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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    That's what I'm saying too. But it's not gluten.
  2. trents
    You may have NCGS (non celiac gluten sensitivity). The two conditions produce many of the same symptoms but celiac disease does damage to the small bowel lining which is what produces the IGA antibodies. Gluten sensitivity does not damage the bowel lining but still can cause some rather serious health issues over time if ignored. The antidote for both is...
  3. trents
    Labs don't all use the same reference value. As for allergy testing, they are notoriously unhelpful for a variety of reasons. When all is said and done with allergy testing there is typically a significant disconnect between test results and what you experience in real life symptomatically speaking. I suggest you google: "Is allergy testing accurate...
  4. trents
    IgE does not test for celiac disease which is an autoimmune disorder, not an allergy. IgE is used for allergy testing. IgA is a measure of the total antibody load produced in certain kinds of body tissues (membranes of the lungs, sinuses, stomach, and intestines). It is not specific for celiac disease. The most specific IGA test for celiac disease is...
  5. trents
    Okay, I think I see what you are saying. Are you saying that even so-called gluten free oats are cross-contaminated enough with either wheat, barley or rye that they don't make the 20 ppm standard? My point is that oats naturally do not contain the protein gluten. I'm afraid there are many market place products labeled "gluten free" that actually do...
  6. trents
    Pure oats (i.e., that have not been cross contaminated) do not contain gluten. That's not the issue. The issue is that oat protein is similar enough to gluten that in about 10% of celiacs it causes the same reaction. Sometimes you read or hear about corn or oat gluten but it is really a misnomer.
  7. trents
    Bluebird47, In this forum community I do not sense a rift between those with celiac disease and those with gluten sensitivity. The article can be read to give the impression that those with celiac disease are at the top of the pecking order in the no gluten world but I don't think that bears out in this online community.
  8. trents
    Data, colonoscopies are not used to diagnose celiac disease. Endoscopies are used for that. Endoscopies reach down into the small intestine where celiac typically does it's damage. Colonoscopies don't go up that far.
  9. trents
    There are various forms of magnesium supplements available. They vary in how well they are absorbed. Glycinate and Citrate are the two forms that are absorbed the best. The better they are absorbed, the better they address the issue of low magnesium levels in the body and also are less likely to have a laxative effect like milk of magnesia would. But glycinate...
  10. trents
    Ricky, are you saying the doctor concluded your pulmonary clots were caused by celiac disease? I have not heard that before. I was diagnosed with celiac disease almost 20 years ago but like you about 10 years ago I developed emboli in both lungs. This led to the discovery of a genetic clotting disorder called factor five leiden. It had nothing to do with...
  11. trents
    Lisa, what better diagnostic testing being developed do you refer to? Can you give a link?
  12. trents
    "Negative serology" means the blood test that were done did not indicate celiac disease. However, they only did one test, the tTG-IGA test which is the most specific for celiac disease. At the same time, however, the tTG-IGA is the least sensitive of the several tests that can be done to detect celiac disease and so it misses about 1/3 of those who may actually...
  13. trents
    It takes both the genes and some triggering stress event in order to develop active celiac disease. It always has a genetic base but many people with celiac genes never develop active celiac disease because the right stress trigger doesn't happen. The stress event can be various things including a viral infection. At least that is the current thinking.
  14. trents
    Newly diagnosed with? Celiac Disease? Gluten sensitivity? It is common for celiacs to also react to CMP (cow's milk protein) and oats like they do wheat, barley and rye. You might try eliminating those two things for a period of time and then if you heal and things improve, add them back in one at a time. It is also unusual for those newly diagnosed...
  15. trents
    Many celiacs are also sensitive to CMP (cow's milk protein) and oats. About 10% of celiacs react to oat protein the way they do gluten in wheat, barley and rye and CMP can also cause inflammation of the small bowel lining that mimics gluten. Certain medications can produce inflammation that damages the villi of the small bowel like gluten does. Among...
  16. trents
    It also may be a good idea to get and endoscopy and a colonoscopy. The loss of motility in your gut is nothing to take lightly and can have a number of causes including Crohn's disease. As GFinDC mentioned, you need to get checked for diabetes as well. The constant thirst can be symptomatic of diabetes.
  17. trents
    Serum is the term for the liquid part of blood. It is not a particular kind of blood test. "Serum testing" refers to any test that is done using blood. Here is an article that explains the serum (or blood) tests that can be done to diagnose celiac disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ It sounds like...
  18. trents
    tTG is the most specific test for celiac disease but the least sensitive. It's a good idea to get full celiac panel when initial bloodwork with tTG-IGA alone doesn't indicate celiac disease.
  19. trents
    In addition to the issue of potential latex allergies or just being allergic to the protein in bananas (like any other food), bananas also are high in histamines so they may give problems to those with histamine intolerance.
  20. trents
    The challenge now is educating yourself as to where and how gluten is found in the processed food supply and in commercial eateries. At first, you tend to take for granted that it won't be in this or that kind of processed food but over time you learn how they stick it in things you would never expect and hide it by terminology. For instance, would you expect...
  21. trents
    Even biopsies can miss celiac disease unless the physician doing it samples from several areas of the small bowel. Sometimes the damage is patchy. Some docs don't realize this and so don't do a thorough job of the sampling.
  22. trents
    Sally, this is the first report I have heard of any connection between celiac disease and kidney disease. How was this confirmed and by who? Do you have other health issues normally associated with kidney disease such as diabetes or high blood pressure?
  23. trents
    Usually, docs are reluctant to do endoscopies on children and it is not done very often. I suppose the reason is it is a higher risk procedure on children than it is on adults but I also think that an endoscopy/biopsy is less likely to show villi damage to the small bowel lining with children who are celiacs than it is for adults. She may also not have celiac...
  24. trents
    Key statement here from the article: "Confirmation of the team’s findings could lead to changes in product labeling, processed food additive policies and consumer health education." Does anyone know if there has been confirmation of this initial research? I'd hate to add another food category to my blacklist if it really isn't so.
  25. trents
    One thing you can do is to ask a doctor to give you a hemoccult test kit to check for blood in the stool. You take it home and capture a small sample of stool and mail it into a lab which reports the results back to your doctor. Most doctors will agree to that as they have those on hand in their office and it's an inexpensive diagnostic step.
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