system which turned against wheat in the beginning and now begins to falsely identify other foods as invaders. Have you been checked for SIBO?
  7. trents
    You had no IGA and no IgG? That doesn't make sense. Which IGA antibody or antibodies and which IgG antibody or antibodies were they testing for? Are you saying that whatever antibodies they were testing for in these two categories were negative? Negative is the same as none. Can you post the actual tests and their numbers? Maybe this will help: https://celiac...
  8. trents
    Aprilmon, are you on PPI therapy by any chance? Raw veggies can be difficult to digest, especially if you have low stomach acid and your gut biome is out of balance. Many who have celiac disease have GERD and have been put on Proton Pump Inhibitors which raise stomach PH and cause changes in the mix of microbes. You may be low on the microbes that break down...
  9. trents
    Yes, but getting COVID itself could also be a Celiac gene trigger and there is a greater chance that will happen with the unvaccinated.
  10. trents
    No, my Christian heritage is not Mennonite. My wife's is, however. It just strikes me as wise not to say unnecessary things that have the potential to offend someone.
  11. trents
    Back to the cult issue. I think someone took your original remark as you saying that the Mennonite movement as a whole is a cult. When I look at what you wrote I can see that you might have been meaning instead that the particular Mennonite community your great grandmother came out of was a cult. At least I hope that is what you meant. Cults can spring up...
  12. trents
    I'm not so sure about the concept of "gluten withdrawal." I would guess what you are experiencing is actually due to accidental or unintentional gluten exposure. There is a real learning curve involved with consistently avoiding gluten. It shows up in processed foods that you would never expect to find it in. Examples: Campbells tomato soup, most soy sauces...
  13. trents
    Some people seem to need an official diagnosis to foster the resolve needed to keep from cheating on the diet. You know, "Maybe it's something else besides gluten." "Or maybe it's just coincidence that I get sick when eating wheat." Other than that, save the bucks. Your improvement when going off gluten is the proof in the pudding.
  14. trents
    dani, how many calories are you consuming daily?
  15. trents
    Looks like you are well below the standard range so I would say you are not consistently being "glutened" by cross contamination. Having said that, it is always smart to have your own toasters, utensils and cookware, snacks, etc. and keep them in a separate place.
  16. trents
    Tim, we cannot answer your question unless you give us not only your lab value results but the reference ranges used by the lab that did the analysis. Different labs use different reference ranges.
  17. trents
    Just to be clear, am I correct in concluding you are putting your son on a gluten challenge because you are having celiac testing done in 12 weeks? I can't say this with any certainty, but I believe spelt is an old world form of wheat that has not gone through so much hybridization as modern wheat. One of the theories out there trying to explain why...
  18. trents
    Welcome to the forum, Alex! I appreciate your attitude of praise! Obviously, you are someone for whom life's glass is half full instead of half empty. With switching from meat to seafood for protein, do you have any concerns about heavy metal toxicity?
  19. trents
    Would getting tested and finding out you were positive for celiac disease strengthen your resolve to not eat gluten containing things? Since you are continuing to eat gluten, now would be the time to get tested rather than when you were on the gluten free bandwagon. Many people need the official diagnosis to prevent them from cheating on their gluten free...
  20. trents
    GodsGal, I grew up in Virginia but haven't lived there since 1976. Moved out west when I was 25. I agree. You can adapt some dishes to gluten-free and they are a reasonable facsimile of the original version but others you just have to let go of.
  21. trents
    When they hear "Mennonite," most people envision folks driving around in-horse drawn buggies with men wearing tall hats and women wearing long dresses and bonnets. But there are different Mennonite groups with some of them being more progressive and embracing modern technology. My wife's Mennonite heritage is the latter.
  22. trents
    I believe only Scott Adams can change your screen name. I believe you would need first to create a new account with a different user name and then Scott can merge the old with the new. Send Scott a message using the forum's personal messaging tool (PM).
  23. trents
    You probably also have vitamin and mineral deficiencies. I would suggest getting on a high potency multivitamin plus a high potency B-complex together with magnesium and D3. Damage the small bowel villi (the nutrient absorbing lining of the small bowel) causes this. Make sure all vitamins and supplements are gluten free. Costco's Nature Made line is a good...
  24. trents
    My wife grew up in a Mennonite Brethren family and church. Her parents would often buy things at the Mennonite Relief sale. She grew up in the Willamette valley of Oregon in a community where there was a concentration of Mennonites. Her maternal grandfather came over on the boat from Prussia when he was a small child. Before I was diagnosed with celiac disease...
  25. trents
    Could be a lot of things but I would certainly look at changing GI docs. Any GI doc that tells you you don't need to be eating gluten prior to being tested for celiac disease is not to be trusted as competent. Unfortunately, there is still a lot of ignorance in the medical community with regard to gluten-related illness.
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