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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    There are big question marks about the reliability of vitamin and mineral level testing since it measures serum levels rather than what is actually being taken up into the tissues. I think it's better to look for the symptoms of vitamin and mineral deficiency. Supplement when in question. Taking large doses of B vitamins cannot hurt you since they are water...
  2. trents
    Celiac disease is an autoimmune disorder whereby the ingestion of gluten causes the immune system to attack the lining of the small bowel. This lining is made up of billions of microscopic finger-like projections called "villi" that taken together is the organ system where the nutritional compounds in our food is absorbed. Celiac inflammation wears down or...
  3. trents
    Beketha, welcome to the forum! Oily stools, gas and weight loss are all classic symptoms of celiac disease but I suppose they can be caused by other medical conditions. If you hand around this forum for a while you will realize that there is a huge variation with regard to the symptoms experienced by the celiac community. In fact, many celiacs experience...
  4. trents
    Welcome to the forum, Claire! Please keep us posted about your celiac blood antibody test results. Realize that the doctor may also order an upper GI with biopsy to test for blunted villi in the small bowel so don't go off gluten just yet if you can hold out.
  5. trents
    kristd4d, has your daughter actually been tested for celiac disease/gluten sensitivity by your doctor or is this just his opinion? Also, gluten sensitivity and celiac disease are not food allergies. They are autoimmune conditions. Allergy testing would not detect them as they involve a completely different immune system pathway. Celiac disease and gluten...
  6. trents
    You may be intolerant of the protein ""casein" in dairy.
  7. trents
    Tim, supplement your calcium with vitamin D3 and magnesium. These are all important for bone health. Most of our bone density is laid down in our youth. I'm not sure leaching losses can be made up once we get in our middle years but the leaching can be arrested. How old are you now?
  8. trents
    But do RDA's take into account the inhibited nutrient absorption typically experienced by celiacs?
  9. trents
    Ollle, be aware that if you go for celiac disease or gluten sensitivity testing, the test results will not be valid if you are already on a gluten free diet. Recent studies have shown that most people who believe they are eating gluten free are really not. They are eating less gluten than before because they have eliminated obvious sources of gluten...
  10. trents
    How do you know for sure you aren't reacting to some other ingredient in the pizza?
  11. trents
    "My MS dr said I have very low creative levels" Did you mean to type "creatinine" or "creatine" instead of "creative"? Welcome to the forum, Olle! You state you suspect you may have celiac disease. Have you started eating gluten free? You don't say so I'm wondering why you are asking how long it should take for the gurgling and flatus to subside...
  12. trents
    6-8 weeks of significant (1-2 slices of wheat bread of the equivalent) daily consumption of gluten before the test is the guideline. It is possible that if you have only been eating gluten-free for two weeks or less that there may be enough antibodies left in your blood to give a positive test if you are a celiac or gluten sensitive. I wouldn't count...
  13. trents
    Calcium needs acid to be assimilated since it is a base. If you raise the gut PH with antacid meds or too many alkaline beverages you are shooting yourself in the foot when it comes to assimilating nutrition. The gut also needs a certain amount of acid irritation to stimulate the rebuilding of the lining. Too much irritation is bad but too little is also...
  14. trents
    1-2 weeks I think. Usually they have to be sent off instead of processed locally. Do you have access online to your tests and labs or will you also have to wait for a physician appointment to get the results?
  15. trents
    test
  16. trents
    Most of us who are celiacs deal with one or more spinoffs of the disease. My understanding is that leaky gut is inevitable with celiac disease, that it is part and parcel of the condition. Personally, I strongly suspect that I suffer from histamine intolerance as well. At least at times. Do you find that the DAO supplements help? Did you realize that...
  17. trents
    You're saying soda pop contains gluten?
  18. trents
    Being on a gluten free diet for more than a week or two will likely invalidate the testing. That probably explains your odd results and so many negatives. If you want to get accurate test results you will need to be eating gluten daily for 6-8 weeks leading up to the test, consuming an amount of gluten equivalent to two slices of wheat bread daily.
  19. trents
    That sounds more like an allergic reaction than a celiac episode. Different immune system pathways.
  20. trents
    "Endomysial IgA antibody testing has a lower sensitivity than tTG IgA (positive predictive value = 79%; 95% CI, 71.0 to 85.5) and equivalent specificity. It is included in several diagnostic algorithms but is not considered a first-line test in any patient population." https://www.aafp.org/afp/2017/0601/p726.html A very unusual test result when the Endomysial...
  21. trents
    How were you tested for celiac disease? Blood antibody tests? If so, which ones and can you post the values including reference range? Have you had an upper GI endoscopy with biopsy to check for villi blunting of the small bowel. Another possibility might be SIBO or H. Pylori.
  22. trents
    I think you left something out of your post. Namely, the values themselves. We need the reference values as well to be able to know what normal range is for each test. Different labs used different reference values.
  23. trents
    Yeah, I don't have any ideas for the persistent/reoccurring fever. The pattern of that is unusual. Seems like it might be tied to some kind of diurnal bio rhythm mechanism. Have you had his thyroid checked?
  24. trents
    Please do.
  25. trents
    Just a heads up, here. If you do decide to go for an upper GI endoscopy do not start your child on a gluten free diet ahead of time. It will likely invalidate the results. He needs to be eating regular amounts of gluten daily for at least two weeks before an endoscopy/biopsy. Also, to clarify something Scott said, there currently is no noninvasive test...
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