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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Vit B-12 and other serum levels
trents replied to ShelleyWeiser's topic in Related Issues & Disorders
Welcome to the forum, @ShelleyWeiser! If you had pernicious anemia, you would not have elevated B12 serum levels. By definition, pernicious anemia is caused by an inability to absorb B12. Are you still consuming dairy products and oats? Do you use NSAIDs regularly? Are you on blood pressure meds? -
Scott Adams' Story of His Diagnosis of Celiac Disease
trents commented on Scott Adams's article in Diagnosis, Testing & Treatment
You still have plenty of time to begin a proper "gluten challenge". No, one piece of bread a day is not near enough. I know that is not what you want to hear. But what you don't want to have happen is a negative biopsy and wind up with a result that conflicts with your antibody testing from the bloodwork. If you want, you can go gluten free up to about one...- 171 comments
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Scott Adams' Story of His Diagnosis of Celiac Disease
trents commented on Scott Adams's article in Diagnosis, Testing & Treatment
Ditto to what knitty kitty said about postponing the gluten free diet until after your endoscopy/biopsy is done. Very important!- 171 comments
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Scott Adams' Story of His Diagnosis of Celiac Disease
trents commented on Scott Adams's article in Diagnosis, Testing & Treatment
Welcome to the forum, @kerey knapp! This article might help you get started. Some of the precautions it mentions to avoid cross contamination in shared kitchens and avoiding gluten in topical personal hygiene products might be unnecessary depending on how sensitive to gluten you are but the basics will apply to everyone. The biggest challenge and greatest...- 171 comments
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Thanks for posting all the info. As it turns out, your doctor did order a full celiac panel and you are not IGA deficient. Immunoglobgulin A Result: 105 shows that to be the case. So, as long as you were consuming normal amounts of gluten when this blood draw was taken we can trust the test results to be accurate. The biopsy is the gold standard of celiac...
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There is such a thing as a Celiac Service Dog? How do you get these and what does it take to qualify for one? Can you share your story with us. I imagine you must have severe reactions to gluten. This might be a better option than a Nima gluten sensor!
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Welcome to the forum, @ShaynaL530! The first thing that needs to be said is that allergy testing cannot be used to diagnose celiac disease because it is not an allergy to gluten. It is an autoimmune disorder that is triggered by gluten. Entirely different immunes system pathway. The DQ2 gene is one of the two primary genes associated with celiac...
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Confusing test results
trents replied to maggiemaay's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Stay on liberal amounts of gluten until all testing for celiac disease is complete or the testing will be invalid. -
Gluten detox, what to expect!
trents replied to Kazbo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, @Kazbo! Unfortunately, your original testing, with only the TTG-IGA antibody test being ordered, was less than thorough and I certainly would not rule out celiac disease (aka, "gluten intolerance") just yet. I would like to see you get a more complete celiac panel done with these tests ordered: Total IGA TTG-IGA DGP... -
Does anyone get weird symptoms like random anxiety and yawning ?
trents replied to Baz's topic in Related Issues & Disorders
Yes, don't start the gluten free diet until all testing for celiac disease is complete. -
Make sure all your vitamins and supplements are gluten free. I would doubt that a biopsy for dermatitis herpetiformis would be valid if the rash was already gone. How would they know where to take the sample of the bumps are gone? First, I would find a dermatologist who knows how to do the biopsy correctly because not all do. Not all of them even know...
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Welcome to the forum, @Tjweston! First, I want to caution you about going gluten free before getting tested for celiac disease. If you decide you want to get tested for a formal diagnosis of celiac disease you would need to have been eating regular amounts of gluten (4-6 slices of bread daily or the wheat equivalent) for several weeks in order for the...
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I know you are not wanting to here this @Vincent pemberton, but the updated guidelines for the gluten challenge are a 10g of gluten (the equivalent of 4-6 slices of bread) daily for at least two weeks leading up to the day of testing. How long altogether will you have been back on gluten by the time you are tested? And are you consuming enough gluten daily...
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Dermatitis Herpetiformis due to wheat straw?
trents replied to Steve Breland's topic in Dermatitis Herpetiformis
So, Steve, Sandy is suggesting that the wheat straw coming in contact with your skin that is the cause of your dermatitis herpetiformis outbreak but inhalation of any gluten residue contained in the straw. Even though the straw, itself, does not contain gluten, it is probably cross contaminated with a certain amount of the grain heads. -
cristiana, correction to something you posted earlier in this thread. Certified Gluten Free products contain less than 10ppm of gluten. Gluten Free products contain less than 20ppm of gluten, at least that is the standard here in the USA. But the CFGF is an international standard.
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Questions about CBC history
trents replied to GeneticMess's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The PPI increases the PH of the gut (makes it less acidic of an environment) and reduces the absorption of vitamins and minerals from your diet. -
Welcome to the forum, @MzMillz! Some clarification from you first, please. Your post's subject line says "Wheat Allergy". Yet, your actual post speaks of avoiding gluten as if you may have celiac disease. Celiac disease is not an allergy. It is an autoimmune disorder. Have you been officially diagnosed with celiac disease?
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https://health.usnews.com/wellness/food/articles/glutathione-benefits "Taking glutathione supplements isn't an evidence-backed way to improve your health. While there's no question that glutathione produced by the body has a number of health benefits, the benefits of glutathione supplements are not established."
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Welcome to the forum, @McNeill! Gastritis, GERD is common in the celiac population. It was/is one of mine as well. Mine is complicated by a hiatal hernia such that my LES (Lower Esophageal Sphincter) doesn't seal well. Ann, you would so well to look into histamine intolerance/MCAS (Mast Cell Activation Syndrome) and a low histamine diet. The...
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In some countries, there is government subsidization of gluten free food products as well as follow-up care if there is an official diagnosis of celiac disease. It is also true that, psychologically, it seems to be necessary for some people to have an official diagnosis in order to not rationalize it away and keep falling off the wagon. And most countries...
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Questions about CBC history
trents replied to GeneticMess's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You need to be on some high potency vitamin and mineral supplements. I'm talking about more than an adult multivitamin. Sublingual B12, B-complex, 5-10,000 IU of D3, Magnesium glycinate or magnesium citrate, and zinc. Make sure all are gluten free. What does your CBC say your hemoglobin score is? You might also need to be on an iron supplement. If you take...