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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    I think living in a metropolitan area would make being a celiac somewhat easier since there would be more of us and it affords things like celiac support groups and large chain eateries that may have gluten free menu sections. Potlucks make it a little easier since everyone is bringing their own food anyway.
  2. trents
    How sad! Your own mom or dad said that? They should be ashamed and they should grow up. There are plenty of people around the world with not enough to eat and your parent complained because it wasn't the food they wanted or were used to? Shame on them!
  3. trents
    Our daughter does not have celiac or other auto immune conditions that we know of. I am the celiac in the family. Our daughter is Asian and adopted so she is not a first degree relative biologically.
  4. trents
    Wait! I'm confused. She already had the biopsy and the results confirm what the blood tests showed. Why do you say, "Let's hope the biopsy confirms"? Do you mean you are waiting for the physician consult following the biopsy to explain the results?
  5. trents
    Now the rest of you need to get checked. There is a 44% chance that other first degree relatives will have or will develop at some point, celiac disease.
  6. trents
    Absolutely! There are a few other diseases that can cause damage to the villi and also some medications but I would feel there is a 99% chance it is celiac disease. And her blood antibodies also pointed to celiac disease. Yet, you seem to have doubts.
  7. trents
    Erythema (from the Greek erythros, meaning red) is redness of the skin or mucous membranes, caused by hyperemia (increased blood flow) in superficial capillaries. It occurs with any skin injury, infection, or inflammation. In biology, antrum is a general term for a cavity or chamber. "Duodenal mucosal changes" - damage to the small bowel lining...
  8. trents
    SallG, welcome to the forum. Are you craving gluten or the carbs in bread?
  9. trents
    Dawn, welcome to the forum. I am not aware of any connection between celiac disease or gluten consumption and platelet function. Is your daughter's platelet count back up into normal range again after this event? Having said that, we are discovering new symptoms and new health issues related to celiac disease and gluten sensitivity all the time it seems...
  10. trents
    I'm surprised to hear this because I think I read the other day that Italy routinely screens elementary age school children for celiac disease now.
  11. trents
    Do you refer to processed gluten free, sugar free foods? I mean as opposed to natural whole foods like, say, a carrot.
  12. trents
    Welcome to the forum, Johan! Sorry, I can't help you with your question. My wife bakes gluten-free things for me but haven't tried it for myself except for a certain prepackaged cornbread mix that I occasionally bake myself. For breakfast, I'm mostly a hot cereal/bacon & eggs guy. I do know it can take time to find the right ingredients and the right...
  13. trents
    There is also NCGS (Non Celiac Gluten Sensitivity) that causes many of the same symptoms as celiac disease and some of the same long term health risks but does not cause villi damage. There is currently no diagnostic test for NCGS but can be assumed if eliminating gluten from the diet brings relief. By the way, your daughter needs to be eating gluten...
  14. trents
    Celiac disease damages the "villi" that line the small bowel. Depending on the extent of the damage and the resolution of the scope, experience of the doc doing the scoping, etc. this damage may not be visible to the naked eye. That's the purpose of the biopsy which is then sent to a lab for microscopic analysis. An experienced GI doc will take at least four...
  15. trents
    Yes, an "equivocal" TTG-IGA can certainly leave the door open for a celiac disease diagnosis. In fact, I would say it is more likely than not. In fact, not infrequently we have people with negative TTG-IGA values who wind up getting diagnosed as having celiac disease because their symptoms still point that direction and are later confirmed to have celiac...
  16. trents
    Yes. And not just to nuts. The development of food allergies/sensitivities of various kinds over time is a typical experience of the celiac. celiac disease results in a dysfunctional, hyper vigilant immune system.
  17. trents
    Mix your 2% milk with skim and slowly ween yourself off onto fat free milk and dairy. You can get used to anything. I remember switching over to nonfat milk years ago and it tasted like chalk water. But after drinking it for a few months, when I would drink whole milk it felt like I was drinking cream because skim had become the new normal. You can buy...
  18. trents
    Most welcome!
  19. trents
    Correct. But I would pursue testing for celiac disease first so you don't sabotage the test results by having gone on a gluten-free challenge.
  20. trents
    It is more common to be underweight with celiac disease but yes, some go the other way because their body tells them to eat more in order to try and make up for nutritional deficiencies. celiac disease causes poor absorption of nutrients. I'm wondering if you might have NCGS.
  21. trents
    Chicken, pork roast, lean beef, fish (not the oily, cold water ones like salmon), vegetables and fruit, rice and potatoes. Nothing with wheat, barely rye because of the celiac disease. Gluten is found on those three grains. Heavy creams and whole milk would be contraindicated if you are trying to avoid fatty food. How about skim milk? You might...
  22. trents
    Addy86, welcome to the forum. The first stage of celiac disease diagnosis is a blood test to for antibodies typically produced by celiac disease. The most important test is the Ttg-IGA but since it is very specific for celiac disease but not particularly sensitive, it is wise to have a more complete celiac panel blood test done as described here: https...
  23. trents
    I believe the Costco rotisserie chicken at our Costco in Tumwater, WA is labeled gluten free but I'll try to remember to check that next time we get one. It doesn't seem to cause me problems. I'm not a particularly sensitive celiac so minor amounts of gluten as you might get in cross contamination may not trigger a noticeable reaction in my case.
  24. trents
    "As I slowly started seeing the VAST amounts of food that I could have instead of the little things I couldn't have...the world opened back up for me." Well said, Enigmah! How true! It's an appropriate contextual twist on the old adage, "Is your glass half empty or half full?"
  25. trents
    Not a good long term solution. If you continue to skip meals like that to the tune of 90 lbs. per year your husband may be cooking for himself before much longer. Have you had a conversation with him about your need to eliminate wheat (and barley and rye) from your diet? Is he in denial about the reality of celiac disease as a medical condition? I realize...
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