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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    The problem with going gluten-free before testing is that it will invalidate the tests. You need to be eating a significant amount of gluten daily for at least 6 weeks for the testing to be valid. Another option is ordering a home test kit and send the samples off to a lab for testing. But I hear your pain. It's a dilemma in the present COVID situation.
  2. trents
    Your symptoms are classic for Celiac Disease.
  3. trents
    Accept their ignorance for what it is and don't let it become a wedge that separates you from them. Your marriage will suffer if you can't get along with hubby's parents. Aside from that, when you get home, scrub the kitchen, appliances and cookware down thoroughly. Consider getting some educational material on celiac disease into in laws' hands. Also...
  4. trents
    When going back on gluten for testing I think a minimum of six weeks of daily significant gluten consumption is recommended.
  5. trents
    Are you asking these questions because you think you might have Celiac Disease or because you think you might just be gluten intolerant? They are two different conditions.
  6. trents
    I agree with Scott's advice, Hunter. We advise getting a formal diagnosis but the delay in scheduling testing combined with severity of symptoms makes that impractical sometimes. Our concern is that people with a formal diagnosis are less likely to rationalize and cheat on their intentions to eat gluten-free. There may also be some advantages to a formal...
  7. trents
    Sarah, there have been several form participants of late whose blood tests were negative but who have definite symptoms of Celiac Disease. Some have even had positive intestinal biopsies for Celiac Disease after negative blood tests. So some questions for you. 1. Do you know what specific blood tests were done? Some doctors are not up on which ones to...
  8. trents
    So you are asymptomatic? Are you still eating out? Are you using processed foods and if so are they just labeled "Gluten Free" or are they labeled "Certified Gluten Free?"
  9. trents
    There are more than a few forum contributors that will swear they have reactions to the external application of health and beauty aids containing gluten. I am not sure it has been scientifically proven or even really studied yet.
  10. trents
    EH, don't forget that celiac suffers are not immune the various other medical problems that may have nothing to do with gluten. There is a tendency when freshly diagnosed with celiac disease to see all health issues through that lens. This especially needs emphasizing as we face the COVID pandemic.
  11. trents
    As long as the containers are thoroughly washed after having been used with gluten containing food items they should be fine. The only hesitation I have is that tupperware can possibly trap gluten in the plastic if it gets hot enough. Same with utensils. Are you sharing a home with others who are not eating gluten free? Keep in mind that Celiacs often...
  12. trents
    I don't have DH but there are those on the forum who know what it looks like so that's why I asked for a pic. Or, you can google it.
  13. trents
    I wouldn't think at 26 the pain in your digit would be arthritis. Can you post a pick of the rash on your knee? Something called Dermatitis Herpetiformis is a classic expression of Celiac Disease.
  14. trents
    All the symptoms you describe align with Celiac Disease but could be due to other things as well. Sounds like you should get a blood antibody test for diagnosing Celiac Disease. May we ask what age group you are in?
  15. trents
    Celiac Disease and seasonal allergies would engage entirely different immune response subsystems. I doubt there is a connection there. Even though your blood tests were negative, that does not necessarily rule out Celiac Disease. We have forum members who experienced the same thing with negative blood antibody tests but when their small bowel was biopsied...
  16. trents
    Several of the symptoms you describe are not uncommonly experienced by Celiac sufferers but they could also be due to other medical issues such as peptic ulcers or gastritis. The one that doesn't fit Celiac Disease from what I know is the low grade fever after eating. Do you live in the USA or some other part of the world where people have less say so in...
  17. trents
    No, you don't have to throw out your cookware and utensils. Just wash them well after use by those in your household who are not eating gluten free or keep them in a separate place. The biggest challenge in that regard may be things like shared toaster ovens and measuring scoops. Come up with a plan and make sure everyone is on the same page. You may also...
  18. trents
    Since Celiac Disease is not an allergy, I would not go to an allergist for testing but to a GP or a GI doc. It is possible you are allergic to gluten but that doesn't account for most problems with gluten. What are your symptoms, anyway?
  19. trents
    Just gargle first!
  20. trents
    Of course, it may depend on what particular symptoms you are referencing. Unlike me, some people do not experience emesis and diarrhea from gluten so some symptoms may be more delayed.
  21. trents
    It is possible to get glutened from kissing, however, soon after eating gluten containing food.
  22. trents
    No risk of CC there it would seem.
  23. trents
    No. Nore is it included in a CMP (complete metabolic panel). It must be requested as a separate test.
  24. trents
    Cody, now the biggest challenge for you comes. Namely, getting educated on the myriad of unsuspecting places where gluten (wheat, barley, rye and for some, even oats) shows up in the food supply. For instance, most canned soups will have wheat starch as a thickener. Most soy sauces will have wheat as a listed ingredient. Medications and supplements may use...
  25. trents
    It is not unusual at all for some of your age to develop Celiac Disease or other gluten-related disorders. I was in my early 50's when I finally got diagnosed but I realize there were symptoms present at least 15 years before the diagnosis. About 40% of the population have the genetic potential for Celiac Disease but most of those never actually develop the...
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