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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Intestinal Growling?
trents replied to klcarne30's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Small bowel bacteria overgrowth would not have been revealed by an endoscopy. Actually, there is a test you can do at home by drinking baking soda mixed in water and monitoring how much you burp. -
Thanks, but I'm not sure how either solanine toxicity or nickel allergies relate to gluten issues and Celiac Disease. What's you thought there as to the connection?
- 89 replies
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- barilla
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No barley allergy, yet celiac?
trents replied to PolyBlank's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So at least at some point your were indeed having symptoms. Are you saying you no longer have symptoms when you eat wheat\barley\rye products? This is confusing since you said in post #1 you have no symptoms. I strongly suggest you take the next step of diagnosis/confirmation and ask for an endoscopy/biopsy. -
Yes, I would like some links. Seems like just about every food you can think of has some potential health benefit but also some potential health danger, at least for some people with certain medical conditions or when consumed to often in large quantities. So a lot of this kind of alarm sounding is just sensationalism. I would like to have some links to be...
- 89 replies
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- barilla
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Do you have any references for the nickel and solanine toxicity? This is new to me. Tomatoes are generally regarded as a super food.
- 89 replies
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- barilla
- gluten free
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No barley allergy, yet celiac?
trents replied to PolyBlank's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just because you have no symptoms doesn't mean damage is not being done to your body, especially the small bowel. It is not uncommon for celiacs to be asymptomatic. And just because you are asymptomatic now doesn't mean you never will be. By the way, what tests did your doctor use to arrive at a celiac disease diagnosis? I assume these were blood tests... -
Working with gluten in the air
trents replied to TheMikeyB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum. You are wise to be concerned about your exposure to gluten in this environment. You would to at least have to come up with some protection to the eyes, mouth and nostrils that was truly filtering the grain dust out. And it would probably be a good idea to shield all exposed skin as there is a strong conviction on the part of some... -
A number of brands use pea protein for at least some of their noodle products. Banza for instance. Barilla has a chick pea based rotini that we use.
- 89 replies
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- barilla
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Here's an update. Nima was purchased by a medical supply company by the name of Medline Industries, Inc. I contacted them on the phone. They still carry the product (sensor and capsules) but the guy I talked to read a memo from corporate he had received in the last day or two that explained why they are out of stock. It's because of the interruption in the...
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Not necessarily. That would only be true if the ingredients themselves which they receive from their suppliers has not be cross contaminated. This is where individual sensitivities come into play. A very low amount of gluten, lower than 20 ppm, may still cause reactions for some celiacs but not for others. 20 ppm does not work for all Celiacs but for most...
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Certified gluten-free products might be contain anything up to a maximum of 20 ppm. The "certified" part means this has been verified by an independent testing lab. Non certified products labeled simply "Gluten Free" is a less exacting designation and may refer only to the fact that gluten containing ingredients are not knowingly included in the product formulation...
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It is believed that about 10% of Celiacs react the same way to oats as they do to wheat, barley and rye. But there has always been this question mark surrounding that figure as to whether that happens because the oats that have been cross contaminated with one of those other grains. The only thing to do would be try eliminating oats from your diet for awhile...
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Follow up here and correction on my post above. In fact, type one diabetes does share some of the same genes as Celiac Disease. That's what I get from shooting from the hip before doing the research.
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Welcome, Pete! Barilla is "Certified Gluten Free" which requires more rigorous testing than just "Gluten Free" and testing by independent testing labs. Could it be that you're reacting to some other ingredient in the pasta? Many of these gluten-free noodle products contain a lot of pea protein which is high in fiber but could cause the symptoms...
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When you go to Nima's home page and click on the "Shop" shortcut, it takes you to Amazon. But Amazon says it is not available and they don't know when it will be back in stock. I can't find any contact info on the Nima home page as well. When I click on the Nima FAQ shortcut the page doesn't load and there is an error message. Are they still in business? ...
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No barley allergy, yet celiac?
trents replied to PolyBlank's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
PolyBlank, welcome to the forum. Celiac Disease is not an allergy. It is an autoimmune disease that expresses itself as inflammation of the lining of the small bowel lining when wheat, barley or rye is consumed and, for some celiacs, also oats. A person with Celiac Disease can often not be allergic to the gluten protein in those same grains. Conversely... -
Mandeep, Probably not a good idea to post your email address on a public forum. This forum has a Personal Messaging feature for that purpose if you register as a user. Also, no need to double post just to add some information. There is an editing tool for that but it may have a time limit. I suggest editing out your email address and actually join the...
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Espresso coffee
trents replied to Krasi's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Have you in fact been diagnosed with Celiac Disease and if so, are you eating gluten free? -
Rocky Mountain Analytical Testing
trents replied to barrycudda59's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I can't answer your question about the reputation of the laboratory you reference but my larger concern is about the methodology of the naturopath. I am certainly aware that improvement in serum analyzing technology allows for smaller blood samples to be used for testing but a finger prick blood sample just seems too small to allow for the various antibody... -
The gene test is far from being definitive since only a small portion of those with the genes actually develop celiac disease whereas a relatively large proportion of the population have the genes. It takes some kind of triggering event for the genes to be expressed. But if turns out you don't have the genes then you could look elsewhere for what is causing...
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Opening my eyes to Celiac
trents replied to JesseTheHat's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Jesse, No. I would not feel comfortable eating chipotle at a restaurant unless I could confirm with he chef that it is gluten free or is on the restaurant's gluten-free menu, if they have one. Even if gluten containing grains are not listed in the ingredients it is certainly possible that gluten is in the spices and seasonings. When dining out, I would... -
Celiac Disease creates a greater risk for small bowel cancer. I would hesitate to start reintroducing gluten into your diet if I were you since you already had a tumor and recent surgery. Instead, I would double down on eliminating gluten from your diet. Educate yourself as to how gluten is hidden in our food supply, supplements and medications. If after...