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trents

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Everything posted by trents

  1. trents
    The challenge now is educating yourself as to where and how gluten is found in the processed food supply and in commercial eateries. At first, you tend to take for granted that it won't be in this or that kind of processed food but over time you learn how they stick it in things you would never expect and hide it by terminology. For instance, would you expect...
  2. trents
    Even biopsies can miss celiac disease unless the physician doing it samples from several areas of the small bowel. Sometimes the damage is patchy. Some docs don't realize this and so don't do a thorough job of the sampling.
  3. trents
    Sally, this is the first report I have heard of any connection between celiac disease and kidney disease. How was this confirmed and by who? Do you have other health issues normally associated with kidney disease such as diabetes or high blood pressure?
  4. trents
    Usually, docs are reluctant to do endoscopies on children and it is not done very often. I suppose the reason is it is a higher risk procedure on children than it is on adults but I also think that an endoscopy/biopsy is less likely to show villi damage to the small bowel lining with children who are celiacs than it is for adults. She may also not have celiac...
  5. trents
    Key statement here from the article: "Confirmation of the team’s findings could lead to changes in product labeling, processed food additive policies and consumer health education." Does anyone know if there has been confirmation of this initial research? I'd hate to add another food category to my blacklist if it really isn't so.
  6. trents
    One thing you can do is to ask a doctor to give you a hemoccult test kit to check for blood in the stool. You take it home and capture a small sample of stool and mail it into a lab which reports the results back to your doctor. Most doctors will agree to that as they have those on hand in their office and it's an inexpensive diagnostic step.
  7. trents
    Higher up in the digestive track would mean esophagus, stomach and small bowel. Below the small bowel is the large bowel which terminates in the colon and rectum. If you are taking iron supplements that can also cause blackened stools. What country are you in? Do you have health insurance? Are you relying solely on the college medical clinic or do you...
  8. trents
    Black stool would indicate bleeding higher up in the digestive track as opposed to the colon or rectum. Bright red stools would indicate bleeding lower down. Certain foods (like leafy greens) and certain meds (like Pepto Bismol) can also blacken stools. Have you had both and endoscopy and a colonoscopy recently? If not, I would press for both...
  9. trents
    Agreed.
  10. trents
    Welcome to the forum community Alfrieda! You are probably experiencing gluten withdrawal. You also need to look into vitamin and mineral supplementation as celiac disease damages the lining of the small bowel which in turn typically creates vitamin and mineral deficiencies. The "villi" of the small bowel lining is the organ system that is responsible...
  11. trents
    I would try the gastro doc first.
  12. trents
    I think it should be recommended but there will be those newly diagnosed elderly celiac patients who will choose to ignore the recommendations for various reasons. Among them is the learning curve involved, strain on limited budgets, and social isolation. Social isolation is going to be a big one. And I'm not sure we have any firm data at this point to say...
  13. trents
    With the celiac population, it is more common to be deficient in minerals such as magnesium and in the B vitamins than in A. Be careful in supplementing with vitamin A is too much of it can be toxic. It is a fat soluble vitamin whereas the B's are water soluble. Damage to the villi of the small bowel is what causes these nutrient deficiencies as the...
  14. trents
    Thanks KK for the additional information on the role of tTG in the inflammatory process.
  15. trents
    Listening to your symptoms and your symptomatic experience with being off and on with gluten, I have no doubt that you have celiac disease. You may also find that other foods like oats and dairy cause similar symptoms as these two non-gluten foods not infrequently cause similar gut inflammation as gluten in the celiac population.
  16. trents
    Is tissue transglutaminase the cause of inflammation or the response to it?
  17. trents
    I would consider printing out some factual information from studies, such as those published in the NIH journal (which are often linked on this forum) and giving handouts to the doc. If the doc is not open to receiving the information, I would look for another doc.
  18. trents
    There is often a withdrawal experience immediately after going gluten-free. Focus on eating simple, fresh foods instead of processed things. Fresh meat, vegetables and fruit. Avoid spices except maybe salt. For the time being, avoid oats and dairy until you start to experience substantial healing. About 10% of celiacs react to oat protein the same way...
  19. trents
    Just a coincidence, I think unless the ramping up of the immune system in response to the shot made you more sensitive to any gluten ingested.
  20. trents
    The producers seem to be talking out both sides of their mouth. Either that or they don't know what gluten is or where it is found. The trouble with many products that don't have gluten as an intentional ingredient is that some of the intentional ingredients may be cross contaminated with gluten. Since the product isn't being tested for gluten, it's...
  21. trents
    Good words, CAROLE! I think you did some excellent summary and gave sound advice.
  22. trents
    Yes, there often are celiac support groups available but whether or not there is one close to you is another question. On the other hand, if there is not one close to you maybe you should consider starting one.
  23. trents
    I have never heard that you need both copies of the celiac gene to be able to develop celiac disease. I believe that is incorrect. Certainly, with both copies of the gene you would be more likely to develop celiac disease but I can just about guarantee you that there are a lot of people with active celiac disease that only have one copy. Furthermore, there...
  24. trents
    "Does it come down to the gluten product I’m consuming?" Possibly. There have been sporadic reports that some kinds of wheat are less likely to elicit gut inflammation than others and there have been some studies that indicate sour dough bread may avoid or at least lessen the inflammatory gut response for some celiacs. I don't think there is enough evidence a...
  25. trents
    Apparently, all it takes is two weeks of being on a significant amount of gluten daily to do enough damage to the villi to show up in a biopsy. This is the standard recommendation for those already having started eating gluten-free, i.e. two weeks back on daily gluten consumption. It actually takes longer (6-8 weeks) of reintroducing gluten in order to make...
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