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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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A little clarification here. All cereal grains contain gluten but each grain's gluten is different from the others'. The gluten in wheat, barley and rye is almost identical and that is why these three grains are lumped together as those that cause problems for celiacs. Oat gluten is more dissimilar than those other three but close enough in chemical structure...
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Since you live outside the USA it is possible some of your baking powder brands do have gluten. Check the labels of different brands and see what the starch component is made from. If they do not specify what kind of starch is used, contact the manufacturer for more specific information. Most of those manufacturers will ask for a UPC number when you call...
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In my own experience of the past year and a half, after being diagnosed with celiac disease about 18 years ago, I have found that I develop allergies/intolerances rather suddenly too foods I have been eating all my life without a problem. Two summers ago, I was eating avocados and chia seeds frequently as I was trying out the ketogenic diet and those two...
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pinchy pain under ribs and muskuloskeletal pain
trents replied to MADMOM's topic in Related Issues & Disorders
Nightshades tend to aggravate inflammatory conditions in some people. You mention the flax seed added to your oatmeal. Do you not usually do that? I'm not aware of any issues with flax seed as far as celiac disease per se. However, if you have diverticular disease it might be problematic as would other foods containing small seeds. -
to many if and buts
trents replied to whosoutthere's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Assuming you are accurately representing what was told you by the doctors then you were given a significant amount of misinformation. Not uncommon, as many doctors are still fairly uninformed about celiac disease. Most importantly: 1. It is not true that many diagnosed with Celiac don't take the gluten free diet too seriously and don't have a problem. That... -
Testing for/diagnosing celiac
trents replied to pokey449's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So if I understand the article's conclusion, it is saying use of PPis and NSAIDs/Aspirin in the test sample seemed to mitigate villi flattening. Am I understanding this correctly? If so, that is certainly contrary to other research evidence. -
Keep a lookout for other food sensitivities/allergies besides dairy since there can be others. Especially since you have been violating your immune system for so long by consuming gluten. The damage done to the small bowel lining creates "leaky gut" syndrome that allows larger than usual food protein fragments to cross into the blood stream. These can be...
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CMCM, you probably already know this but if you have a first degree relative with celiac disease there is about a 40% chance you will have it or will develop it.
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Kirkland Brand Gluten Free
trents replied to fortworthmom's topic in Gluten-Free Foods, Products, Shopping & Medications
I should think they would be safe. I can't imagine those frozen veggies being processed on the same equipment as gluten containing products. We use those costco frozen veggies and I have never had a problem with them from a celiac standpoint. -
Good article Scott. This stood out to me: "The results for Group 2 showed that, for the 1,423 patients who received diagnostic endoscopy for possible celiac disease, only 40% of clinicians met guidelines to take four biopsies. Following biopsy guidelines increased celiac diagnosis by nearly 5%, from 4.6% to 10.1%. Meanwhile, more than one out...
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Esmanee, It can all be overwhelming at first. We who are celiac "veterans" can all attest to that. There is a big learning curve and you will inevitably make mistakes. But you are on the right track. After a while, it is like you develop this sixth sense as to where gluten might be found in the food industry. And you are correct. Many celiacs do...
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Esmanee, welcome to the forum! First, it takes time for healing of the villi that line the small intestine. It can take over a year, even if you have been eating totally gluten-free. And from your own words, it sounds like you have been cutting back on gluten but not totally eliminating it. Every time you consume gluten, even a small amount or for some...
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How they are cooked does make a difference for me. A couple of scrambled gives me a gut ache. But, I can eat two poached eggs without any issue or eggs in baked good without a problem as near as I can tell. With the poached eggs I use one of those plastic microwave cookers which requires spritzing some water on the eggs before cooking. Takes about 1 minute...
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Lisa C., I don't think gluten is responsible for how high dough rises and how quick bread bakes. Gluten is what makes bread hold together. The particular kind of gluten in wheat makes it well suited for making bread because of that, as opposed to the kind of gluten found in other cereal grains. But over the centuries, the hybridization of wheat to produce...
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Taste is a very individual thing.
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Gluten Challenge Challenge
trents replied to Neko1216's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, Neko1216! You are in the same difficult spot that many are in whose physicians neglect to or don't know enough to tell them that going gluten-free before testing sabotages the tests. But do you really need then endoscopy/biopsy? Seems like you have all the evidence you need by the improvement in your health and sense of well... -
It's in everything
trents replied to Ilivewithittoo's topic in Parents, Friends and Loved Ones of Celiacs
Did old sheetrock contain a wheat-based glue? -
As a matter of fact, it's one of the classic symptoms of celiac disease. Just doesn't get as much press today as it used to. At least that is my impression. Something other than GI distress is actually very commonly experienced by many with celiac disease. It's a disease that has a wide range of manifestations. Some have no villi damage but the disease affects...
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Help with Test Results
trents replied to DaisyK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes. That is how it happens for most of us. You have to have the genetic potential for celiac disease (we know what the genes are). However, most people who have the gene potential never develop active Celiac disease. It takes both the gene potential and some kind of triggering stressful event (such as a viral infection) to switch the genes on. Active celiac... -
Food Sensitivity Tests. Valid or Not?
trents replied to pokey449's topic in Food Intolerance & Leaky Gut
I've had allergy testing done both by the skin prick method and the blood analysis method. There was significant disagreement between the results of one versus the other but there was also some agreement. From my own experience with this as well as what I have read, there are significant problems with allergy testing: 1. The antigens can be cross... -
How can I reverse my dairy/gluten sensitivity
trents replied to Randomname's topic in Food Intolerance & Leaky Gut
Are you asking advice on how to reverse these sensitivities to dairy and gluten? If so, I think you need to realize you will probably have them the rest of your life and they can't be reversed. Do you know what tests the doctor did who declared you don't have celiac disease? Many doctors are not well-versed on celiac disease and don't run the correct...