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trents

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Everything posted by trents

  1. trents
    A lot of it is perception. Is the glass half empty or half full? Yes, many food things are now off the celiac's plate but many things remain. I think for a lot of people, the social toll they perceive is more of their own framing than that of their family and friends. They imagine themselves as the fifth wheel at social gatherings and their presence as introducing...
  2. trents
    Thanks for the update and clarification, Scott.
  3. trents
    Scott, I think this article needs some formatting attention in the picture area and there appears to be a typo in the last sentence.
  4. trents
    The key sentence in the article is, "Two days later, the company revealed finished product testing had not been performed on the recalled Cheerios, according to the suit." In other words, this "gluten free" Cheerio product or the raw oatmeal stock they used for it passed testing before it was processed and packaged but sometimes would not afterward....
  5. trents
    First, it needs to be asked, were you already trying to eat gluten free when you had the test done? If so, that can cause negative results. Second, the TTG_IGA is considered to be the best serum antibody test for celiac disease. It is the most specific but not the most sensitive. So, generally, when that one is positive, even a weak positive, it means...
  6. trents
    Great and informative article, Scott. Thanks.
  7. trents
    Yes, yes. My bad. I knew better than that. 6-8 weeks of gluten challenge would apply to the serum antibody testing. Thanks for catching that, Scott.
  8. trents
    Other than barley and rye, the two other gluten containing grains that celiacs and people with NCGS must avoid, I am not aware of other grains, with the possible exception of oats for some celiacs, that "cause as much damage as gluten itself. Certainly, quinoa has always been considered a safe alternative to wheat, barley and rye for celiacs. Can you be more...
  9. trents
    You need to be daily eating an amount of gluten equivalent to two slices of wheat bread for 6-8 weeks before the endoscopy/biopsy to ensure a valid result.
  10. trents
    Natalie, welcome to the forum! What is the reference range for your tTG-IGA? You gave us your lab score but it's hard to evaluate the significance of the number unless we know what the normal range is? The reference range would help us know if it your score represents a strong positive. And different labs use different reference ranges. Did your doctor...
  11. trents
    So you just wanted to vent. That's okay, too.
  12. trents
    Melissa, how can we be of help?
  13. trents
    "I've also done the celiac blood work (which came out negative). I have since (as of last summer) self-diagnosed myself with DH as I get the same blistery papules and when I avoid gluten it goes away. The relief is amazing!" Valerie, Celiac disease cannot manifest itself in either of two ways or both. DH is one of the two classic forms of celiac...
  14. trents
    It would matter only if it trickles down your face and makes it to your lips or your mouth, which by the way, is not unlikely.
  15. trents
    It can be difficult to truly eliminate gluten from one's diet. It involves much more than eliminating bread and pasta. Gluten is tucked into so many things you would not expect.
  16. trents
    The white areas might be scar tissue. Hemorrhoids are often caused by chronic constipation and straining at stool. You say that you have been gluten intolerant for a few years but you do not say if this is an official diagnosis or your own conclusion. Have you specifically been tested for celiac disease? Neither do you state you are making a serious...
  17. trents
    Welcome to the forum, Mira! Others have reported this problem. It could be a neurological effect related to celiac disease. But let me ask you, have you been evaluated for GERD (acid reflux)? GERD can damage the esophagus and it reflux is more common with celiacs than the general population. Sometimes GERD is "silent." That is the person is not aware...
  18. trents
    "I can deal with small trace gluten, of the sort where French Fries may be made in oil used to fry things with gluten, and I don't have to worry about things without gluten containing ingredients." Why do you say this? Because you don't get an upset tummy? Low levels of gluten exposure may not produce noticeable symptoms but can still keep small bowel...
  19. trents
    As this survey study points out, some of this information (data from the U.S.) is dated back to questionnaires from 2005 so keep that in mind. https://www.beyondceliac.org/research-news/healthcare-providers-lot-learn/?utm_campaign=Research Opt-In&utm_medium=email&_hsmi=144489863&_hsenc=p2ANqtz-8zsr7-s8KdWEzckx5vFRz-H8CSyU11cZRNdn6E7fAcEczL...
  20. trents
    Jenny, it sounds like some good education as to hidden sources of gluten and cross contamination issues would be helpful to you and your daughter. Recent studies show that most people who think they are eating gluten free are in fact only managing to eat a lower gluten diet. They have eliminated macro sources of gluten such as bread and pasta but are still...
  21. trents
    Bad doctor! Celiac disease and NCGS are both life-long medical issues baked into the genes that do not go away.
  22. trents
    Jenny, just make sure any vitamins or supplements your daughter is taking are themselves gluten free. Wheat starch is sometimes used as a filler in pills.
  23. trents
    NCGS (non celiac gluten sensitivity) would not likely cause vitamin and mineral deficiencies in and of itself unless you were pooping everything out before it has been assimilated. There is a 44% chance that if you have celiac disease your first degree relatives have it or will develop it at some point.
  24. trents
    Welcome to the forum, livycat! All of us in this community can relate to the social/emotional part of your experience to one degree or another. As to your physical symptoms, your are still very early in the healing stage. I would also suggest you look for other foods you may have become intolerant to over time. Chief among the candidates would be...
  25. trents
    Welcome to the forum, Valerie! Your inconsistency in avoiding gluten is preventing your healing. If you have celiac disease or non celiac gluten sensitivity the key is not cutting down on gluten but avoiding it altogether. At the least, in preparing gluten-containing foods to please the rest of your family you are getting small amounts of gluten ingested...
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