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trents

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Everything posted by trents

  1. trents
    Understood. But realize the antidote is the same for NCGS as it is for celiac disease, i.e., total elimination of gluten from the diet. And it seems to me you already demonstrated that gluten is the issue one way or another. Practically speaking, there's not much difference.
  2. trents
    "My blood test which was done on 21st May (5 days after being back on gluten) came back negative," The test could be negative because you were only back on gluten for 5 days. For the blood test, the recommended "gluten challenge" is 6-8 weeks of consuming gluten daily in the amount equivalent to two slices of wheat bread. For the endoscopy/biopsy the...
  3. trents
    It is possible that you have NCGS (Non Celiac Gluten Sensitivity) which has most of the same symptoms as celiac disease and most of the same health risks but for which there is currently no diagnostic test. It is diagnosed based on symptoms and if symptoms improve when eating gluten free.
  4. trents
    Holly, welcome to the forum! Once you have been off gluten for a significant period of time and then go back on, say before testing, symptoms are typically much worse than they originally were. You may have NCGS (Non Celiac Gluten Sensitivity) which gives most of the same symptoms and most of the same health risks but for which there is currently...
  5. trents
    In the USA, if "starch," "modified food starch," ect. is listed in the ingredients, if it made from wheat, it must be so stated. Otherwise, it will be made from some other plant source, usually corn. You may be reacting to the casein (primary protein in dairy) or some added ingredient. Dairy products do not naturally contain gluten.
  6. trents
    Alkaline Phosphatase is an enzyme that helps break down proteins and is one measure of liver and gallbladder function as well as bone health.
  7. trents
    Zoey, welcome to the forum! Your story is heartbreaking but not an uncommon one unfortunately. Have you looked into celiac support groups in your area?
  8. trents
    Pam, The best way to protect yourself from accidental gluten exposure and cross contamination in the home is for the rest of your family to commit to gluten free eating, at least when not dining out. The second best option would be to keep gluten free food items sequestered in a separate part of the kitchen or the house and make them off limits to others...
  9. trents
    Okay, I think I see where the misunderstanding is. By "you" were you were referring not to me but to yourself or anyone else as the original poster? You can edit a post or delete it's content entirely but there is a time window for doing so. I am not sure you can entirely delete the post altogether as opposed to leaving it blank. I'm not sure how that works...
  10. trents
    Sorry, I see a typo in my previous post. I meant to type, I'm "just" a moderator and I don't have the ability to delete posts or blogs. That requires full administrator privileges. You need to send a personal message to Scott Adams who is the forum administrator in order to get that done. Scroll to the top of the page and look in the upper right corner. There...
  11. trents
    Send Scott Adams this request using the built-in personal messaging tool ("PM" we call it). I'm must a moderator and to delete things requires full administrator privileges.
  12. trents
    Welcome to the forum, Krisit! I'm not sure what you are looking for in your question. Can you express it in a more focused way? In general, you need to avoid all foods that contain any amount of wheat, barley and rye. Those are the three gluten containing grains. But maybe your are asking for more specific advice about which pre packaged, processed...
  13. trents
    No problem, Jackie. It's just that starting your own thread would avoid the appearance of having hijacked the thread started by the original poster. I hope you will start your own thread. Dairy intolerance is very common among celiacs because of the damage to the small bowel lining.
  14. trents
    My bad. I see what confused me. You quoted the OP who was describing their daughter's symptoms. Anyway, did you notice the poster you quoted said her daughter's symptoms happened whenever she ate something containing gluten, not dairy? Gluten is a protein found in what, barley and rye. Lactose is the sugar in milk. Lactose intolerance has to do with...
  15. trents
    Posterboy, you said: "Which would make Celiac disease an Epigenetic disease....instead....and that "Breaks the Model"...." Instead of what? An autoimmune disease?
  16. trents
    Jackie Garrett, Exactly what symptoms does your daughter get when she consumes dairy? Your only post in this thread seems to be in reply to someone else's post who is describing her daughter's symptoms, not your daughter's. So I'm confused.
  17. trents
    If your daughter has celiac disease there is a 44% chance that her first degree relatives have or will develop it. Many celiacs have the "slilent" form with few or no obvious symptoms.
  18. trents
    I would suspect the culprit is not lactose but the protein "casein" in dairy.
  19. trents
    Or could it be the other way around? Could celiac disease be the underlying cause of dairy intolerance? By the way, Jackie, are you sure your problem is lactose intolerance and not casein intolerance. Many people mistakenly think they are lactose (the sugar in milk) when they are really casein (one of the proteins in milk) intolerant. Also, did you mean...
  20. trents
    It is not atypical for non celiac gluten sensitivity to manifest itself so dramatically. The symptoms are essentially the same as with celiac disease and so are many of the long term health risks. Yes, it is possible for the testing to have been done too soon after the onset of celiac disease in order to give valid results. The guidelines are being on...
  21. trents
    Thanks for the update, Alice. Good news! But you won't be able to represent your community as dairy queen this year.
  22. trents
    It is true that just having the celiac genes does not mean you have or will develop celiac disease. It just speaks to potential. Most people who have the genes never develop celiac disease. It takes both the genes and some triggering event such as a viral infection to move from the latent potential for celiac disease to the active expression of it.
  23. trents
    I do not know of "food sensitivity tests." It's pretty much trial and error - experience. It would likely help if you kept a food diary to be able to connect your symptoms with what you have recently eaten, recently being up to 24 hr. The best way to approach something like this is to establish a baseline where you only consume food that you are positive...
  24. trents
    Someone participating on the forum has corrected what I said about meat glue being biochemically similar to gluten. I guess what I said is technically incorrect but meat glue is very similar to the antibody involved in celiac inflammatory response and causes a similar reaction to gluten: ""meat glue" is MICROBIAL TISSUE TRANSGLUTAMINASE---an enzyme...
  25. trents
    Welcome, leni kate. What do you mean by whole foods? Do you mean no processed food as in mixes and things with ingredient lists containing many chemical names? Only fresh meat, fruit and vegetables? There are apps available that can help with eating gluten free. They scan barcodes. https://www.verywellfit.com/gluten-free-iphone-apps-to-help-you...
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