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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    From what I understand, Celiac Disease was first identified during WWII by a Dutch physician. There was a certain area of Holland that was cut off from food supplies by the German army and the population in the area eventually ran out of wheat flour and bread but there was other food available, dairy and some meat I imagine, but some folks cooked their tulip...
  2. trents
    Can you be more specific about the tests? I am not aware of any testing for Celiac Disease that would not be affected by going on a gluten-free diet for any length of time. "Consultant?" Is this person a physician? If you research this question I don't think you will find this consultant's advice to be true.
  3. trents
    If they aren't responsive, use another hospital next time. Do you have that option?
  4. trents
    Being on a gluten-free diet will likely invalidate any tests done for Celiac Disease.
  5. trents
    Contact the hospital administration and report that incident. The administration would want to know about it in order to take appropriate action to confront the staff member in question and educate them. If this staff member were being careless with your health needs then it is likely they would repeat it and endanger others. Here in the USA you get sent...
  6. trents
    High antibody scores with negative biopsy is certainly not a rare phenomenon. Several forum posters have shared the same experience. I would likely attribute that to the skill/experience (or lack of it) of the one doing the biopsy. It's not uncommon for the physician doing the biopsy to miss the affected area of the small bowel and take the samples instead...
  7. trents
    If eating gluten-free makes you feel better then I think you have your answer. Celiac Disease never goes away once it becomes expressed or active. It's in the genes like blue or brown eyes.
  8. trents
    Start eating foods that intentionally do not contain gluten but that are not labeled gluten free. Things that may say on the label, "produced on equipment that also processes wheat, tree nuts . . . ," etc. A good example would be Quaker Oats. Another example would be bacon and eggs cooked on a restaurant grill. Things that are likely to be cross contaminated...
  9. trents
    Scott, the endoscopy is not until Dec. 10. So maybe like 15 days.
  10. trents
    I have not head of throat and mouth ulcers in connection with Celiac Disease. Could this have been some sort of fungal condition like thrush or a vitamin/mineral deficiency disease? Vitamin and mineral deficiencies are common with Celiac Disease. What about yourself? Have you been tested for Celiac Disease apart from the genetic disposition?
  11. trents
    So I'm curious about your statement that you were glutened once but you are not sure if it was from trace/cross contamination or a macro amount. Why would you not know that if you reflect on what you had eaten that led up to the illness that accrued? I think it is very important under the circumstances to get a better handle on how sensitive you are. Please...
  12. trents
    I would encourage you to consider moving out of your mother's house and into your own living quarters as soon as possible so that you can control what you eat. I have a feeling that even if you do get a celiac diagnosis your mother will not fully cooperate. Now is the time to take action to guard your own health. If you can arrest the celiac disease at a...
  13. trents
    Did you make it clear to the food service staff at the hospital that you must have gluten free food?
  14. trents
    Strictly speaking, you should continue to eat gluten until after the endoscopy but I doubt there could be enough healing in the small bowel in to invalidate the results. But if you can stick it out, eat the gluten until then.
  15. trents
    Thanks. I'm not as up on the proliferation of digital communication shortcuts in the last couple of decades as I should be.
  16. trents
    I was on a PPI for 18 yr. and weaned myself off of them over about 5 months. Wasn't easy but I finally won that battle. GERD is very common in those with celiac disease and many get put on PPIs before they are diagnosed with celiac disease and never taken off them after celiac disease diagnosis when they may not need them anymore.
  17. trents
    I would also consider possible peptic ulcer or GERD. If the pain is on the right upper side I would think about gallbladder issues.
  18. trents
    Inkapathic, thank you for such a thorough and articulate explanation to help us understand your situation. Unless you are eating a significant amount of gluten daily (say, two slices of bread) for four to six weeks before testing the test results may be inconclusive or invalid. What you don't want to happen is to finally get testing scheduled and then...
  19. trents
    The good news is that for me I think it takes a significant exposure to gluten to make me sick like that. My sense is that trace amounts don't make me acutely ill. Last year my wife made some wheat biscuits for herself and some gluten-free biscuits for me and it turned out they looked exactly the same. I accidently ate a couple three of hers one night and...
  20. trents
    No I haven't. And the gut spasms are so painful I almost want to die. I don't feel like I could keep anything down even if there was something that would indeed help. It would have to be an injectable. I just lay on the floor in a ball of pain and get up to hang over the toilet and puke some more. It is obvious my body is pulling out all the stops to purge...
  21. trents
    Who are "ITA" people? I'm not familiar with the acronym.
  22. trents
    Do you think it's time for extensive workups like complete bloodwork (CBC + CMP) and maybe some imaging? Do you feel comfortable with being assertive with your physician?
  23. trents
    Apparently, about 10% of Celiac Disease suffers react to oat gluten like they do wheat/barley/rye gluten and I'm talking about oats that are not cross contaminated.
  24. trents
    Not true. They are two different medical conditions. IBS affects the large bowel. Celiac Disease affects the small bowel.
  25. trents
    Just as an aside, many people who don't have Celiac Disease but have chosen to eat gluten-free in support of a spouse or significant other amazingly find that they actually are healthier and feel better for having done so. bobsredmill.com is a good resource for gluten-free fours and food products. Always read labels, even for food items you would never...
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