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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    If they have been Certified Gluten Free that means they have been tested such that any cross contamination that might occur in the production environment has proven to be less than the 20ppm of gluten threshold needed to qualify for the CFG label. However, 20ppm is still enough to trigger reactions in some celiacs who are especially sensitive to gluten. It...
  2. trents
    https://www.imaware.health/at-home-blood-test/celiac-disease-screening
  3. trents
    Welcome to the forum, Ellis! Sounds like you are on the right track now. You have other health issues in addition to probably celiac disease so it will take awhile to get things balanced out, meds tweaked, etc. Glad you are already feeling so much better. I applaud you for taking the bull by the horns and appropriately asserting yourself with your GP...
  4. trents
    Here's some specifics: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
  5. trents
    The fact that there isn't any history in the family of celiac disease doesn't mean that there wasn't any. It just means that no one was diagnosed with it. Many celiacs are largely asymptomatic for many years. We call that "silent celiac disease." You have many symptoms that directly or indirectly point to celiac disease. I would certainly request that from...
  6. trents
    Let me reinforce something I stated in my earlier post. There are several gluten-related medical disorders. There can be an allergy to gluten. There can be a sensitivity to gluten. There can be an intolerance to gluten which causes diarrhea such as you see when people have lactose intolerance to milk sugar. These are all distinct medical conditions but none...
  7. trents
    Welcome to the forum, Dandysam. First, you use the term "gluten allergy." People can have an allergy to gluten but I suspect you are referring to celiac disease which is not an allergy but an autoimmune disorder. Your hubby's stomach pain, anemia and fatigue can be indicators of celiac disease. Celiac Disease ("celiac disease") cannot be diagnosed with...
  8. trents
    What makes you think you are still dealing with leaky gut/permeability issues?
  9. trents
    Welcome to he forum, baby.alpaca! I'm a little confused by your post. Doctors don't use a colonoscopy to diagnose celiac disease. They use an "endoscopy." A colonoscopy examines the lower intestinal track below the area that is directly affected by celiac disease. Celiac disease directly affects the small bowel, the area just below the stomach. It damages...
  10. trents
    Melissa, may I presume to answer the question you have directed at Scott? I think the confusion is a result of misunderstanding what the term "gluten free" means in the food industry. It does not refer to an absolute "0" amount of gluten. The FDA (USA agency) uses the term to refer to food items that contain less than 20 parts per million (ppm) of gluten...
  11. trents
    Welcome to the forum, Bunnehlvr! You've come to the right place. Many come here not having been officially diagnosed with celiac disease and with stories not unlike your own. Let us know how we can help and encourage you. Don't be afraid to ask specific questions. Until such time as you can get testing done and an official diagnosis you should assume...
  12. trents
    eah4me, thanks for this post. It really corroborates what a number of us have been saying. That is, damage to the SB mucosa can be spotty rather than global. And if the doc doing the biopsy is inexperienced and doesn't realize this, he or she might not sample enough nooks and crannies to catch the damage.
  13. trents
    Historically, it hasn't been routine but because the diagnosed incidence of celiac disease continues to rise and be much higher than was believed even 15-20 years ago when I was diagnosed it may be something that is becoming routine, especially if there are other symptoms that are often found in conjunction with celiac disease, like GERD and other food intolerances...
  14. trents
    Yes, the buckwheat is more expensive than oats for sure. I get this: https://www.amazon.com/Organic-Hulled-Buckwheat-Groats-Anthonys/dp/B00QKXVAN2/ref=sxts_sxwds-bia-wc-rsf-lq2a2_0?cv_ct_cx=buckwheat&dchild=1&keywords=buckwheat&pd_rd_i=B00QKXVAN2&pd_rd_r=a9d54a83-8755-490d-b9df-ff9d8f63375f&pd_rd_w=MrgJi&pd_rd_wg=yb09e&pf_rd_p...
  15. trents
    About 10% of celiacs react to even gluten free oats like they do wheat, barley and rye. Eliminating oats is where I would go next if I were you. Have you tried buckwheat? It's not wheat at all but related to rhubarb. Delicious and more nutritious than oats. Takes about 10 minutes to cook. If you're interested, make sure you purchase buckwheat that is gluten...
  16. trents
    Wait a minute, GFinDC. By definition, celiac disease is an autoimmune condition that damages the small bowel mucosa: "Celiac disease is a serious autoimmune disease that occurs in genetically predisposed people where the ingestion of gluten leads to damage in the small intestine," from https://celiac.org/about-celiac-disease/what-is-celiac-disease/ So...
  17. trents
    Thanks for the response, GFinDC. Very informative. Do you know if those celiacs with DH or ataxia will necessarily not have gut damage? Is it either or or can it be both and?
  18. trents
    GFinDC, if anti-gliaden antibodies don't form from gluten sensitivity, whey would declining anti-gliadin antibodies indicate gluten sensitivity. Did you mean to type what you typed?
  19. trents
    Are you a vegan? If not, scramble and egg or two to go along with the cereal.
  20. trents
    Positive blood test with negative biopsy is not uncommon. It can happen if the damage to the small bowel mucosa is not yet global (i.e., it's spotty) and the doc doing the biopsy didn't do a thorough enough job to get samples from a number of areas. I also wonder if you are gluten sensitive but have not yet developed celiac disease. I'm not sure if gluten...
  21. trents
    Your testing may be invalidated by already having started a gluten free diet. I'm not advising you to start eating gluten again but you need to know it can invalidate the testing. Do you need the testing if you are feeling better on a gluten free diet?
  22. trents
    You need to be careful with iron supplementation. Too much iron in your system can be toxic to organs. If you are taking an iron supplement but not anemic then please have ferritin levels monitored regularly. Iron can also cause stomach upset and constipation, though the chelated forms protect against that somewhat.
  23. trents
    Not sure how your healthcare operates where you live but here in the USA it doesn't matter where the procedure is done it will still go into your medical record which is accessible to the patient online through the healthcare group you are a part of. The healthcare group provides the patient members with access to their records through a software portal....
  24. trents
    I should think you should have the results within two weeks. Can you check your own test and lab results via computer in your healthcare system?
  25. trents
    Well then, I would say the numbers were reasonably high, judging from the physician's comment.
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