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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Are you a vegan? If not, scramble and egg or two to go along with the cereal.
  2. trents
    Positive blood test with negative biopsy is not uncommon. It can happen if the damage to the small bowel mucosa is not yet global (i.e., it's spotty) and the doc doing the biopsy didn't do a thorough enough job to get samples from a number of areas. I also wonder if you are gluten sensitive but have not yet developed celiac disease. I'm not sure if gluten...
  3. trents
    Your testing may be invalidated by already having started a gluten free diet. I'm not advising you to start eating gluten again but you need to know it can invalidate the testing. Do you need the testing if you are feeling better on a gluten free diet?
  4. trents
    You need to be careful with iron supplementation. Too much iron in your system can be toxic to organs. If you are taking an iron supplement but not anemic then please have ferritin levels monitored regularly. Iron can also cause stomach upset and constipation, though the chelated forms protect against that somewhat.
  5. trents
    Not sure how your healthcare operates where you live but here in the USA it doesn't matter where the procedure is done it will still go into your medical record which is accessible to the patient online through the healthcare group you are a part of. The healthcare group provides the patient members with access to their records through a software portal....
  6. trents
    I should think you should have the results within two weeks. Can you check your own test and lab results via computer in your healthcare system?
  7. trents
    Well then, I would say the numbers were reasonably high, judging from the physician's comment.
  8. trents
    Do you have the reference numbers used by the lab so we can see what they call normal? Labs don't all use the same scale. Can't tell much without that. You don't have to eat a lot of gluten to prevent healing of the small bowel mucosa. The equivalent of a slice or two of bread should do it and help you feel better than eating gluten with every meal until...
  9. trents
    Do you use prepared foods, even those labeled gluten free? "Certified Gluten Free" should be safer and more consistently live up to the billing. Do you use foods whose allergen label says things like, "produced on equipment that also handles wheat . . .?" Could you be absorbing gluten externally through shampoos, lotions, etc.?
  10. trents
    The receptionist gave you a bum steer. Yes, significantly reducing your gluten intake for 2.5 months could have an impact on the endoscopy/biopsy results but that is not enough time to allow for complete healing of the villi, especially if you are still getting some gluten in your diet. It may not give unequivocal test results, however, leaving your...
  11. trents
    Four days? That long, huh? My friend, be patient. Realize that it can take months, even more than a year for your small bowel villi to heal. In the meantime, you need to focus on learning where gluten shows up in the food supply, how it is disguised by terminology and how cross contamination occurs in the food production and delivery industry. It's not...
  12. trents
    How long have you been eating gluten-free?
  13. trents
    Also, have you been checked for COVID? Loss of taste and smell is one of the symptoms.
  14. trents
    That is not my experience, at least of late. Almost 20 years ago when I was diagnosed with celiac disease I would have been more in agreement with you. But the food industry has made great strides in producing gluten-free offerings that taste very good. Some of them even taste better than their gluten counterparts. Is that true for every gluten-free alternative...
  15. trents
    Welcome to the forum, Meg! Wow, you are trying to cope with a number of stressful situations and no wonder you feel overwhelmed. I don't have any great advice for you except to double down on your efforts to make sure you are not getting small amounts of gluten from cross contamination and starchy fillers in meds and supplements. Research all those...
  16. trents
    I doubt that. There are many on this forum who avoid even gluten-free oats because they react to them.
  17. trents
    The key here is "my." Individual anecdotal experiences do not establish truth. Yes, there are many with celiac disease who lose weight or cannot put it on even when the want to. But there are many others who do not experience that.
  18. trents
    I think we have similar things in the USA. I would not think the pancreolan would affect the test results. I am not a doctor, however, so this is lay person opinion.
  19. trents
    That's just about the length of time it takes to get through the metabolic adjustment period. I wish he had stuck it out longer.
  20. trents
    It is more likely that the short period of gluten reduction will not have much impact on the endoscopy/biospy than the blood test, IMO. So I'm guessing that if you have celiac disease the blood tests may not give a strong positive but the biopsy will still show damaged villi.
  21. trents
    Because the carbs and the calories still get absorbed even if the vitamins and minerals aren't being absorbed well. There are plenty of people with active celiac disease who struggle with obesity.
  22. trents
    You may have another issue such as SIBO causing the acid reflux. Are you on any medication for the acid reflux? Have you made any dietary changes to address the reflux such as eliminating caffeine, tomatoes and citrus? Overeating and obesity can certainly contribute to acid reflux. Also, I would suggest elevating the head of your bed.
  23. trents
    Actually, many celiacs are overweight because they instinctively eat more to compensate for poor nutrient absorption. But other celiacs are under weight and have trouble gaining for the same reason. And this can be exacerbated by poor appetite. We are all different in this regard and celiac disease can exacerbate our genetic body weight and appetite tendencies...
  24. trents
    Do you have reaction to traces of dairy?
  25. trents
    Are you referring to cross contamination as opposed to purposely including dairy as an ingredient?
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