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trents

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Everything posted by trents

  1. trents
    The point is that the TTG_IGA is the most specific for celiac disease but not the most sensitive test, which will result in some who actually do have CS celiac disease being missed. The other tests are less specific for celiac disease but more sensiitve, which means they might point to celiac disease or to other diseases of the intestinal track such that...
  2. trents
    Were you still consuming gluten daily when the panel was done? Many people make the mistake of already having started a gluten-free diet before they go for the testing. And most docs fail to tell them not to do that. The HLA test only checks for genetic celiac disease potential. It doesn't prove you have active celiac disease. Most people who have the...
  3. trents
    I would just go to your physician and say, "I have stomach pain and I haven't been checked for celiac disease that I know of. Could we do that?" Print this out, circle the part about TTG IGA and hand it to the doc: Open Original Shared Link
  4. trents
    I'm not clear on what it is you want to convey to the doctors. Do you refer to the fluttering sensation or a desire to broach the idea with them of possibly having celiac disease and wanting to be tested for it? A number of people on this forum have complained about fluttering in the upper abdomen, usually around the bottom of the rib cage. I do not...
  5. trents
    Katina, First, chronic health issues are common contributors to mental health issues, particularly depression. Second, celiac disease typically results in vitamin and mineral deficiencies because of the damage it does to the small bowel lining. The "villi" of the small bowel are damaged and worn down, preventing proper absorption of the nutrition...
  6. trents
    Welcome to the forum! First, yes, keep consuming gluten until after the testing is done. The first stage is a blood draw checking for celiac antibodies. The physician may want to go to the second stage of testing for confirmation, especially if the results from the blood test are ambiguous. You must be consuming gluten right up to the day for either...
  7. trents
    Welcome to the forum, Hyperceliac! First, I'm not sure you realize this but you created a blog rather than posting in the open forum where your post would get more exposure. I would suggest creating a post rather than a blog. The forum is topically organized into sections so find one that is appropriate. You should be able to copy and paste from your...
  8. trents
    If manufactured in the USA then all or almost all products use corn for modified food starch and if not and wheat, barely or rye were used then I believe it would by regulation have to be specified.
  9. trents
    They aren't ridiculously high but they are firmly positive. By all means, if you feel you need to get a biopsy for confirmation, do so. You already have your doc on track with that and many benefit from the double confirmation in the sense of it helps them avoid cheating on the gluten-free diet. It's more difficult to rationalize it all away.
  10. trents
    With those numbers the biopsy seems unnecessary to me. Many physicians are now abandoning the biopsy when the serum antibody numbers are strongly positive as are yours.
  11. trents
    Ditto to what Scott said. It is unfortunate that you were already eating gluten-free before the tests as it likely had some moderating effects on the results. The rule of thumb before serum antibody testing is to be consuming at least the equivalent of one slice of wheat bread for 8 weeks. And you have a number of celiac symptoms.
  12. trents
    Two weeks might allow you to start feeling somewhat better but I would give it more time. The trouble is, most people who start on the gluten free journey have no idea how gluten is disguised by terminology in the food industry and how ubiquitous it is. It shows up in foods that you would never, never suspect to find it in like canned tomato soup (actually...
  13. trents
    Kathy, most doctors are not well-informed about celiac disease. It can become active at any time in life. A high percentage of the population have genetic potential for celiac disease but most do not develop it despite. It takes both the genetic potential and some triggering stress event, such as a viral infection, to activate the genes. I have not heard...
  14. trents
    I certainly would ask him to do that specific test as he or she may not be well-versed on gluten/celiac disease issues. Most docs aren't. Think up a tactful way of suggesting this test be done. You don't want to come across as insulting the doctor's intelligence. Print something out to have on hand to give the doc.
  15. trents
    You are welcome! https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ The TTG-IGA is the most important one. Also, you should check out this thread started by another 17 year old "uni" student struggling with celiac disease. Lots of overlap with you in her story and we would give you much the same advice when it comes...
  16. trents
    You are welcome! https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ The TTG-IGA is the most important one.
  17. trents
    ellajones, welcome to the forum! I noticed you said you have "tried to be completely gluten free." Several recent studies have shown that most people who claim to be eating gluten free are actually practicing lower gluten eating, avoiding the main sources of gluten such as bread and pasta but still getting regularly "glutened" due to ignorance or inattention...
  18. trents
    My understanding is that maltodextrin and MSG are considered gluten free even if they are made from gluten containing grains because the offending peptides are broken down to the point that they don't create a celiac reaction. Is this no longer considered to be true?
  19. trents
    Welcome to the forum, Catherine! Not only can oats be contaminated with gluten-containing grains, about 10% of celiacs react to oat protein the same way they do wheat, barley and rye. Also, it is common for celiacs to develop allergies/intolerances to non-gluten foods. Celiac disease creates "leaky gut" syndrome that allows larger than normal protein...
  20. trents
    Being vegan should not affect test results as long as they are consuming gluten daily. Would it be possible to pack a gluten-free protein bar to take to class with you to get something in your tummy that is portable and doesn't require cooking? You might makeup some hard boiled eggs and keep them in the frig for mornings when you don't feel up to...
  21. trents
    Thanks for bringing that up, Scott. I had intended to mention that to Rachel_17 but it slipped my mind. Related to that is having Rachel_17 and her family members realize that: 1. Active celiac disease can develop at anytime in life. 2. People with the genetic potential for celiac disease will not necessarily develop celiac disease. It requires...
  22. trents
    Rachel_17, you are taking some good steps toward healing. A big part of finding healing will be you finding a sense of taking control of the situation and you are now doing that. We want to emphasize the importance of adding to your vitamins a gluten-free high potency B-complex. Are you vegetarian or vegan? If not, meats are loaded with a lot of...
  23. trents
    Welcome to the forum Rachel_17. 1. It can take months to start feeling better after being on a gluten free diet. It can take a couple of years for the lining of the small bowel to completely heal but because of your youth I would expect it not to take that long if you are truly eating gluten free. 2. It is very common for celiacs to experience other...
  24. trents
    I think you are beginning to discover what most of us have concluded. Namely, the medical profession is just not up to speed on gluten related diseases and so, you must become your own advocate. By now, you probably know more than 90% of the doctors do about gluten related diseases and your best option is continued self-education.
  25. trents
    Just from the TTG values it doesn't look like you have celiac disease. TTG is the most important single test to run to check for celiac disease but there are others that should be run. Do you know if the TTG was the only one the doc ordered? Sometimes the TTG will be negative but some of the other blood enzymes will show positive. It is also the case that...
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