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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    My PCP wants me to drink 64 oz. of water daily. That's in addition to what you are getting in your solid food and adding to things like hot breakfast cereal. Take seriously what knitty kitty has said about getting checked for vitamin and mineral deficiencies, particularly Magnesium. Think about it, why is milk of magnesium sold as a laxative? It would...
  2. trents
    Welcome aboard, JLF! It can take months for your body to adjust to life without gluten and to attain some measure of gut healing. What you describe is very common. But make sure you are getting lots of fluids and regular exercise. Fiber laxatives can setup like concrete in your bowels if you don't drink plenty of fluids as you use them.
  3. trents
    https://www.mayocliniclabs.com/test-catalog/Clinical+and+Interpretive/82587 >10.0 U/mL (positive) https://www.mayocliniclabs.com/test-catalog/Clinical+and+Interpretive/8156 IgA normal values vary with age. IgA 0-<5 months: 7-37 mg/dL 5-<9 months: 16-50 mg/dL 9-<15 months: 27-66 mg/dL 15-<24 months...
  4. trents
    Corn gluten is okay for Celiacs. Actually, all grains contain some form of gluten but it's only the gluten found in wheat, barley and rye that we have to avoid. So when the Celiac community speaks of avoiding "gluten" we are actually referring to those three grains. U2Jeanie, welcome aboard! Not sure where you live but if in the USA, Costco sells their...
  5. trents
    But Lemmons111's concern is that he may not be able to get testing authorized. I agree that if he can arrange for that soon, he should continue to eat gluten in the short run. But if he can't, a gluten free trial diet is the alternative. I wouldn't want him to suffer for months until a COVID vaccine is developed. And it has always been a valid approach for...
  6. trents
    What do you mean when you ask, " And is this is a case where UK (social language) nomenclature is decidedly different versus US nomenclature versus scientific nomenclature?" When I read through the article it seemed unambiguous to me, a US citizen. Does "barley malt" or "vinegar" mean something different in the UK vs. the US?
  7. trents
    Another approach would be to eliminate gluten totally from your diet as a trial and see if the symptoms disappear. It's not a matter of cutting down on gluten. You would need to be totally committed to eliminating gluten from your diet and any supplements you may be taking. You would need to educate yourself as to how gluten is hidden in prepackaged foods...
  8. trents
    Scott, did you mean to say "hour glass" or magnifying glass? Is there an hour glass somewhere that my eyes are not spotting?
  9. trents
    How is the calcium citrate administered during the donation process? Orally? Injected? Calcium citrate side effects: Get emergency medical help if you have signs of an allergic reaction: hives; difficulty breathing; swelling of your face, lips, tongue, or throat. Call your doctor at once if you have: little or no urination; swelling...
  10. trents
    Ivana, there are many on this forum who are more knowledgeable about serum tests for Celiac than I am so I will let others address that issue. I do know that some of the serum tests are pretty specific for Celiac antibodies while others do not eliminate the possibility of other autoimmune conditions. The science of this has improved since the almost 20 years...
  11. trents
    At the top of any forum page.
  12. trents
    Wow! That's blockbuster level information. Now I have some ammo to justify the expense of some extra B-vitamin supplements my wife was questioning the other day.
  13. trents
    As I understand it, some companies (e.g. Bob's Red Mill) do their own in-house ELISA testing for gluten content but there are also at least three gluten-free certification organizations that use different testing methods and may also adhere to different standards: https://www.schaer.com/en-us/a/certified-gluten-free. Here's an excerpt:
  14. trents
    Welcome, Ivana! You seem to have done a good job of sorting through the possibilities so I don't have much advice to offer except to continue educating yourself as to how gluten is hidden in foods, meds and supplements and how it is disguised with terminology . . . how it's not always what the food manufacturers disclose but what they don't disclose...
  15. trents
    Vickie, any food item containing wheat, barely or rye in any form should be off limits to those endeavoring to eat gluten-free. This would include things found in ingredient labels such as "starch" and "modified food starch" unless the source source is specifically stated to be not from wheat, barley or rye. Also included would be things like "malt flavoring...
  16. trents
    I found this enlightening: https://www.glutenfreewatchdog.org/news/gluten-free-foods-still-contain-barley-malt/ Apparently, there is the ELISA "Sandwich" test and the "competitive R5 Elisa" test, the latter being more stringent since it will pick up gluten peptides that have been fragmented by fermentation and hydrolizing.
  17. trents
    I share the concern about malt extract and malt flavoring, which i have seen on breakfast cereal boxes where the cereal itself was not a gluten grain, say corn.
  18. trents
    What heartburn meds are you on now, candace13849? Before, I was put on a PPI for acid reflux I would wake up choking on stomach fluid sometimes, had hoarseness in the mornings and frequent sinus issues. Recently, I have weaned myself off the PPI and so far so good.
  19. trents
    The breath test was probably mentioned because it can be a key in diagnosing Small Intestine Bacterial Overgrowth (SIBO) which is a condition often found in conjunction with Celiac Disease. Have you frequently been on antibiotics during your life or long term proton pump inhibitor therapy?
  20. trents
    First of all, I would get another PCP who will take you seriously and is willing to learn about Celiac Disease. If your PCP is up in years it might be wise to shop for a younger one who has more current training and exposure to the celiac phenomenon. Or get a referral to a GI doc. If you have been eating gluten free for a while now, blood testing or...
  21. trents
    I would agree Scott but OP did not mention abdominal pain as being part of her current symptoms. Diverticulitis is very painful.
  22. trents
    Do you have a reference for that? Is it processed on the same equipment as wheat items or just in the same facility?
  23. trents
    Many celiacs had minimal or no GI distress before diagnosis. That was me. But now that I have been gluten-free for some years I have less tolerance to gluten than when I was consuming it regularly. If I get glutened now, I get violently ill with vomiting and diarrhea for hours.
  24. trents
    David, welcome! Are you still allowing gluten into your diet from wheat, barley or rye products? You state you have been diagnosed with Celiac Disease but you do not say if you are yet eating gluten free. Learning how gluten is hidden in pre-packaged foods, supplements and medications even is a real educational process. It can be disguised in terminology...
  25. trents
    Hi, Shirely and welcome. Did you mean to type "diverticular disease"? I cannot find anything for divicular disease when I google it. Could your weight gain be caused from water accumulating in your tissues such as might happen with heart, kidney or liver disease? Are you having regular bowel movements and normal amount of urination? Do you have...
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