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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. You are most welcome and I hope what I have shared will prove to be of help as you seek to get a handle on your daughter's health issues. Concerning the anaphylactic reaction to egg protein the same way as you would a bee sting in so far as how it engages the immune system.
  2. Nothing bakes as well as the old cast iron wood stoves my grandma used on the farm. The thickness of the oven chamber walls was much greater and contributed to more even heating.
  3. I believe that anaphylaxis involves a different immune system pathway than does celiac disease or other food intolerances. Very many people with celiac disease have few or no GI distress, at least in the beginning. We call that "silent" celiac disease. Has your daughter been tested for "pernicious" anemia? This is where there is a lack of something...
  4. Sounds like you have a good plan. You might also need to consider some lifestyle changes like avoiding caffeine and acidic spicy foods, avoiding bending over soon after eating, etc.
  5. They are naturally gluten free but that doesn't rule out cross contamination with wheat, barley or rye in handling and packaging. Could be an issue for more sensitive celiacs and gluten intolerant people. Chia seeds make me quite ill but I think it's not a gluten issue but an insensitivity to the natural defense chemicals in the seed coat such as saponins...
  6. CBKilpatrick, you are blessed to have a gastro doc who has an open mind and doesn't just operate on by the book autopilot and who is willing to listen to you and work with you.
  7. I think you are fooling your self when you say, "I was previously gluten intolerant but not quite celiac." Whether it's gluten intolerance or celiac disease you are talking about you don't get over either. They are life-long medical conditions baked into your genes. And gluten intolerance is often a precursor to celiac disease. What kind of testing have you...
  8. And yet most of us celiacs make up for these several enrichment vitamins with supplements and iron is found in abundance in red meats. Even without supplements it is easy for most people without celiac disease to get all of these nutrients in a well-rounded non wheat diet. I think enriched bread is a carryover from a bygone era when when poverty was more...
  9. Very valuable input, ravenwoodglass, as it seems to definitively answer the question of whether or not one can have celiac disease without the classic genetic profile generally associated with the disease.
  10. I have some age-related hearing loss and found the audio to be very muddled. Only caught a word here and there. However, the broad themes of the message were still easily discernable through the acting and the cinematography. It does a good job of conveying the huge adjustments the newly diagnosed celiac must undergo - learning to shop and cook all over again...
  11. To be honest, I don't think he cares enough to be interested in doing anything about it.
  12. I've tried. He's a very social person who dines out frequently and it's clear to me that he has decided that is more important to him than enduring the health risks posed by continuing to consume gluten. In addition, I think he is largely asymptomatic.
  13. Welcome to the forum, Cb! It is not uncommon for celiacs to be largely asymptomatic. We call that "silent celiac disease." I was one of them but sense eating gluten free for almost 20 years now I find that I have much less tolerance for gluten than I did when consuming it daily. Now, if I accidentally consume a significant amount of gluten, like I did...
  14. I will be turning 70 in April. I was diagnosed with celiac disease almost 20 years ago but looking back there were some definite clinical markers that the disease was active for about 15 years before diagnosis. I have an uncle who is now almost 90 years old who was diagnosed with celiac disease probably 12-15 years ago but has never practiced gluten-free...
  15. That is why I believe it is becoming increasingly important to seek out products with the "Certified Gluten Free" label rather than just "gluten free."
  16. There is no evidence to support the idea that celiacs are more at risk for adverse reactions to the vaccine than anyone else.
  17. I found some information to support raspberry . . .'s claim. For instance: See the second paragraph from here: https://www.worldhealthlaboratories.com/histamine0d5cd131: "Folic acid (with vitamin B12) can help to raise the histamine level." And here: https://www.histamine-sensitivity.com/histamine_rose-08-13.html: See the last paragraph under the...
  18. Agree! Although I would point out that the article is addressing the eating habits of non celiacs for whom being totally gluten-free may not be relevant.
  19. Would you elaborate on that please?
  20. Made me laugh and reminded me of a conversation I had with a big chain restaurant chef some years ago as I was preparing for a company celebration in a few days. As I discussed different non gluten menu options with him and was about to finalize a plan, I asked him about one more particular item I was interested in for the meal. "Does this have gluten in...
  21. Thanks, Scott. Very interesting. I note the first article lists viral infection as a cause . . . something that has also long been considered a trigger for Celiac Disease.
  22. But is "lactose intolerance" really what we are talking about when referencing elevated ttg levels? I just read the titles to those summaries and they all reference intolerance. To my understanding, intolerances produce discomfort and diarrhea but isn't damaging.
  23. Most but not all uses of healing clay seem to be topical in my research and the supposed anti inflammatory qualities are usually in connection with topical uses. When consumed, I think it tends to bind with a lot of things and that explains most of whatever effects it has on the gut and prescription meds.
  24. If I mention to a waiter that I have celiac disease I seldom get a look of recognition. Because of marketing verbiage which has chosen terms like, "gluten intolerant" and "gluten allergy," the term "celiac" is still not familiar to most. I usually just say, "I need to avoid gluten. Can you help me make some wise choices?"
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