Jump to content

trents

Moderators
 View Profile  See their activity

  • Posts

    8,522

  • Joined

  • Last visited

  • Days Won

    521

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    Your son with FPIES, has he been tested for celiac disease? One of the things to grasp about celiac disease is that it is not an allergy. It is an autoimmune disease. It is IGA mediated, not IGE mediated, just like FPIES. I'll take a wild stab at the food sticking in the esophagus issue. So here goes. One of he common health spinoffs of celiac disease...
  2. trents
    QLisa, welcome to the forum! I hope you had not already started trying to eat gluten free before the blood draw as that may invalidate the results. Reflux/GERD is common among those with celiac disease. The gold standard for diagnosing celiac disease is the endoscopy with biopsy of the small intestine lining. Celiac disease damages the lining...
  3. trents
    Itchy anus can be caused by many things. I have this sometimes but it's always associated with a little leakage of stool. One thing that can contribute to this is caffeine. Caffeine is thought to relax the sphincters in our digestive system and can cause both GERD and itchy butt. After I cut out coffee it got a lot better. Coffee and tea are also very acidic...
  4. trents
    Welcome to the forum, GFfireman! You mentioned you had some food intolerance testing done. Have you specifically been tested for celiac disease as opposed to gluten intolerance? They are not the same even though both involve problems with gluten. There are specific blood antibody testes that can be run to diagnose celiac disease vs. gluten intolerance...
  5. trents
    They do not naturally contain wheat, barley or rye so they should be gluten free. Are you concerned about cross contamination?
  6. trents
    He could also have NCGS (Non Celiac Gluten Sensitivity) for which there is currently no diagnostic test per se. It is diagnosed by symptomatically reacting to gluten consumption similarly to those with celiac disease when the celiac tests are negative. In large part, the symptoms are the same, the long term health risks are the same and the antidote is the...
  7. trents
    First, I want to be clear what you mean by saying your hubby is doing the "gluten challenge." We normally use that term to mean that someone who has been on a gluten free diet is temporarily going back on gluten in order before testing in order to ensure that the tests are not invalidated. People with upcoming celiac disease testing need to be eating regular...
  8. trents
    Are you serious? What flavor?
  9. trents
    The gluten free Oreos have been out for months but may not be carried by grocers in your area.
  10. trents
    Well you know, the other side of that question is "what is constipation." For some people, not having a good poop every day means they're constipated. Other people get along just fine without needing to have a BM every day. If you get less fiber in your diet it stands to reason that you aren't going to poop as much but is that necessarily bad? We've been...
  11. trents
    If it's got any gluten then I suppose they consider it bread.
  12. trents
    Earline, what do you do for fiber in your diet? Is constipation an issue?
  13. trents
    If you really want to fond out if you have celiac disease vs. gluten sensitivity, you need to have blood tests done such as described in this article: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ The most important of those is the TTG-IGA. Some doctors will only order that one blood test when checking for celiac disease. If...
  14. trents
    Specifically, what blood work did he do? What were the names of the tests done from the blood work? Do you have a record of what were involved in the bloodwork? If so, could you post it? If he was looking at your scalp it sounds like Dr. Osborne may have been a naturopathic physician. I asked this above but you did not answer, how can we help you?
  15. trents
    I'm not Catholic but I'm guessing the Church's rational for insisting on gluten being in the host comes from the fact that when Jesus said, "I am the bread of life," (John 6) and “Take and eat; this is My body" (Matthew 26) he was referring to and using real (wheat) bread. Catholics believe that when consumed, the bread mystically turns into the body of C...
  16. trents
    Are you creating your posts from a cell phone? They are hard to understand. What kind of tests did Dr. Osborne run? Celiac disease (celiac syndrome?) is not an allergy. It is an autoimmune disease. It engages the immune system through an entirely different pathway than an allergy would. I'm not sure how they are classifying gluten sensitivity and...
  17. trents
    Welcome to the forum, Andrea! We need some clarification here. When you say you were told when you were born you had celiac syndrome, I assume you mean that sometime after your were born you were told that you have had celiac syndrome from birth. Otherwise, I would find it remarkable that you understood and remembered what you were told at the time...
  18. trents
    This is a great resource.
  19. trents
    Oats do not contain gluten but have a protein called avenalin which some believe causes a similar reaction in the gut to gluten. About 10% of celiacs react to oats like they do gluten. However, it's not entirely clear whether this is because of cross contamination of the oats with gluten containing grains. There is not yet definitive research available to...
  20. trents
    Yes, the forum community is discovering that not all that claims to be gluten free is actually gluten free, at least not for the more sensitive segment of our community. And it might not be the pizza itself that is the issue but the definite possibility that the staff a Dominos used the same utensils when cooking, handling and cutting your order that they...
  21. trents
    I concur with what cristiana said and would add that to attain a truly gluten free lifestyle generally involves quite a learning curve. It took me about a year and a half to get a good handle on how and where gluten is tucked away in the food supply, in meds and supplements and even in grooming and hygiene products. It is common for those just beginning the...
  22. trents
    Great suggestion!
  23. trents
    There is concern that biopsy may not be as effective using the transnasal endoscopy method: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3930889/ I hope you don't mean you aren't starting gluten free eating before the biopsy.
  24. trents
    By the way, the TTG-IGA test is currently considered to be the best blood test currently available to detect celiac disease. Although it's best to run a "full" celiac panel, many physicians will only order the TTG-IGA. It is considered to be the most specific for celiac disease but not the most sensitive. So, when it is positive, even weakly positive, it...
  25. trents
    Buy some GliadinX and take some before eating out. And do the best you can in ordering non gluten items from the menu. GliadinX can neutralize small amounts of gluten such as you get through cross-contamination. But it is not a license to disregard the need to avoid gluten altogether. Since your TTG-IGA is positive, albeit weakly positive, I would bet...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.