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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Celiac disease is an autoimmune condition and would engage the immune system through an entirely different pathway than substances that would trigger anaphylaxis. But you could also be allergic to gluten coincidentally.
  2. trents
    I think you have your answer. And if you are still preparing wheat four containing foods for other family members you are likely getting exposed through inhalation of wheat four dust or cross contamination. Realize also that if you have active celiac disease there is a 44% chance that your first degree relatives have or will also develop active celiac disease...
  3. trents
    Celiac disease and gluten sensitivity/intolerance produce very variable symptoms from one individual to another. Many do not experience nausea/vomiting or diarrhea.
  4. trents
    I think that most whole grain (read, “high fiber”) food products on the shelves are dominated by wheat. I think that’s the implication. Most processed gluten-free alternatives are largely rice flour and tapioca based.
  5. trents
    https://www.frontiersin.org/articles/10.3389/fnut.2019.00162/full According to this fairly recent survey study, the waters are still muddy with regard to non CC oat protein causing inflammation. There are some in vivo studies that suggest it could if sufficient quantities are consumed but it is unlikely anyone would eat that much oatmeal. That's one thing...
  6. trents
    I would think so, albeit there are always those atypical cases where antibodies are normal but people still have villi blunting.
  7. trents
    Not specifically but it should throw the same antibodies as gluten and the same symptoms. So if eliminating oats makes improvements no those things there is the test.
  8. trents
    Have you been checked for SIBO?
  9. trents
    The TTG-IGA is the most specific but the least sensitive test for the antibodies produced by damage to the intestinal lining by celiac disease. It looks for everything like she has celiac disease. "her urea nitrogen/creatinine ratio was high" - This can be caused by dehydration or other problems that limit blood flow to the kidneys, even gastro intestinal...
  10. trents
    Have you investigated the possibility that you have other food intolerances/sensitivities that involve non gluten foods. Dairy. oats and soy are among the chief possibilities and many celiacs react the same way to the proteins in these foods as they do gluten.
  11. trents
    The genetic testing cannot demonstrate you have an active gluten disorder, only the potential for it. Most who have the genes don't develop active celiac disease. It takes some kind of triggering stress event to turn the genes on so as to produce the active disease.
  12. trents
    Welcome to the forum community, ChessFox! Have you officially been diagnosed with a gluten disorder? Complete healing of the small bowel can take two years or more. How long have you been eating gluten free? I would add also that there is a learning curve when it come to eating gluten free. Learning how gluten is hidden by terminology in prepared...
  13. trents
    There are many on this forum that will testify otherwise. There are many substances that enter the bloodstream transdermally.
  14. trents
    Are you still eating dairy and oats? Cow's milk protein has been proven to produce villi damage for some people. And for about 10% of celiacs. oat protien (gluten free oats) harms the gut like wheat, barley, rye. In addition, there are some meds that can cause villi damage, apart from containing gluten.
  15. trents
    Good find, GFinDC.
  16. trents
    It is common for celiacs to develop other food intolerances. It could be almost anything but chief among them seem to be dairy and oats. Oat protein produces the same reaction as gluten in about 10% of celiacs. Because of the "leaky gut" produced by damage to the small bowel lining, larger than normal protein fractions from the food we eat cross into the...
  17. trents
    Renee, do you live in an area where there might be a celiac support group?
  18. trents
    charliethecowboy, I reread your thread title and your post and want to apologize for seeming to be insensitive to your eating disorder. Somehow I read that factoid and it just didn't register. I know the eating disorder must complicate the whole problem. What stood out to me at first reading was the statement you made about being a picky eater. I hope you...
  19. trents
    Her being a marine probably predisposes her to see all of people's problems being solved by an act of the will and pulling yourself up by your bootstraps, excuse the pun. We have all been through/going through, even after years of having a celiac disease diagnosis, what you are going through. There are no easy solutions to the social challenges that...
  20. trents
    The number I have seen tossed around on this forum many times, and I have repeated it many times, is 44%. But maybe that is wrong. I used to hear 10% as well.
  21. trents
    I disagree. This may be true for you and for some others, maybe many others, but it's not a universal sentiment. Sure, when I smell fresh bread baking or pancakes on the griddle I long to eat them but that's not to say that all gluten free bread products are terrible. The availability of gluten free bread products that are a reasonable facsimile of their...
  22. trents
    Feeling cold all the time can be a symptom of anemia which is a common condition associated with celiac disease. Have you had your hemoglobin, hematocrit and ferritin levels checked?
  23. trents
    Oops! I misread your post Reneeblack. So you are the one with celiac disease and not your daughter and she is telling you to stop being celiac. When I read it the first time I understood it to say she was the one with celiac disease but in denial. Does your daughter live in the same house with you? Can you tell us more about how this plays out in your...
  24. trents
    She is an adult and you must respect her right to maker her own decisions, good or bad, and to live with the consequences. Hopefully, the consequences will drive her to face up to the reality of her celiac condition before too much harm is done to her body. What you don't want to do is to nag her about it and drive a wedge into the relationship. Our adult...
  25. trents
    Like cristiana said, I am not aware of gluten-related medical conditions causing blood clotting so that may be a separate issue. I have a genetic clotting disorder called Factor 5 Leiden. It causes my blood to clot too easily. I discovered it several years ago when I wound up in the ER with bilateral pulmonary emboli. Now I'm on blood thinners for life. Anyway...
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