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trents

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Everything posted by trents

  1. trents
    Are you sure you were not sedated at all, not even conscious sedation? Well, did a little research and indeed colonoscopies are sometimes done without sedation, particularly outside the USA. But in the USA, "Most often, either moderate sedation or deep sedation with the anesthetic propofol are used for colonoscopies. An anesthesiologist is sometimes present...
  2. trents
    If the diseases are not gluten related then I wouldn't think the symptoms would improve on a gluten-free diet.
  3. trents
    Why do you say that? Did you experience complications with the endoscopy? For me the actual procedure in both cases was a tossup but there was no nasty prep for the endoscopy, just no eating for 8 hr. before. You are sedated for both so what's the diff?
  4. trents
    It would seem then we are throwing weight back to the importance of the endoscopy/biopsy, since there was a trend to rely only on the blood tests. Just seems to be common sense to me that testing for a disease in multiple ways is going to be a more reliable diagnostic methodology.
  5. trents
    Get a new doc. If my doc was that ignorant and stubborn I would switch in a minute. And welcome to the forum, Crescentmoon!
  6. trents
    Scott, you'd better read what you wrote.
  7. trents
    Do you have celiac disease or gluten sensitivity that has been diagnosed? Trying to figure out here why you posted this in a forum about celiac disease.
  8. trents
    Sounds like it could be or maybe not celiac but gluten sensitivity. All of the symptoms you describe are common to those with celiac disease and also with gluten sensitivity. Celiac disease is not an allergy it is an autoimmune disease and involves a completely different pathway in the immune system than do allergic responses. High eosinophils would indicate...
  9. trents
    Welcome to the forum, mizar552000! Just make sure you have been eating gluten daily for at least two weeks leading up to the scope and biopsy. The equivalent of a piece of bread each day should be adequate. Many people make the mistake of trying to eat gluten free leading up to testing and that will compromise the results. For the blood antibody test...
  10. trents
    I would take that one to mean, "We don't intentionally include known gluten sources in this formulation but we aren't addressing the possibility of cross contamination," which is probably the equivalent of "Gluten Free."
  11. trents
    I've had several endoscopies and colonoscopies. All of them have been quick and pain free. And if there is any pain you won't remember it because they use sedation drugs of a type that prevent the experience from being recorded by the brain. So it's like the pain never happened.
  12. trents
    And there is likely a difference between "Gluten Free" and "Certified Gluten Free" or CGF. The latter typically has be subject to stricter standards of testing.
  13. trents
    6-8 weeks of eating gluten daily for the blood antibody test should give valid results. If you are going for an endoscopy/biopsy at least two weeks of eating gluten daily.
  14. trents
    There can be SIBO (Small Intestine Bacterial Overgrowth) associated with celiac disease but it is not a universal condition with celiacs.
  15. trents
    Did your husband's anger problems start with your health issues or is this a pre-existing tendency on his part? I'm thinking maybe legal separation and insisting he get anger management counseling with an eye to eventual reconciliation if there is real change in your husband's behavior toward you. Have you been tested and officially diagnosed with celiac...
  16. trents
    A number of people on this forum have reported that experience. And don't go off of gluten before your biopsy or it may invalidate the results.
  17. trents
    You are replying to a thread two years old.
  18. trents
    If by "the doctor" you mean the one doing the endoscopy told your mom "everything looked good," that one is easy to explain. Depending on the extent of the damage, the experience of the one doing the scope, and the magnification quality of the scope itself, the damage may not be visible. That's why they send it to a lab for microscopic inspection.
  19. trents
    Yes, this is what it takes. Either that or physicians who themselves develop celiac disease or one of their immediate family members. Nothing like personal experience to educate.
  20. trents
    Still one of the biggest misconceptions about celiac disease, that digestive issues are it's only manifestation, and one embraced by far too many doctors out of ignorance.
  21. trents
    Welcome to the forum, Russ. Yes, nearly everything you describe screams of celiac disease. Not sure about the body odor as I don't recall others reporting that one. Just one thing to keep in mind. If you go for testing to get an official diagnosis, you must be eating gluten daily for 6-8 weeks before the antibody blood test and at least 2 weeks before...
  22. trents
    You need to be back on gluten daily for 6-8 weeks before the blood test and at least 2 weeks before the endoscopy/biopsy if the doc wants both.
  23. trents
    Bill, is the problem you have with cow's milk caused by the casein (a protein in milk) or the sugar in milk (lactose)? There are lactose free dairy products available and if the casein is the culprit you can still probably consume whey-based products. Whey is another protein in milk and commonly used by body builders and athletes as a high quality form of...
  24. trents
    You're good to go! Just a spring chicken. We cannot change what damage may have already been done to our bodies by living with undiagnosed celiac disease. And some kinds of damage may continue to play themselves out over time, even after we adopt a gluten free lifestyle. Some kinds damage is usually quite reversible by gluten free eating, e.g., liver...
  25. trents
    Maybe 51 or 52.
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