trents
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Essentially all meds that address autoimmune diseases will be immunosuppressants. There's just no other way to do it at this time. -
Sam85, sorry. I made an assumption based on your user name that you were male and the dad. What I will say is that the celiacs in your home would be safer if you committed to eating gluten-free as well. Trying to keep gluten-free foods separate from foods that contain gluten, keeping cookware and utensils separate or at least thoroughly cleaned consistently...
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My 3yr old's 690 IgA Result
trents replied to Kifaya's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Did they include tTG in the testing? But I think you have your answer if she is feeling better. Now you need to educate yourself on how and where gluten is found in the food system. You will be shocked at where it shows up, like canned tomato soup (and most other canned soups), soy sauce, chips, vitamins and supplements. And then there is the issue of cross... -
Yes, there are those eatery chains like Red Robin and Chick Fil A that do have gluten-free menu items but whether or not they are foods that will appeal to young children is another issue. If your two children have celiac disease, have you and their mother been tested? There is a pretty high probability that first degree relatives will have celiac disease...
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So what I hear you saying is that you feel you are caught between the two horns of a dilemma. The medical community is refusing to explore other potential issues until you get your celiac disease under control and that is escaping you despite extraordinary efforts to eat gluten-free.
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Bob, my feeling is something else besides gluten is causing these bowel issues. Either some other food in your diet or another medical problem. I'm with what others have suggested and would start by eliminating dairy and see if there is any improvement.
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You're having 1-2 BMs per day 30-40 minutes apart but spending 4-5 hours in the bathroom? Do you mean occasionally or regularly? I'm just doing the math here.
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1-2 BMs per day is not abnormal, at least for people getting plenty of fiber as long as the volume each time is not excessive or, on the other hand, is of diarrhea consistency. Budesinide is usually given for Crohns or IBS and is an immune system suppressant. You say the medication hasn't helped? If I am following the chronology correctly, it sounds like...
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Your tTG has remained low and it is the most sensitive marker for celiac disease. But I'm confused. Your first testing was done in May of 2019 but you were not officially diagnosed until late July of 2020? Is this correct? When was the biopsy done? So you have been gluten-free for about four months, correct? Is frequent bowel movements the...
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Good advice, Kate, about the excessive amount of processed food products the OP is using. Your admonishment about using the term "refractory" when responding to a newbie post is well-taken but my concern was that after making a serious attempt to eat gluten-free for five months there should have been some improvement in symptoms and blood work. Correct...
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Because of damage to the small bowel villi and resultant "leaky gut syndrome," Celiacs often develop allergies/intolerances to non gluten foods. Allergies/intolerances to dairy and soy are very common but it can be almost anything, like corn, for instance. But since you are still producing celiac antibodies it would seem you are getting gluten from cross...
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There are many contributors to this forum that will tell you that many products labeled "gluten free" aren't gluten free enough to prevent them from having a reaction when consumed. Apparently, the FDA standard of 20ppm is not stringent enough for some. And I note that nothing on our list is "certified gluten free" as opposed to "gluten free." https...
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The vast majority of the things on your list would be naturally gluten-free and would not come in contact with gluten in production. If the chicken and steak are fresh and not breaded then cross them out too. I would be suspicious of any processed foods labeled "gluten free" that you may be using. Look for "Certified gluten-free" for any processed foods you...
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"I consulted a gastroenterologist 2 months after going gluten free, we did a test. He said I hadn't been gluten free long enough for the antibodies to disappear - but it came back negative for celiac. (I did IGA and TTG)." Yeah, I don't know if he was correct about that.
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Not necessarily so. I gained 10 lb. after diagnosis and going gluten-free. There are still lots of carby foods you can eat to replace the carbs from bread and noodles you used to eat. And many celiacs gain weight after going gluten-free because they now absorb nutrients better.
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That's a tuff one. Kids that age tend to be picky eaters and to put things like baked potatoes, steamed rice and steamed veggies in front of them won't be appealing. We typically advise even adult celiacs to avoid eating out if possible because studies show that's where gluten cross contamination happens most often. If an eatery had fresh fruit, that would...
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As you mentioned, for the reason of confirmation, it is good if you can get an official diagnosis. There is a psychological benefit to this as many people find it difficult not to cheat on their gluten-free diet until they do. It can also help convince family and friends but don't kid yourself, there will still be those who would remain unconvinced. Some...
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How old are the kids?
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Pain under the breastbone could be GERD. That is common with celiacs and you are in the right age group for those kind of problems to develop anyway. There is a tendency for people with gluten related disorders to blame all physical and medical problems on that but we are still subject to the same things that everyone else is.
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Some good questions. Historically, DH has been a classic marker for celiac disease but now we know that there is more than one gluten-related disease. There is also the thought that DH and other gluten-related health problems may be the precursor to full-blown celiac disease. So it is possible that in time you would test positive on an endoscopy if you continued...
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Earlier this year my wife made some gluten-free biscuits for me and some wheat biscuits for herself and put them in separate zip lock bags. She penned her name on her baggie and my name on mine. The biscuits themselves looked almost identical. Just before turning in for bed I got hungry and ate two or three of her biscuits by mistake before I happened to...
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Yes, that is totally normal. Works that way for me. I think that is about the time it takes for food to move from your stomach into your small bowel.
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All of them or just the one you had experience with in your celiac journey? That's a pretty broad swipe you made. They may be like doctors. Some doctors are up on celiac disease and some aren't. Some dieticians will have good knowledge on how to avoid gluten and some not. Some of them may have celiac disease themselves and have the personal experience and...
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Blood Test Results Help
trents replied to kbial's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
"The finding of tissue transglutaminase (tTG)-IgA antibodies is specific for celiac disease and possibly for dermatitis herpetiformis. For individuals with moderately to strongly positive results, a diagnosis of celiac disease is likely and the patient should undergo biopsy to confirm the diagnosis." https://www.mayocliniclabs.com/test-catalog/Overview/... -
Be aware that kissing someone who has recently consumed gluten can be a source of cross contamination. For very sensitive celiacs that could be an issue.
