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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Seronegative 5 year old?
trents replied to Karly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There is also the possibility of transdermal glutening from lotions and cosmetics. I'm not sure if this has been scientifically studied but a number of forum participants have reported such expeiences. -
Still no diagnosis, yet really weird labs
trents replied to NeverLikedRollercoasters's topic in Related Issues & Disorders
NCGS does not blunt the villi. That is how it is distinguished from celiac disease as many of the symptoms and long term health risks are the same. You have been on a gluten-free diet now for what, six months? It typically takes about two years for the gut to heal completely but if you have been eating gluten free for 6 months there may be enough healing... -
Which Alcoholic Seltzers are Gluten-Free?
trents commented on Scott Adams's article in Gluten-Free Foods & Beverages
Allergies? Do you mean to say you have been diagnosed with celiac disease or gluten sensitivity? I ask because many people do not realize that celiac disease is not an allergy. It is an autoimmune disease. To answer your question, gluten can be removed but if the product comes in contact with gluten during processing on equipment used to also process... -
The Role of Mast Cells in Celiac Disease
trents commented on Scott Adams's article in Latest Research
BeckyB821, I'm sure that greater medical community knowledge, awareness and better dx procedures are a major player that is driving up celiac dx rates but one has to wonder if other factors having to do with manipulation of grain genome structure and other lifestyle factors also are driving the phenomenon as well.- 8 comments
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Seronegative 5 year old?
trents replied to Karly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum Karly! To be seronegative and still have villous atrophy is a thing! We have occasional reports of that in adults by forum participants. The gold standard of diagnosing celiac disease is not sero-antibody testing but biopsy of the small intestine lining. We also know that CMP (cow's milk protein) can cause villi damage in some individuals... -
Need some help regarding rice
trents replied to bmdRsq21's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I would give the rice cakes a try and see if they give you problems. Can you handle nuts? They are high in calories. -
If it's DH, do I have celiac disease?
trents replied to Baby Blues's topic in Dermatitis Herpetiformis
Not a bad decision at all, really. One of the viable options. The only pitfall of not seeking a clinical dx of celiac disease is the temptation to rationalize and cheat. -
Welcome to the forum, the pineapple.co! It's pretty unusual for rice to give problems but people can be allergic/intolerant of anything that has a protein component. That said, have you looked into SIBO?
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There have been some studies that suggested sourdough bread is less "toxic" than other breads made from gluten containing flour. And there are some anecdotal accounts where people with celiac disease claim they can eat sourdough bread without repercussions, symptomatically speaking. But I don't think the scientific community or the celiac community is ready...
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Confusing blood results-4 yr old
trents replied to NewAdventures's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm not sure that high total IGA will skew a celiac antibody test but low total IGA will. -
I think taking calcium with will likely have a negative effect on iron absorption. https://pubmed.ncbi.nlm.nih.gov/21462112/#:~:text=Studies on human subjects have,salts or in dairy products. Calcium supplementation raises the PH in the gut. To improve iron absorption you want to take something acid along with it like Vitamin C, orange juice or tomato...
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Also, are you consuming oats and/or dairy? About 10% of celiacs react to oats like they do wheat/barley/rye. And it's not clear that this is due to cross contamination with gluten containing grains or whether the oat protein itself, which closely resembles gluten, is the culprit. And recent studies have shown that for some people, the protein casein in dairy...
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Possible Celiacs?
trents replied to cb1988's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Scott, in the article you site you make this statement, "These tests are very specific because certain antibodies only appear in those with gluten sensitivity, celiac disease and/or dermatitis herpetiformis." This seems to contradict the information you gave in a forum conversation a few days ago where you sated there currently is no test for gluten... -
Welcome to the forum, A. ! A., for the sake of clarification, have you been making a serious attempt to eat gluten free since diagnosis? You don't really say but your question at the beginning of your second paragraph implies that. Your anemia is borderline low but your very low ferritin levels are a concern. That tells me you are assimilating iron...
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Am i Celiac?
trents replied to Jbg123123's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Is the mucous you speak of with he upset stomach showing up in your stool or when you vomit. You say you don't vomit up food. That's a little confusing. But yes, most or all of the symptoms you describe could be caused by celiac disease, directly or indirectly. -
Newly Diagnosed | Have Questions
trents replied to BillH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Absolutely! Not all are. -
Short answer, "No." Long answer is it will depend on how much of the extract is used in the product and how sensitive a celiac the individual is who is consuming the product. It is likely that it will produce a celiac reaction in many because they are on the sensitive side. At the end of the day that is the issue. But the other question is concerning the...
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Possible Celiacs?
trents replied to cb1988's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In your case, because of low IGA, I would recommend pursing an upper GI endoscopy with biopsy of the small bowel lining to check for damaged villi that is the hallmark of Celaic disease. The antibody blood tests for celiac disease are not accurate in people with low IGA. But whether we are talking about the blood antibody test or the endoscopy, you must be... -
Newly Diagnosed | Have Questions
trents replied to BillH's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum, BillH! Are you sharing the kitchen with others who are not trying to eat gluten free? I see no need to ditch existing pots and pans and utensils, as long as you scrub them thoroughly after they were last used for cooking gluten containing foods. Concerning vitamins, I would advise an adult Centrum or equivalent plus a... -
Shortness Of Breath (the "sighs")?
trents replied to soulcurrent's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Okay. But keep in mind that if you have celiac disease or even gluten sensitivity, you may not get the answer from our experiment unless you are totally gluten free. It is often an "all in" or not at all in if you know what I mean. You may or may not see much difference in symptoms just by cutting back on gluten. -
Shortness Of Breath (the "sighs")?
trents replied to soulcurrent's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, Krags! A "relatively free gluten-free diet"? Do you have an official diagnosis of a gluten-related disorder or are you just experimenting with eating gluten free?