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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I get very sick if I eat unwashed quinoa and some other unprocessed grains. It might be from oxalates or saponins but like so many foods, some people are sensitive and most aren't bothered by it.
  2. trents
    It's not clear to me either. Can you access your medical chart and the tests they ran online? There are several IGA tests that should have been run. Unfortunately, most general practitioners and many gastro docs are not very well versed about Celiac disease diagnosis.
  3. trents
    CMCM, would antibodies produced by casein sensitivity be different than that produced by gluten sensitivity? Aren't the antibodies just the marker for inflammatory processes? I believe they may be specific for certain kinds of tissues or organs but I wasn't aware that the causes of that inflammation could be determined by the antibodies. Recently on the forum...
  4. trents
    Anti oat IGA? That's a new one for me. If you do decide to get your daughter a blood test for celiac disease she would need to have been eating gluten regularly for 6-8 weeks before it would be valid.
  5. trents
    Be careful when taking magnesium supplements. They can have a definite laxative effect with some forms of it being worse about that than others.
  6. trents
    Celiac disease certainly can cause stomach distension. celiac disease is an autoimmune disease. Gluten ingestion triggers the immune system to attack the small bowel which causes inflammation. Often celiac disease produces a lot of gas as well.
  7. trents
    Raquel, Welcome to the forum! Elevated liver enzymes is what led to my celiac diagnosis almost 20 years ago. I had mildly elevated liver enzymes for more than a dozen years that could not be explained. I did not use alcohol and was tested for every hepatitis variety known without any positives. Now unlike you, I had no symptoms from the hepatic...
  8. trents
    Yes, it would seem.
  9. trents
    A TTG of 19.5 strongly suggests celiac disease. The TTG test is the least sensitive blood antibody test for celiac disease but the most specific.
  10. trents
    Welcom KL07 to the forum! Yes, you have many symptoms of celiac disease. Before the blood antibody test you should be eating the equivalent of a slice of wheat bread daily for 6-8 weeks. Sounds like you have not had a "full" celiac blood panel done yet, just partial. The most targeted antibody test for celiac disease is the TTG test but it is the least...
  11. trents
    We celebrate with you, Rachel-17! Lactose free milk is only different from normal milk in that the lactose (the sugar component in milk) has been broken down into a simpler, easier to digest sugar. For people whose gut can't break down lactose normally this can allow them to drink milk again without unpleasant consequences.
  12. trents
    Colleen, what do you mean when you say that microscopic colitis is not recognized like Crohn's or ulcerative colitis? I worked in hospital for 20+ years and retired in 2012. Even then, microscopic colitis was considered a legitimate dx and I can remember a number of patient cases where that was given as a dx.
  13. trents
    Are you on any blood pressure meds of the "sartan" family? I hope you realize that for celiac disease testing, both the antibody test and the endoscopy/biopsy, one needs to be eating gluten regularly beforehand. For the antibody test to be valid, gluten needs to be consumed daily 6-8 weeks beforehand and for the endoscopy, at least 2 weeks beforehand...
  14. trents
    Villi blunting is the hallmark of celiac disease. However, there are certain medications such as NSAIDS and some BP meds that have also been implicated in villi blunting as well as some non gluten food proteins, particularly casein (dairy). As you have noted, some medical conditions of the bowel also mimic celiac blunting, including Crohn's and some parasitic...
  15. trents
    brianm1, the reason I'm suggesting the multi vit and B-complex is that vitamin and mineral deficiencies generally accompany celiac disease. Since celiac disease damages the villi of the small bowel. normal absorption of vitamins an minerals is disrupted.
  16. trents
    When I say that 10% of celiacs react to oats the same way as they do the gluten in wheat I am not referring to oats that have been cross contaminated with gluten containing grain. I am talking about gluten free oats. The protein in oats is very similar to the gluten protein in wheat, barley and rye. From the additional information you have provided it...
  17. trents
    Many people need official confirmation of celiac disease in order to stay on track with their gluten-free diet. It can be easy to rationalize it as due to something else or coincidence if there is improvement when going off gluten. An official diagnosis can also be relationally advantageous in a relational sense. Family, friends and physicians may be more...
  18. trents
    Welcome to the forum community, Brian! You seem to be practicing a healthier lifestyle in general. Cutting out wheat, dairy and sugar has eliminated a lot of calories from your diet most likely and you mention that you have lost weight. Some of your feeling better and health improvements could be attributed in part to the weight loss alone. But the improvement...
  19. trents
    karyn, Yes, it is overwhelming at first. We have all been there. We understand where you are at. I think it took me (and my wife) about a year before we had a good enough understanding of where gluten is likely to show up in the food supply so that there was consistency in avoiding gluten. It will take more than a few days. A good place to...
  20. trents
    Josh, what led up to your endocopy/biopsy and the follow-up blood work? Were you having classic celiac disease symptoms? Can you give us some more history here? There are some foods (e.g., the protein "casein" in milk) and some meds and some non gluten related bowel conditions (e.g. Crohn's Disease) that can mimic celiac disease but in all these the...
  21. trents
    Be aware that most canned soups use wheat starch as a thickener. If you are going to put your daughter on a gluten-free diet you really need to educate yourself as to how widely gluten is used in the processed food industry and disguised by terminology. It is found in products you would never guess would have wheat, barley or rye in them. Would you expect...
  22. trents
    There are some logical fallacies in this article. For instance, just because casein is used to make Elmer's glue does not necessarily mean that it has a negative impact on the gut. And just because our ancestors drank goats milk instead of cow's milk doesn't require us to conclude that they had discovered cows mile to have a negative effect on human health...
  23. trents
    Good words, CMCM.
  24. trents
    Karen, has any doctor actually tested your daughter for celiac disease? If not, I would push for that if I were you. The first stage, and often the only needed one is a simple blood draw to test for antibodies characteristic of celiac disease.
  25. trents
    I have had success with placing a phone call to the companies. The receptionist usually connects me to the right department to address my question. If the department representative I speak to can't answer my question then they will take my phone number and email address for the purpose of getting back to me after researching the question. That has worked...
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