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trents

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Everything posted by trents

  1. trents
    Melissa, how can we be of help?
  2. trents
    "I've also done the celiac blood work (which came out negative). I have since (as of last summer) self-diagnosed myself with DH as I get the same blistery papules and when I avoid gluten it goes away. The relief is amazing!" Valerie, Celiac disease cannot manifest itself in either of two ways or both. DH is one of the two classic forms of celiac...
  3. trents
    It would matter only if it trickles down your face and makes it to your lips or your mouth, which by the way, is not unlikely.
  4. trents
    It can be difficult to truly eliminate gluten from one's diet. It involves much more than eliminating bread and pasta. Gluten is tucked into so many things you would not expect.
  5. trents
    The white areas might be scar tissue. Hemorrhoids are often caused by chronic constipation and straining at stool. You say that you have been gluten intolerant for a few years but you do not say if this is an official diagnosis or your own conclusion. Have you specifically been tested for celiac disease? Neither do you state you are making a serious...
  6. trents
    Welcome to the forum, Mira! Others have reported this problem. It could be a neurological effect related to celiac disease. But let me ask you, have you been evaluated for GERD (acid reflux)? GERD can damage the esophagus and it reflux is more common with celiacs than the general population. Sometimes GERD is "silent." That is the person is not aware...
  7. trents
    "I can deal with small trace gluten, of the sort where French Fries may be made in oil used to fry things with gluten, and I don't have to worry about things without gluten containing ingredients." Why do you say this? Because you don't get an upset tummy? Low levels of gluten exposure may not produce noticeable symptoms but can still keep small bowel...
  8. trents
    As this survey study points out, some of this information (data from the U.S.) is dated back to questionnaires from 2005 so keep that in mind. https://www.beyondceliac.org/research-news/healthcare-providers-lot-learn/?utm_campaign=Research Opt-In&utm_medium=email&_hsmi=144489863&_hsenc=p2ANqtz-8zsr7-s8KdWEzckx5vFRz-H8CSyU11cZRNdn6E7fAcEczL...
  9. trents
    Jenny, it sounds like some good education as to hidden sources of gluten and cross contamination issues would be helpful to you and your daughter. Recent studies show that most people who think they are eating gluten free are in fact only managing to eat a lower gluten diet. They have eliminated macro sources of gluten such as bread and pasta but are still...
  10. trents
    Bad doctor! Celiac disease and NCGS are both life-long medical issues baked into the genes that do not go away.
  11. trents
    Jenny, just make sure any vitamins or supplements your daughter is taking are themselves gluten free. Wheat starch is sometimes used as a filler in pills.
  12. trents
    NCGS (non celiac gluten sensitivity) would not likely cause vitamin and mineral deficiencies in and of itself unless you were pooping everything out before it has been assimilated. There is a 44% chance that if you have celiac disease your first degree relatives have it or will develop it at some point.
  13. trents
    Welcome to the forum, livycat! All of us in this community can relate to the social/emotional part of your experience to one degree or another. As to your physical symptoms, your are still very early in the healing stage. I would also suggest you look for other foods you may have become intolerant to over time. Chief among the candidates would be...
  14. trents
    Welcome to the forum, Valerie! Your inconsistency in avoiding gluten is preventing your healing. If you have celiac disease or non celiac gluten sensitivity the key is not cutting down on gluten but avoiding it altogether. At the least, in preparing gluten-containing foods to please the rest of your family you are getting small amounts of gluten ingested...
  15. trents
    Is she still consuming dairy? Many celiacs cannot tolerate the protein casein in dairy and other intolerances such as to soy, corn and eggs are also common. Celiac disease is all about the dysfunctional development of the immune system pathway that guards the gut.
  16. trents
    The biopsy is the gold standard of celiac disease diagnosis. Especially when the blood work is inconclusive. Yes, you are correct about my mistake with the TTG-IGA. My bad. I didn't look closely enough. It is also possible your daughter has non celiac gluten sensitivity which has most of the same symptoms as celiac disease but does not damage the small bowel...
  17. trents
    You mention weight loss after going gluten free but have the other symptoms also improved? You may have non-celiac gluten sensitivity.
  18. trents
    Before I forget, I hope your daughter has not been trying to eat gluten free since her blood tests were done. Doing so may have allowed healing of the small bowel villi and cloud the biopsy test results. The centerpiece of the blood antibody labs is the tTG-IGA. It is the most specific for celiac disease and is positive. The other antibody tests are...
  19. trents
    It is also possible that you have non-celiac gluten sensitivity which has many of the same symptoms as celiac but does not damage the villi of the small intestine, although a biopsy would be the only real way to distinguish the two. And the antidote is the same: total avoidance of gluten for life. Yep, your doctors totally botched that one and it is obvious...
  20. trents
    Here you go. This is just a screenshot of the product advertisement pictures from Amazon. It definitely does contain some derivatives of wheat and barely. If you have a question about something containing gluten, try "googling" it buy typing "Does ____________ contain gluten?" The product name would go in the blank. Googling has become a general term for...
  21. trents
    It is hard to accept that wheat, universally considered to be the staff of life, can be harmful to us. Everyone who has been diagnosed with celiac disease or non celiac gluten sensitivity has struggled with that. Believe me, you have a lot of company in that regard. And when your health issues have already forced you to eliminate a lot of non gluten containing...
  22. trents
    Noel, I believe I remember reading posts on this forum of others who reacted after eating Werther's products but I can't remember which ones. I think the original Werthers do contain gluten. My wife was giving them to me to wet the whistle in church when I got a coughing spell and then we read the ingredient label and realized they contained wheat.
  23. trents
    Appendicitis doesn't always hit suddenly and without warning. That is a common misconception. Many people have chronic appendicitis that comes and goes and eventually there is an acute crisis that can be life threatening if not addressed in time. Concerning dairy intolerance, it often is not in response to the lactose, which is the sugar component of...
  24. trents
    Many celiacs are intolerant of dairy. After significant healing of the small bowel lining has occurred then sometimes celiacs are able to resume dairy consumption without issue. It can take around two years for full healing of the bowel but significant improvement in symptoms often happens within weeks. Having said that, has anyone checked your brother...
  25. trents
    Welcome to the forum, EdmBkn! Three days is not long enough to tell anything. Is right sided abdominal pain the only symptom he was experiencing before his diagnosis? How much time elapsed between his diagnosis and his going gluten free? Are you sure he is truly eating gluten free? There are many temptations for a 13 year old celiac to cheat on the gluten...
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