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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. Do you have gluten sensitivity or Celiac Disease? They aren't the same thing.
  2. High histamine levels can be caused by the body producing insufficient DAO. You can purchase DAO supplements but they aren't cheap. Another approach is to avoid foods that are high in histamines such as pickled and fermented products. I would suggest you research "histamine intolerance" to find out more. The term is really a misnomer because the problem is...
  3. Sorry, I mistyped. I meant to say if your were not eating gluten regularly before the endoscopies that would explain the negative results.
  4. That sounds more like an allergic reaction to gluten or something rather than a Celiac reaction to gluten. You could be allergic to wheat (or the gluten in it) and also have Celiac disease. Were you eating gluten free when you had the endoscopies? If so not, that would explain the negative endoscopies. I'm assuming when you say you tested positive 12 years...
  5. AlwaysLearning, can you link some information to substantiate your claim? What we do know is that statistically speaking, Celiacs are more likely to have other autoimmune conditions, some of which affect the large bowel such as Colitis. And if celiac disease is causing incomplete digestion of food, then I can see that IBS could be an indirect result.
  6. It could be something else in the Snickers bars besides gluten such as emulsifiers or high fructose corn syrup. Snickers make me feel weird when I eat them too but not like I'm glutened.
  7. I would add a B complex to your supplements.
  8. Grandpaboo, the real controversy is actually with regard to distilled liquors. The FDA says the distillation process removes gluten but there are many on this forum who say they get "glutened" when they use whiskey. So maybe there are very small protein fractions from gluten that pass through the distillation process and can cause a reaction, at least for...
  9. From the link you provided: "A fermented food is one that has undergone a process that typically involves the conversion of complex organic compounds, especially sugars and other carbohydrates, to simpler compounds such as lactic acid and ethyl alcohol. This process is referred to as fermentation. During fermentation, proteins are broken apart into smaller...
  10. What findings do you refer to? As far as I know, most beers are not gluten free since 1. Most beers are made from gluten containing grains and 2. Beer is not a distilled alcoholic beverage.
  11. What is in these tablets? Are they just an antihistamine or do they contain the allergens themselves as in desensitivity therapy?
  12. Too much magnesium supplementation can cause loose stools. That's how milk of magnesia works. But if you have been off the magnesium supplement for 9 days then it should be well out of your system. Something else is causing your issues. If you do decide to go back on magnesium supplementation, do some research on the various forms it comes in and which ones...
  13. I hear ya. All of us who have celiac disease struggle with that but over time you will adjust to this new reality and find ways to minimize the limitations it will impose on you. But because of your love for cooking and your culinary skills, maybe look at this as an opportunity to invent some truly delicious gluten-free recipes that will bring joy to...
  14. Many people with Celiac Disease are "silent" celiacs. That is, they don't experience significant GI symptoms. Couple that with the fact that in order for you to have a family history of Celiac Disease your relatives and ancestors would have to have been diagnosed with the condition. There could be celiacs in your family tree but they were silent celiacs and...
  15. Contact the company directly to check this out.
  16. Just pretend you know nothing about Celiac Disease and eat that way until your testing.
  17. You are overthinking the 2 slices of bread per day. That's just a rough guideline. The idea is to consume a significant amount amount of gluten each day rather than a trace amount.
  18. A person would need unhinged jaws like snake to be able to eat that sandwich!
  19. The article I was referencing must have it wrong then but I also quoted the article incorrectly. Having a bad day. Upon more research here is what I found: Here is a direct copy paste from the article: In addition to these organizations, there are also three programs which offer certification for gluten free foods: The Gluten Intolerance Group...
  20. This is helpful: https://www.schaer.com/en-us/a/certified-gluten-free I was in error. There are three certifying agencies. Two use the FDA recommendation of 20 ppm while gthe GFCO standard is 5 ppm, not 10. I think the GFCO has a distinctive logo bearing the letters GFCO but I'm not positive about that. Be careful with products that don't bear a...
  21. Certified gluten-free should be okay except for the most sensitive Celiacs. There are two gluten-free certifying bodies and one of them uses a stricter standard of 10ppm while the other uses the FDA guideline of 20ppm. If you don't have a problem with what you eat outside the hospital I would think that's no where the issue is.
  22. Your "organism"? Not sure what you are referring to with this word. Are you referring to your whole body or just your stomach (gut)? The definition of "organism" is an individual life form such as a plant, an animal or bacteria.
  23. Do both raw and processed honey make you guys ill? Honey can contain bio toxins, especially raw honey. https://www.cfs.gov.hk/english/whatsnew/whatsnew_fst/whatsnew_fst_The_Risks_of_Eating_Raw_Honey.html#:~:text=Honey may contain natural toxins&text=The symptoms of poisoning due,or even death may occur. Or, you may be intolerant to one of the sugars...
  24. Yes, but that analogy with a peanut allergy is breaks down in that celiac disease is not an allergy and it does not cause anaphylaxis, an immediate life-threatening condition. I'm glad it worked for you. We who have celiac disease already have a very hard time trying to get friends and family to understand it's not an allergy by an autoimmune disease and...
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