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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    You have classic symptoms of Celiac Disease but it could also be gluten intolerance. If the blood tests come back negative, pursue an endoscopy/biopsy of the small bowel lining which is the gold standard for diagnosing Celiac Disease. We do have some forum members who have had negative blood tests but positive endoscopy/biopsy. If all tests/endoscopy/biopsy...
  2. trents
    In our current healthcare climate, most doctors have a hard time thinking outside the box. Everything is metrics driven. Why did they give you folate for the high homosystine levels? Does folate counteract that?
  3. trents
    Send this to your GI doc: https://www.cghjournal.org/article/S1542-3565(03)00313-6/fulltext#:~:text=In addition%2C celiac disease may,on a gluten-free diet. This factoid is readily available on the internet and has been for some years. I'm surprised your GI doc was unaware of the connection.
  4. trents
    Elevated liver enzymes was what eventually led to my Celiac Disease diagnosis. About 20% of Celiacs experience this. You don't want to damage your liver. It's a very important organ.
  5. trents
    Seltzer is simply carbonated water. I don't think there would be any need to label it gluten free. I can't see how it would come in contact with wheat, barley or rye in the production or storage process. These days, labeling "gluten free" has unfortunately become a marketing tool. You see it on many food products now that are naturally gluten free.
  6. trents
    Do you have a date yet for the testing?
  7. trents
    Wow! Without a doubt the longest post I have seen on this forum. But lots of good information there. Thanks.
  8. trents
    The oily stools and diarrhea are classic celiac symptoms. It sounds like you may have other medical issues as well. It is common for celiacs to develop other autoimmune diseases.
  9. trents
    Eliminating carbs in your diet also eliminated the major sources of gluten. The next step would be eliminating those processed foods, meds and supplements that contain trace amounts of gluten and to give attention to cross contamination.
  10. trents
    Some of the symptoms you describe are classic Celiac Disease symptoms. The rash for instance. Could that be dermatitis herpetiformis? Celiac Disease is an autoimmune condition and when you have one autoimmune disease it is common to have others such as RA, Lupus, diabetes, Hashimoto, etc. Bone demineralization (osteoperosis, osteopenia) is also very...
  11. trents
    Your reply is confusing. Did you mean to say, "unfortunately there is no such group"?
  12. trents
    Ruqia, Celiac does not go away. It is in the genes of your children just like the color of their eyes. One suggestion I have is to try and find other children with Celiac Disease that your kids can be friends with. Is there a Celiac support group where you live? If so, that might be the place to start.
  13. trents
    Do you know of any brands that do have gluten? Sherbert is not something I would expect to find gluten in.
  14. trents
    I agree with GFinDC. The benefit of the endoscopy/biopsy for some people at the stage you are in is more psychological in the sense of confirmation to help them stay on the band wagon. Sounds like you don't need that.
  15. trents
    For sure, even small traces of gluten from cross contamination can make some celiac suffers very ill. But not all are that sensitive. There is tremendous variation. Having said that, absence of symptoms is not necessarily a reliable indicator of no cross contamination or no stress to the gut villi.
  16. trents
    You would need to be eating significant amounts of gluten for at least 6 weeks before testing for it to be valid. A colonoscopy would not be used to diagnose Celiac Disease since celiac disease does damage to the small bowel lining. A colonoscopy is for checking the large bowel. What you need is an endoscopy, aka, upper GI scoping and biopsy. There are...
  17. trents
    Three things: 1. If you have been eating gluten-free (or trying to) for awhile, the endoscopy and biopsy may be invalid or inconclusive just as with the blood tests. 2. Dude, you must get a handle on cross contamination. You need to be more diligent about this. You are shooting yourself in the foot if you are trying to eat gluten-free but not being...
  18. trents
    All cereal grains contain gluten but the gluten is different in each one. The gluten in wheat, barley and rye (and for some people, oats also) is very similar and is what causes the celiac reaction. So in common parlance "gluten" has come to refer the gluten in wheat, barley, rye and maybe oats. The gluten in corn is dissimilar enough to the gluten in those...
  19. trents
    I've had several endoscopies performed over the years and they are a quick and easy procedure. Doesn't require bowel prep, just no food after midnight the day before. Out patient procedure, conscious or light sedation and very minimal risk. Not painful or unpleasant at all. I understand your concern about COVID but personally, I think the peace of mind from...
  20. trents
    Mail/post? Do you mean the postal service via snail mail? What country are you in? They don't do that here in the USA. For me and many others in the USA, we can check test results via our medical provider's online tool. Each patient has an account that can be accessed online where we receive messages and test results and can even schedule appointments.
  21. trents
    Cindy, what difference does living in a small town make in this matter? Are you saying you don't have many choices when it comes to choosing physicians knowledgeable about Celiac Disease? I live in a small town in the middle of a very rural county in Washington state. I don't feel handicapped by that. There is so much knowledge on the Internet about medicine...
  22. trents
    "Receive them in the post"? What post do you refer to? Do you mean in the follow up visit with the doctor? Did you have an endoscopy (aka, upper GI)? About a week I think.
  23. trents
    When you cheat it may take two or three weeks to recover. Ain't worth it.
  24. trents
    Do you get sick when you drink hard distilled spirits from other sources such as corn or potatoes?
  25. trents
    The fatty stools with dairy may be due to the fat itself in the dairy. Do you get this if you drink skim milk?
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