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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    "Is it possible that being gluten-free for a year healed the villous blunting?" Certainly. If you have been on a gluten-free diet for any length of time it would be necessary to resume eating a significant amount of gluten for 4 to 6 weeks for either the blood tests or the endoscopy/biopsy to be valid. But at this point, further testing for Celiac activity...
  2. trents
    The discovery of your Celiac Disease after the gallbladder removal may have been coincidence or the surgery itself could have been the triggering event. You might also benefit from a lower fat diet since you don't have a gallbladder any longer. If a food label says something may contain gluten it could mean one of three things or all of them: 1...
  3. trents
    What do you mean when you say having our gallbladder removed caused your Celiac Disease? The gallbladder produces bile which aids in the digestion of fats. Celiac Disease is and autoimmune disease rooted in a genetic predisposition that often is latent until some triggering stress event activates it. The stress event can be anything from a viral infection...
  4. trents
    Creon is given for Exocrine Pancreatic Insufficiency (EPI) which can accrue from the damage done to the small bowel lining by Celiac Disease. EPI resulting from Celiac Disease usually goes away when people are truly practicing a gluten free diet. Creon does not directly address Celiac Disease. Currently, there are no medications available that work directly...
  5. trents
    Medication for your Celiac? I didn't know there was such a thing? What is it if you don't mind me asking?
  6. trents
    If you are still having problems with diarrhea then I would take a close look at cross contamination sources and other food intolerances. Cross contamination issues are of major importance when people are still eating out. For instance, you will get "glutened" if you eat things that in themselves contain no gluten but have been cooked on the same grills and...
  7. trents
    Have you been tested for and diagnosed with Celiac Disease? Simply cutting down on gluten consumption or being hit and miss with it really doesn't allow for healing in the gut. When you have Celiac Disease the mucosa of the small bowel is damaged when you consume gluten, even minor and trace amounts. Eating gluten-free doesn't have to be expensive...
  8. trents
    If you refer to diarrhea, it is a very common symptom with Celiac Disease but not universal. Many Celiacs do not have dramatic GI symptoms. I would think stress can exacerbate most health issues. If you are truly eating gluten-free then the big "D" should improve. If not improving, maybe there are other medical issues coming into play or, more likely, you...
  9. trents
    False positives on both the blood tests and endoscopy do happen and a number of our forum members can attest to that. Not every GI doc seems to do a good job of taking the biopsies in the right place to show the disease. The proof is in the pudding, so to speak. If you feel better after a few months on the gluten-free diet that is all you need.
  10. trents
    I expect that if you had been eating significant amounts of gluten on a daily basis leading up to the tests the results might have been more conclusive in the direction of Celiac disease. Personally, I feel you should do a gluten-free trial diet for several months and see if you don't feel better. Test confirmation, particularly the biopsy, can be helpful...
  11. trents
    You have classic symptoms of Celiac Disease but it could also be gluten intolerance. If the blood tests come back negative, pursue an endoscopy/biopsy of the small bowel lining which is the gold standard for diagnosing Celiac Disease. We do have some forum members who have had negative blood tests but positive endoscopy/biopsy. If all tests/endoscopy/biopsy...
  12. trents
    In our current healthcare climate, most doctors have a hard time thinking outside the box. Everything is metrics driven. Why did they give you folate for the high homosystine levels? Does folate counteract that?
  13. trents
    Send this to your GI doc: https://www.cghjournal.org/article/S1542-3565(03)00313-6/fulltext#:~:text=In addition%2C celiac disease may,on a gluten-free diet. This factoid is readily available on the internet and has been for some years. I'm surprised your GI doc was unaware of the connection.
  14. trents
    Elevated liver enzymes was what eventually led to my Celiac Disease diagnosis. About 20% of Celiacs experience this. You don't want to damage your liver. It's a very important organ.
  15. trents
    Seltzer is simply carbonated water. I don't think there would be any need to label it gluten free. I can't see how it would come in contact with wheat, barley or rye in the production or storage process. These days, labeling "gluten free" has unfortunately become a marketing tool. You see it on many food products now that are naturally gluten free.
  16. trents
    Do you have a date yet for the testing?
  17. trents
    Wow! Without a doubt the longest post I have seen on this forum. But lots of good information there. Thanks.
  18. trents
    The oily stools and diarrhea are classic celiac symptoms. It sounds like you may have other medical issues as well. It is common for celiacs to develop other autoimmune diseases.
  19. trents
    Eliminating carbs in your diet also eliminated the major sources of gluten. The next step would be eliminating those processed foods, meds and supplements that contain trace amounts of gluten and to give attention to cross contamination.
  20. trents
    Some of the symptoms you describe are classic Celiac Disease symptoms. The rash for instance. Could that be dermatitis herpetiformis? Celiac Disease is an autoimmune condition and when you have one autoimmune disease it is common to have others such as RA, Lupus, diabetes, Hashimoto, etc. Bone demineralization (osteoperosis, osteopenia) is also very...
  21. trents
    Your reply is confusing. Did you mean to say, "unfortunately there is no such group"?
  22. trents
    Ruqia, Celiac does not go away. It is in the genes of your children just like the color of their eyes. One suggestion I have is to try and find other children with Celiac Disease that your kids can be friends with. Is there a Celiac support group where you live? If so, that might be the place to start.
  23. trents
    Do you know of any brands that do have gluten? Sherbert is not something I would expect to find gluten in.
  24. trents
    I agree with GFinDC. The benefit of the endoscopy/biopsy for some people at the stage you are in is more psychological in the sense of confirmation to help them stay on the band wagon. Sounds like you don't need that.
  25. trents
    For sure, even small traces of gluten from cross contamination can make some celiac suffers very ill. But not all are that sensitive. There is tremendous variation. Having said that, absence of symptoms is not necessarily a reliable indicator of no cross contamination or no stress to the gut villi.
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