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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. There is something called "meat sweats" but it doesn't seem to fit very well with what you describe: https://www.healthline.com/health/meat-sweats#5
  2. Does this effect present itself with other meats, eggs, dairy, soy . . . other things high in protein?
  3. Do you get these smelly sweat episodes when eating other beef products? Does this only occur at night? It is odd that you have no GI distress in conjunction with these episodes.
  4. As an aside, have you inquired about how Wendy's cooks the beef patty for that lettuce wrap burger? Are they cooking it on the same grill that they use for things like breaded chicken patties?
  5. Three things: 1. Recent studies, and there have been a number of them, show that most people who report being diligent about avoiding gluten in their diets are not as successful as they imagine. They are actually practicing a "low gluten" diet rather than a "gluten free" one. This is due to a number of factors including misleading and erroneous labeling...
  6. Amazing! I would say there is a link.
  7. There is a lot of trivial media these days, isn't there! Nothing else on TV to watch that is new but the news and it is not very uplifting these days.
  8. Not far from me, then. We're about 30 min. south of Olympia.
  9. I take it you are not in the US.
  10. The Mother, Does your son's healthcare insurance allow him to directly schedule appointments with specialists? Seems like to me he needs to be connected with a gastroenterologist.
  11. My heart goes out to you. We always suffer with our children when they suffer. As CL asked, has your son been diligent to avoid gluten or do you know? Having worked in a hospital setting for many years before retiring, I can tell you it is not uncommon for young type I diabetics to be in denial about their need to manage their diabetes and to have one...
  12. Good questions. I got the impression that the study's sample population was representative of those who were still eating out at times and eating main stream foods at home while trying to be gluten food detectives, i.e., asking questions about ingredients and preparation when eating out and reading the labels of mainstream prepared food products. In other...
  13. Latest research continues to confirm how even the diligent get glutened more than they realize: https://www.beyondceliac.org/research-news/new-evidence-gluten-in-gluten-free-diet/?utm_campaign=Research Opt-In&utm_source=hs_email&utm_medium=email&utm_content=87884192&_hsenc=p2ANqtz-_vCatKrAPHUZPbqONwt1ZO29SQYGDfoC4oRzekRSVh1aYs1-v6ZMKP_20dPmQLRBJooPYqZzYD...
  14. Again, your reaction could be to some other ingredient besides gluten that is contained in this particular Doritos product that is not found in the other non certified non gluten containing Dorito products.
  15. A good sign that they they aren't (yet, anyway) treating you dismissively.
  16. Certainly, avitaminosis can and often does develop from celiac disease because of the villi damage and resultant nutrient malabsorption. Bloodwork as a standalone diagnostic procedure for avitaminosis can lead to under-diagnosis of some vitamin deficiencies. An example is B12 deficiency which can be masked by folic acid supplements. And vitamins and...
  17. I'm not a doctor or medical researcher but I don't see how there could be a connection between the two. "Polycythemia vera occurs when a mutation in a gene causes a problem with blood cell production. Normally, your body regulates the number of each of the three types of blood cells you have — red blood cells, white blood cells and platelets. But i...
  18. So what you are really asking is does anyone know of research that shows celiac disease may be triggered by polycythemia VRA. Correct?
  19. Related, as in cause and effect or just statistically?
  20. I'm glad you said that CL. That's one of my frustrations since participating on this forum. People with celiac disease forget that things go wrong with their body that are not related to celiac disease. We can get medically myopic.
  21. Yes, and some doctors deny it is a real disease entity. But more and more are recognizing it as a medical reality. By definition, a syndrome is a collection of symptoms that is difficult to find an underlying cause for. Those of us with celiac disease understand that many medical problems have an autoimmune base. And the list is growing.
  22. Has anyone checked you out for CPS (Chronic Pain Syndrome)?
  23. So you are now 75 yr. old? This is assuming your efforts to eat gluten free started with celiac disease diagnosis. Are you male or female? Sorry to have to ask but "Chris" can be used for either and the causes and patterns of hair loss can be different for men and women.
  24. Getting back on topic here, do labeling laws in the U.S. require that "naturally gluten free" foods contain warnings when they are being processed on equipment that may also be used for processing foods that contain gluten bearing grains? Seems to me that I commonly read that warning on things like confections that are processed on equipment also used for...
  25. Okay everyone, let's take a step back here. The posting is getting adversarial. We may not agree with other's opinions but we still need to treat each other with respect.
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