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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I don't disagree with you at all, Gemini. But I was addressing the minority of Celiacs who seem for whatever reason to much more sensitive to small amounts of cross contamination. I hear you though. A person can go nuts trying to eliminate all gluten molecules in their lives. And I also believe you are probably correct in that for many of these folks the...
  2. trents
    Welcome Emshultz! There are other medical conditions that can cause elevated Ttg. "According to the University of Chicago Celiac Disease Center there are other diseases that can cause elevated TTG antibodies, including Type 1 diabetes, Hashimoto’s thyroiditis, inflammatory bowel disease, and autoimmune liver disease." http://www.jessicamaddenmd.c...
  3. trents
    I'm not sure that being produced in a dedicated facility insures that there will be no gluten contamination, unless that manufacturer takes it a step further and only uses ingredients that have been tested and proven to meet the gluten free standard. I'm sure it is difficult to police your suppliers of raw ingredients so the bottom line is the is still the...
  4. trents
    I found this very interesting with regards to the terminology used in gluten-free food labeling. Apparently, Bob's Redmill has an in-house ELISA standard they use when they label a product "Gluten Free" and another standard when they use a "Certified Gluten Free" label. The latter meets the standards of the Gluten Free Certification Organization. They do...
  5. trents
    "Certified Gluten Free" is not the same as "Gluten Free" or "Naturally Gluten Free", necessarily that is. Certified Gluten Free means it has actually been tested and proven to be gluten-free. This is the safest option. Gluten Free or Naturally Gluten Free often means only that no Gluten Free ingredients are intentionally included. These latter two do...
  6. trents
    I never got the impression that you were not making a sincere effort to follow the gluten-free diet. It just seemed to me that there were still some gaps in your awareness of how gluten turns up in processed food products, meds and supplements.
  7. trents
    Second what Gemini is saying, particularly about the oats. Certified gluten-free oats are available from companies like Bob's Red Mill. Having said that, there is data out there suggesting that about 10% of Celiacs react to oat gluten (all cereal grains have a form of gluten but not all gluten is toxic) the same way they do wheat/barley/rye gluten, though...
  8. trents
    Thanks for the clarification, CL.
  9. trents
    It also needs to be said the endoscopy/biopsy of the small bowel is still the gold standard for diagnosing celiac disease. Your doctor was well within protocol in prescribing this procedure. And if there had not been an endoscopy/biopsy done then you would have nothing to compare it to should you have another one done at a future date for follow-up. Should...
  10. trents
    Are you asking if a grass allergy can contribute to Celiac Disease or are you asking if Celiac Disease can contribute to a grass allergy?
  11. trents
    As far a BP meds causing villi blunting I would wonder if the real issue you were experiencing was that the pills contained gluten.
  12. trents
    Gaviscon sold in the USA no longer specifies that the starch listed in the ingredient label is from corn. I just purchased a bottle a few days ago and it just says, "starch". There is an archived thread for Gaviscon on the forum from 2015 that states it is gluten-free. It may not any longer be gluten-free. Now the manufacturer may be using various starches...
  13. trents
    raemdee, Welcome to the forum, by the way! Learning how gluten is hidden by food industry terminology is part of the celiac disease education process. For instance, any food label that lists any kind of starch is immediately suspect unless it specifies that the starch is from a non wheat/barley/rye source. The other thing is realizing that...
  14. trents
    Personally, I would consider the physician's advice to be wise in this case. What you don't want to happen is to ignore it and suffer irreversible damage to your body (e.g., bone demineralization) a few years down the road just because some of the indicators for celiac disease were not (yet?) positive. Something you did not address, however, is symptoms...
  15. trents
    Great information. Thanks! Day before yesterday I picked up the Walmart Equate equivalent of Pepcid "Complete" which has two antacids in addition to famontidine. It does not state on the bottle that it is gluten-free. Can you share more information about what the pharmacist showed you about how to look up your meds and ingredients and gluten? ...
  16. trents
    One issue for celiacs is that there may be no over the counter H2 blockers that are gluten free. There is a discussion about this in another recent thread. As far as thiamine goes, it's a safe supplement (if gluten free) that many celiacs probably ought to be taking anyway since since it's one of the common deficiencies. Other than that...
  17. trents
    Concerning the fever, thyroid problems and other autoimmune conditions can cause this.
  18. trents
    It is very common for people with celiac disease to not have significant GI distress, especially previous to being diagnosed. I'm one of them. Looking back, I realize I did have some GI distress previous to diagnosis but it was never intense. Some of the symptoms you report are common to celiac disease ("celiac disease"). Many celiacs experience neurological...
  19. trents
    Having a "sensitivity" to gluten is not the same as having Celiac Disease. Celiac Disease is an autoimmune disorder that is triggered by gluten ingestion. It's not a sensitivity, an allergy or an intolerance.
  20. trents
    It may depend on the company producing it and their particular formulation. Apparently, "pepcid" is made by more than one company. The OP states that one company making pepcid products specifically told her that their's was not gluten free. Another company, Johnson and Johnson, told her they don't test for gluten. This state of affairs is so frustrating...
  21. trents
    PB, if I understand what you're saying, you mean that her celiac disease could have been reactivated without gluten exposure?
  22. trents
    Just for the sake of clarity here, GINAGF was diagnosed with celiac disease almost three years previous to starting the use of an H2 blocker. The upcoming endoscopy should provide some helpful information about what is going on with the state of her recovery and perhaps even the unexpected weight loss.
  23. trents
    Yes, you don't want to purposely expose yourself to gluten before the followup endoscopy. The purpose of the followup would be to see if the villi have healed. I would be concerned if after 2+ years of maintaining a steady weight that you lose 10 lbs. in three months when nothing else about your lifestyle has changed except the addition of Pepcid AC...
  24. trents
    I would ask for a repeat on that test as there can be false positives: "The accuracy of blood tests can depend on the laboratory and the manufacturer, the review found. It points to a 2009 study in which 150 samples from patients with known celiac disease status were used to compare the accuracy of tTG tests at 20 laboratories in the U.S. and Europe...
  25. trents
    Hannah9, I just want to add, don't be afraid to advocate for yourself with medical professionals. It is really important to be assertive when you feel they are not hearing you or are blowing you off. Push back when you feel this is happening. They are busy people and tend to treat in a formulaic way unless you push them to go deeper.
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