trents
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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It took my wife and I about two years to get a feel for how gluten is hidden in the food supply, particularly in processed foods. It can be disguised in terminology and it can show up in places you would never expect like soy sauce, Campbell's tomato soup and even pancake syrup. In time you develop a sixth sense about all this - as it were. Then there is... -
Welcome to the forum, @NJJOE640! Can you be a little more specific about your question. Are you asking if other celiacs are experiencing this same roller coaster effect with their efforts to eat gluten free?
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The sad thing about all this is that it severely erodes the trust that those in the gluten intolerant/gluten sensitive community have in food companies and in gluten free/GFCO labeled products in general. How much do these labels really mean? Makes me think I might have been a little judgmental toward my "super sensitive" fellow celiacs. It may not be all...
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Wow! Thanks for this, Scott! We use those Banza chickpea noodles a lot. So much so, I've been complaining to my wife that I'm getting tired of them. Now there is a better reason to avoid them. But this article is extremely revealing. Glyphosate has gotten a bum rap for years and really it is the misuse of it as a drying agent to accelerate harvest time...
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This article is extremely revealing. Glyphosate has gotten a bum rap for years and really it is the misuse of it as a drying agent to accelerate harvest time that is the real problem. Food companies need to put their feet down and only buy agricultural products from producers who do no use glyphosate in this way. And consumers must hold their feet to the...
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Is this a positive biopsy?!
trents replied to ABJ08's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
ABJ08, are you sure you typed that "IGg A was 265 ref mg/L 87/352" correctly? "IGg A" is not a familiar abbreviation, though the magnitude of the numbers makes it look like it refers to total IGA. A total IGA test is often run in conjunction with the TTG-IGA because if total IGA is low it will skew the TTG-IGA down toward the negative range. Question... -
About 10g of gluten is found 4-6 slices of wheat bread, just to give you an idea of what that looks like in real food servings. That should be followed for several weeks leading up to either the antibody testing or the endoscopy/biopsy.
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Celiac Disease and Gilbert's Syndrome
trents replied to LovintheGFlife's topic in Related Issues & Disorders
Welcome to the forum, @LovintheGFlife! 1. Are you consistent with eating gluten free? 2. Since being diagnosed with celiac disease, have you had any follow-up testing (blood antibody or biopsy) to check for the status in healing of the small bowel villous lining? 3. Are you still consuming dairy products? 4. What meds are you taking? ... -
He could have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but for which there is not yet any diagnostic testing available. It does not do damage to the small bowel lining as does celiac disease so it does not produce antibodies that can be detected by a blood test or and, of course, a biopsy of the small...
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What about prunes?
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Have you tried giving yourself and enema? You can purchase a home enema kit at any drug store. That is an immediate solution but not a long term one if this is a chronic problem.
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But there are other questions. How does gut dysbiosis correlate with the presence or absence of HLDQ2 and HLDQ8 genes? Are those with the so-called celiac genes more prone to develop gut dysbiosis? Are the zonulin levels of those with the celiac genes impacted to a greater degree by gut dysbiosis than those without the celiac genes? I'm not sure Fasano has...
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But one big variable in all of this is I think that no one knows how to objectively define what a healthy gut biome is. So, if you can't define what it is, you don't have an objective target for restoration. And even if zonulin levels aren't the genesis of the problem, it apparently is what is immediately responsible for the leaky gut. So, figuring out how...
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Also, I'm pretty sure zonulin has been identified by researchers as the enzymatic protein that regulates epithelial matrix opening size in the villous lining. The challenge is understanding how to regulate zonulin levels. If someone gets that figured out it would likely be a breakthrough for the celiac community.
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This strikes me a being a likely explanation or a big part of the puzzle at least. To look at it from another angle, the dysfunction of our immune system with regard to misidentifying food proteins as threats starts with gluten and can expand over time to include the proteins in other common foods. In other words, this slice of the immune system function...
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Welcome to the forum, @ShariW! I think the chances of canned tomatoes containing gluten, even if they are not produced in a dedicated gluten-free facility, would be very remote. Just the physical nature of tomatoes compared to grain products makes it hard to imagine they would be processed with the same equipment.
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But that raises the question, what causes the gut dysbiosis? Why do some people under the same relative living conditions (similar diets, similar antibiotic treatments) develop dysbiosis and others do not? Is there a genetic component to that? We already know there is a strong genetic component to celiac disease. Does the gut dysbiosis altar the genes or...
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Welcome to the forum, @SarahWarner! We cannot tell much from the numbers you supplied unless you also supply the reference ranges for negative vs. positive. Different labs concoct the tests differently and used different reference ranges. What we can say from what you have given us is that her total IGA is low which can cause a false negative in the...
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"She tried her best to stick to gluten free, however it isn’t stuck to religiously." This is the problem. What factors are preventing your OT from being consistent?
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Welcome to the forum, @Royalred! Forgive my ignorance, but what is an OT? Occupational Therapist? And what does iAG stand for? This is medical code terminology we are not accustomed to seeing on this forum? Is this the same as TTG-IGA? And the units of measurement "iu/ml" is unfamiliar to me as well. International Units per milliliter? At...
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Jessica, gluten free flour products are not required to be fortified with vitamins as are their wheat counterparts. So, when you eliminate wheat products from your diet, you automatically are likely reducing vitamin input into your diet. And if you have been living with undiagnosed celiac disease for some years you are likely to be already experiencing vitamin...
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Acid Reflux/GERD is very common in the celiac population. Chris, you should get checked out for other gut maladies that are often found in the celiac population such as an H. Pylori infection or SIBO (Small Intestine Bacterial Overgrowth). You probably need an upper GI scoping to check for a hiatal hernia as well or an ulcer.
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Trying to read my lab results
trents replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Caught in the early stages or patchy damage is more likely in your case. At any rate, since your testing is complete it is now time for you to begin the gluten free diet: https://www.celiac.com/celiac-disease/the-gluten-free-diet-101-a-beginners-guide-to-going-gluten-free-r1640/ -
Trying to read my lab results
trents replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your understanding is correct. It actually states that the findings "may be consistent with early or partially treated celiac sprue" and that "microscopic review supports the diagnosis" (from the bloodwork, that is). Partially treated celiac sprue would refer to someone with celiac disease who had already embarked on a gluten free diet and had experienced... -
Antacid over the counter meds like Gaviscon and Tums don't keep the stomach acid from enter the esophagus and throat but they do lower the acid level (so that it isn't as irritating). And that's okay to do that on a limited basis but not constantly as lowering acid levels would also inhibit digestion of food.
