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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Don't be too hard on yourself. Most general practitioners are not very knowledgeable about celiac disease and even some GI docs don't know to or fail to tell their patients they need to keep eating gluten before testing. It should come from them as a responsibility, not the patient.
  2. trents
    Pretesting gluten consumption to ensure validation of serum antibody testing would be daily consumption of a significant amount of gluten (a slice of bread or several wheat crackers worth) daily for at least 6 weeks and for the scoping/biopsy for at least 2 weeks. I believe this is the standard recommendation. But like Scott, I feel your gluten consumption...
  3. trents
    Grapes and especially raisins can also be high in histamines and may cause the symptoms you describe in some people who don't break down histamines well. You may want to look into histamine intolerance/mast cell activation syndrome.
  4. trents
    I think critics of this short production need to realize that many of their misgivings target characteristics that were intentionally built into the film. The design of the film is not so much to communicate information but to convey an experience through depiction of mood and feelings.
  5. trents
    Absolutely! You have a number of symptoms that are classic for celiac disease.
  6. trents
    Your endoscopy will likely be invalidated by your eating gluten free for the past three months and the one recent episode of being "glutened" will not be enough to change that. There likely has been significant healing in the villi if you have truly been eating gluten free except for that one episode so the endoscopy/biopsy will not show the former damage...
  7. trents
    The function of the gallbladder is to secrete bile, a substance that aids on the digestion of fats. Not fats in grapes.
  8. trents
    JoelW1lls, have you been diagnosed with celiac disease or at this point are you wondering if you have it because of the symptoms you experienced after eating something with gluten?
  9. trents
    Anne, you were blessed to have caught your celiac disease at such a young age before a lot of collateral damage was done to your body and at a stage in life when your healing powers were at peak efficiency. That will not be everyone's experience.
  10. trents
    Absolutely. Just request it from your physician. Really, there is a whole antibody panel of tests that can/should be run to test for celiac disease but the ttg is now considered the center piece. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/. Go armed with this information when you visit your physician. Many general practitioners...
  11. trents
    Morton tastes like aluminum? That's a new one. Never heard anyone say that before. Just tastes like salt to me.
  12. trents
    A gluten allergy would be scientifically defined since allergic reactions engage the immune system in specific ways. Intolerances are typically conditions that cause lower GI distress, as in lactose intolerance. Gluten sensitivity falls short of celiac disease but is usually viewed as creating some sort of toxic reaction that has a more systemic effect and...
  13. trents
    You'll get a variety of feedback on this forum with regard to throwing out cookware. Personally, I believe through washing should do the trick. Be especially careful with cast iron skillets because they are fairly porous. I really think you should consider getting genetic testing done for your toddlers. First degree relatives will have some of the genes...
  14. trents
    Welcome to the forum, KMS83! First, get your thyroid hormone level checked if you have not. That could definitely wreak havoc with your energy levels. Second, several recent studies have demonstrated that most people who believe they are eating gluten free are actually practicing low gluten diets. This is especially true for those who dine out...
  15. trents
    Genetic testing for vitamin deficiencies? I haven't heard of that before.
  16. trents
    What about iodized table salt? In 1/4 teaspoon there is 45% of the MDR and 590 mg of sodium which is 25% of the MDR. And processed foods are typically loaded with salt. Now, some food manufacturers do use iodine free salt (see https://lidlifecommunity.org/countries/usa/usa-brand-information/usa-safe-salt-brand-list/ for a list) but I would hazard to say...
  17. trents
    Be aware that food companies can and do change the formulations of their processed food products. What was once gluten free may no longer be. When problems reoccur it is a good idea to check all labels in your pantry and at the grocery store for any changes that might have introduced gluten. Same with meds and supplements.
  18. trents
    Posterboy, I don't see other signs of an ulcer. I would think if I had an ulcer it would produce pain at other times.
  19. trents
    Encouraging news, Tracy66! Thanks for sharing your victory. I think you will soon be getting to the bottom of this and your daughter will be on the road to healing.
  20. trents
    Proton Pump Inhibitor. Omeprazole (Prilosec) , Protonix, etc. A class of meds that actually blocks the production of stomach acid as opposed to neutralizing it like Tums or Gaviscon. There are also H2 receptor inhibitors like Zantac and Pepcid which aren't as strong as PPIs but may create less dependency. Yes, I was taking the PPI on a daily basis. Took care...
  21. trents
    And yet, B vitamin supplementation is also a recommendation for treating migraines. I have always heard that supplementing with B vitamins is safe because they are water soluble and we just excrete any excesses in our urine. Is this no longer a valid concept? Maybe the science around this has changed.
  22. trents
    Tracy66, just be careful and get vitamins and supplements that are gluten free. Not sure where you live but Costco is a great source for gluten-free vitamins and supplements through their Nature Made line if your are in the USA and near one.
  23. trents
    I'm sorry but your doctor was incorrect when saying that you only have to be eating gluten for two weeks to get a valid antibody test. Unfortunately, many general practitioners and more than a few GI docs are not up to speed when it comes to diagnosing and advising patients with regard to celiac disease. Two weeks may have been acceptable for the endoscopy...
  24. trents
    Tracy66, also be aware that serum vitamin and mineral level testing may not tell the whole story since they don't measure what is actually getting to the tissues. Deficiencies can also be masked in some cases by supplements. A case in point is a B12 deficiency being masked by folate supplementation. Really, it can be better to observe the effects on the body...
  25. trents
    Niacin supplementation gives me tummy burn. I know it has a reputation for doing that for some people. It's supposed to be transient but having just recently gone through PPI elimination withdrawal and come out on the other side I'm still very wary of things that irritate my gut.
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