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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    Thyroid issues came to mind as well.
  2. trents
    An experienced gastroenterologist can spot damaged small intestine villi if the damage is dramatic enough and if the scope has high resolution. Celiac disease creates inflammation in the small bowel when gluten is ingested. This inflammation damages the villi that line the small bowel. We refer to this as "villi blunting." The villous lining is the organ...
  3. trents
    Plant based gluten free milk? Do you refer to milk substitutes? Last I knew, milk is produced by animals. I don't agree with going to a vegetarian diet. For one thing, it's hard to get all the nutrition you need from plants. B12 is an example. Iron is another. For another, many people find meat easier to digest than many vegetables. A well-rounded diet...
  4. trents
    Your celiac blood antibody tests will likely be negative since you eliminated gluten from your diet previous to the testing. But I think you have the proof you need to conclude you are a celiac. If you have DH you are a celiac. DH and gut problems are the two classic manifestations of celiac disease. Sone have both. Some have one or the other. Those who don...
  5. trents
    It is normal to put on some weight after going gluten free if you are a celiac. Your body is now more efficiently absorbing the nutrition in the food you eat. Adjustments in what you eat (as opposed to how much) and activity levels are key to losing weight. Also, you might want to look into the keto diet. It does work.
  6. trents
    Celiac symptoms? Have you actually been diagnosed with celiac disease?
  7. trents
    Your total IGA is on the low side, though technically and clinically not considered out of spec. This might be helpful in understanding the antibody tests that can be run to check for celiac disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ Deamidated gliadin peptide (DGP IgA and IgG): This test can be used to further...
  8. trents
    Your doctor may want to prescribe Fosamax for the osteoporosis. You should be aware that Fosamax can be hard on the gut and as someone with celiac disease you may want to take a hard look at that. Whatever meds your doc prescribes, check them out for containing wheat starch as a filler.
  9. trents
    May we ask why you had this bloodwork done? We're you having symptoms that would suggest to you that you might have a gluten-related medical condition?
  10. trents
    Somebody else recently posted the same thing about being able to eat bread without celiac issues while visiting another country (and I think it was Finland). This needs some investigation IMO. But also keep in mind that it may not hold true for all celiacs.
  11. trents
    Actually, there was an NIH study someone posted on the forum in the past year that did show at the very finest microscopic level that villi may never be quite what they were pre celiac. But, we still seek the most complete healing possible and that's all we can do. It certainly is better than finding little or no healing. How much, how fast can not only depend...
  12. trents
    Kissing someone who has recently eaten gluten containing food can cause a celiac reaction.
  13. trents
    A couple of years or more on the average, maybe, for full healing. A lot depends on how successful you are in avoiding gluten. Every time you get "glutened" it is a setback in healing. Substantial healing can happen sooner, however, and you should start feeling better within weeks of cutting out gluten.
  14. trents
    Could be coincidence.
  15. trents
    It seems to me that thiamine/B vitamin deficiency is the result of celiac disease, not the cause of it. And too much fiber in the diet can be detrimental to health as fiber absorbs and hold onto nutrients. It's like a lot of things. Balance is in order. Extremes are generally unhealthy.
  16. trents
    Gluten test? Do you mean a celiac disease serum antibody test?
  17. trents
    Kind of a irrelevant discussion in that these sensors and their capsules are no longer being manufactured. So this is relevant only for those who already own the sensors and have a good stockpile of capsules.
  18. trents
    The low end of normal for platelets is 150k. Physicians don't get excited about changes in blood parameters until they fall significantly out of normal range. As we age it is common for platelet count to drop due to clumping.
  19. trents
    Keep us posted. I wouldn't think that frozen green beans would be processed on the same equipment as gluten containing food stuffs but that's the only thing that could explain this unless it was the chips your reference, which sounds more likely. Are you certain there was no CC in the meal prep at home?
  20. trents
    Were these canned or frozen? Do all the family members who ate those beans have celiac disease? I'm thinking the illness was caused by something else besides the green beans and if it was the beans causing the illness that it was not due to gluten but some kind of bacterial contamination.
  21. trents
    Perhaps, I am wrong about NCGS producing essentially the same long term health risks as Celia Disease. I certainly was guilty of an over statement at least. Found this: "In addition to experiencing GI symptoms, patients with NCGS most often experience a complex of extra-intestinal symptoms, including a “foggy mind”, which is described as an inability to ...
  22. trents
    Hi, Sharon, and welcome to the forum. It would be more proper forum etiquette if you were to start your own thread and ask this question. We would be glad to help you but we don't want to derail the thread started by Makky.
  23. trents
    Oh, yes. Concerning low IGA. Low IGA will skew the results of the blood antibody tests and many times create false negatives. It also needs to be said that the same tests used for diagnosing celiac disease in adults are not as reliable when used with children. Young body systems just react in different ways to the same disease processes. https://www...
  24. trents
    Welcome to the forum, Gpcoop93. Unfortunately, we here this same story over an over about physicians failing to inform their patients that they should remain on normal amounts of gluten until testing is complete. There generally is much ignorance in the medical community about gluten-related maladies and many doctors still have a dismissive attitude...
  25. trents
    Well, if wheat didn't trigger a response then that rules out celiac disease or gluten sensitivity for the present. A recent study involving around 400 related people showed a 44% chance that the first degree relatives of those with celiac disease will have or will develop celiac disease. It takes both the genetic potential and some kind of stress trigger...
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