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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    "DH which some also call Celiac Sprue is a skin reaction to ingesting, and even “touching” gluten." I must correct you here, Kristina. Celiac Sprue, or "sprue" for short is just an older term used for Celiac Disease and not necessarily confined to DH.
  2. trents
    There is no way around it. You need to sit down with your family members and have a heart to heart talk with them and ask them not to eat your gluten-free food. But this begs the question, do your family members understand and accept your Celiac condition or are they dismissive toward it. I ask this because it is not uncommon for people to think that needing...
  3. trents
    There has been some concern that some distilleries use a wheat containing paste to seal the barrels used for storage after the distillation has taken place.
  4. trents
    Yes, what exactly is the medicine the PPC prescribed for you?
  5. trents
    We're not entirely sure why Celiac Disease can cause elevated liver enzymes. Most think it has something to do with the "leaky gut" that Celiacs have allowing abnormally large protein fragments to get into the blood stream which then have to be processed by the liver. There is also some evidence that gluten itself can be toxic to the liver for some individuals...
  6. trents
    Celiac Disease has long fingers, often causing neurological problems and it almost always causes dysfunction in the immune system because of "leaky gut". It is also common for celiacs to develop other autoimmune diseases. Many of the same genes are involved between celiac disease and other autoimmune conditions, e.g. diabetes.
  7. trents
    No, I get all that. I'm just suggesting contact the GI ahead of time about the going back on gluten for one month being enough. If it is, proceed. If not, reschedule or look at other options to address the distress.
  8. trents
    I would ask that question to the GI doc who will be doing the endoscopy. Many Celiacs cannot tolerate dairy and soy. There are other intolerances but those are the main ones.
  9. trents
    As an alternative to rice, are yams or sweet potatoes readily available in Thailand?
  10. trents
    Welcome, Dima! All of us with Celiac Disease can certainly relate to what you are going through. Having Celiac Disease can be very socially limiting. I think it is less so if you are married and have grown children because a lot of social needs are met in that relational context and family tends to understand and make allowances. But still, one...
  11. trents
    I think it would be unlikely that the D wouldn't set in until after 4 days.
  12. trents
    For one thing, I would be concerned about the nutritional losses from dehydration v. fresh food. Certain vitamins, like C, would be virtually eliminated.
  13. trents
    Kimble, welcome to the community! Have you had more than just the gene testing done? Have you had blood work done for celiac antibodies? I would not make assumptions about whether or not you have Celiac Disease based on gene analysis. And you speak of food sensitivity testing? Can you be more precise about the nature of the test? Skin prickiing? Serum...
  14. trents
    Elevated liver enzymes was what led me to a GI doc and the diagnosis of celiac disease.
  15. trents
    Ditto of what Scott said. It would seem smarter under the circumstances to assume the PCP's diagnosis of celiac disease is correct and just keep eating gluten-free. If you continue to feel better that is the proof of the pudding. No sense in risking irreversible damage to your body by continuing to eat gluten for months just to make sure your endoscopy/biopsy...
  16. trents
    Welcome, Vivian! Celiac.com does not and cannot sell or dispense test kits, drugs or medical equipment. It is simply an educational/support online community. But perhaps someone in the forum community can answer the other part of your question.
  17. trents
    I think there wasn't much more info available on the test than what the article gave at the time since the FDA approval was brand new. There is no name given for the test in the article but I image you could run it down by contacting the company who developed it. That information is contained in the article. But yes, a follow-up article on this test would...
  18. trents
    I would explore the option of an upper and lower GI with the doctors. I think docs are reluctant to do those on children but I'm sure it can be done. Maybe she has a kink in the bowel. Something is causing that abdominal pain. At her age I would not suspect Crohn's Disease. Okay, this is a little personal but how's the atmosphere in your home? Sometimes...
  19. trents
    Welcome to the forum. How old is your daughter? Has she had an upper GI with biopsy to check for the condition of the small bowel villi? The blood tests sometimes don't tell the whole story. Has she had a colonoscopy? Could there be a partial blockage in there? Gluten sensitivity instead of celiac disease? Does she get enough...
  20. trents
    Welcome, BizLarry! I would not be concerned about cross contamination from cookware. Porous things like cast iron and wood should be scrubbed thoroughly after being used to cook foods containing gluten. Are you sharing these implements with others in the household who are not eating gluten free?
  21. trents
    Do you mean an intestinal biopsy or do you refer to a skin biopsy?
  22. trents
    Costco, if you have access to one, is a wonderful resource for the gluten-free/Celiac community. Their Kirkland store brand products are clearly labeled if they are gluten-free and they seem to have made a significant effort to offer products that are gluten-free when wheat/barley/rye are not needed as essential ingredients.
  23. trents
    Yes, I would get that checked out. There is a tendency for people with celiac disease to blame everything on celiac disease when we can still have other things go wring with our bodies that are not celiac disease related.
  24. trents
    CL raises another product awareness when mentioning chocolate syrup. Some brands actually have wheat in them.
  25. trents
    We've all been there and done that and still get caught occasionally by gluten in foods you would never expect to find it in. I mean like, who would ever suspect there is wheat in most soy sauces but then you actually read the label and lo and behold, there it is!
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