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trents

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Everything posted by trents

  1. trents
    Maybe about a year I think and there was not much healing at that point. Over the span of about 15 years post diagnosis I had three follow-up endoscopies. If my memory serves me correctly, the second follow-up endoscopy came at about three years post diagnosis and the third about three years ago or about 15 years post diagnosis. The last one showed I had...
  2. trents
    No. In fact, there are plenty of people who actually have negative bloodwork but confirmed as celiacs by biopsy. If your total IGA is low then the blood test may not be positive or show a weak positive. Also, many people make the mistake of trying to cut out gluten in their diet before testing and that can invalidate the tests, either the blood antibody tests...
  3. trents
    Elevated liver enzymes is what led me to a celiac diagnosis almost 20 years ago. I had mildly elevated liver enzymes for about 13 years before that and primary care docs tested me for various kinds of hepatitis and this and that but those tests were all negative. This was going on from late 1980's to early 2000's when very little was known about celiac disease...
  4. trents
    Yes. Your body is now absorbing more of the nutrition you take in.
  5. trents
    Sounds like an idea with promise. But the tool you speak of would need to be interactive such that users could add their own experience to the data base. And would there need to be some way of vetting their input? I would also worry about the door being open for someone to sue you if they experienced personal harm based on trusting the information in the...
  6. trents
    The forum PM tool is sort of like in house email that only the recipient sees.
  7. trents
    Malt would be made from either barley or wheat and both are gluten containing grains.
  8. trents
    Sarah, welcome to the forum! I strongly suspect you are correct in concluding your son has a problem with gluten, either celiac disease or gluten sensitivity. I would not wait for the appointment months away. I would pick up a home test kit for about $100 USD. https://www.imaware.health/at-home-blood-test/celiac-disease-screening. Unfortunately, many...
  9. trents
    Jill, Celiac.com does have a blog section but you are currently not posting in that area. The name that shows up in your posts is what you supply as a user name when you register as a forum member. It can be anything that isn't already in use by another member. I'm not sure it can be changed without creating a new account. But Scott Adams can answer...
  10. trents
    This is a good read: https://www.niddk.nih.gov/health-information/professionals/clinical-tools-patient-management/digestive-diseases/celiac-disease-health-care-professionals The tTG-IGA test is the most specific for celiac disease but if IGA levels are low or damage to the small bowel villi is not extensive it may be negative because it is not as sensitive...
  11. trents
    I don't think this is such a mystery. Your efforts over the years at avoiding gluten, even though there were occasional episodes of exposure, has allowed a measure of healing for the villi lining our small bowel. The last two months of only eating your own cooking (where you had complete control of ingredients) has allowed for the healing to be complete....
  12. trents
    Celiac disease is an autoimmune condition and would engage the immune system through an entirely different pathway than substances that would trigger anaphylaxis. But you could also be allergic to gluten coincidentally.
  13. trents
    I think you have your answer. And if you are still preparing wheat four containing foods for other family members you are likely getting exposed through inhalation of wheat four dust or cross contamination. Realize also that if you have active celiac disease there is a 44% chance that your first degree relatives have or will also develop active celiac disease...
  14. trents
    Celiac disease and gluten sensitivity/intolerance produce very variable symptoms from one individual to another. Many do not experience nausea/vomiting or diarrhea.
  15. trents
    I think that most whole grain (read, “high fiber”) food products on the shelves are dominated by wheat. I think that’s the implication. Most processed gluten-free alternatives are largely rice flour and tapioca based.
  16. trents
    https://www.frontiersin.org/articles/10.3389/fnut.2019.00162/full According to this fairly recent survey study, the waters are still muddy with regard to non CC oat protein causing inflammation. There are some in vivo studies that suggest it could if sufficient quantities are consumed but it is unlikely anyone would eat that much oatmeal. That's one thing...
  17. trents
    I would think so, albeit there are always those atypical cases where antibodies are normal but people still have villi blunting.
  18. trents
    Not specifically but it should throw the same antibodies as gluten and the same symptoms. So if eliminating oats makes improvements no those things there is the test.
  19. trents
    Have you been checked for SIBO?
  20. trents
    The TTG-IGA is the most specific but the least sensitive test for the antibodies produced by damage to the intestinal lining by celiac disease. It looks for everything like she has celiac disease. "her urea nitrogen/creatinine ratio was high" - This can be caused by dehydration or other problems that limit blood flow to the kidneys, even gastro intestinal...
  21. trents
    Have you investigated the possibility that you have other food intolerances/sensitivities that involve non gluten foods. Dairy. oats and soy are among the chief possibilities and many celiacs react the same way to the proteins in these foods as they do gluten.
  22. trents
    The genetic testing cannot demonstrate you have an active gluten disorder, only the potential for it. Most who have the genes don't develop active celiac disease. It takes some kind of triggering stress event to turn the genes on so as to produce the active disease.
  23. trents
    Welcome to the forum community, ChessFox! Have you officially been diagnosed with a gluten disorder? Complete healing of the small bowel can take two years or more. How long have you been eating gluten free? I would add also that there is a learning curve when it come to eating gluten free. Learning how gluten is hidden by terminology in prepared...
  24. trents
    There are many on this forum that will testify otherwise. There are many substances that enter the bloodstream transdermally.
  25. trents
    Are you still eating dairy and oats? Cow's milk protein has been proven to produce villi damage for some people. And for about 10% of celiacs. oat protien (gluten free oats) harms the gut like wheat, barley, rye. In addition, there are some meds that can cause villi damage, apart from containing gluten.
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