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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    Anne, you were blessed to have caught your celiac disease at such a young age before a lot of collateral damage was done to your body and at a stage in life when your healing powers were at peak efficiency. That will not be everyone's experience.
  2. trents
    Absolutely. Just request it from your physician. Really, there is a whole antibody panel of tests that can/should be run to test for celiac disease but the ttg is now considered the center piece. Open Original Shared Link. Go armed with this information when you visit your physician. Many general practitioners are not up on celiac disease.
  3. trents
    Morton tastes like aluminum? That's a new one. Never heard anyone say that before. Just tastes like salt to me.
  4. trents
    A gluten allergy would be scientifically defined since allergic reactions engage the immune system in specific ways. Intolerances are typically conditions that cause lower GI distress, as in lactose intolerance. Gluten sensitivity falls short of celiac disease but is usually viewed as creating some sort of toxic reaction that has a more systemic effect and...
  5. trents
    You'll get a variety of feedback on this forum with regard to throwing out cookware. Personally, I believe through washing should do the trick. Be especially careful with cast iron skillets because they are fairly porous. I really think you should consider getting genetic testing done for your toddlers. First degree relatives will have some of the genes...
  6. trents
    Welcome to the forum, KMS83! First, get your thyroid hormone level checked if you have not. That could definitely wreak havoc with your energy levels. Second, several recent studies have demonstrated that most people who believe they are eating gluten free are actually practicing low gluten diets. This is especially true for those who dine out...
  7. trents
    Genetic testing for vitamin deficiencies? I haven't heard of that before.
  8. trents
    What about iodized table salt? In 1/4 teaspoon there is 45% of the MDR and 590 mg of sodium which is 25% of the MDR. And processed foods are typically loaded with salt. Now, some food manufacturers do use iodine free salt (see Open Original Shared Link for a list) but I would hazard to say that most still use iodized salt and that most people still used...
  9. trents
    Be aware that food companies can and do change the formulations of their processed food products. What was once gluten free may no longer be. When problems reoccur it is a good idea to check all labels in your pantry and at the grocery store for any changes that might have introduced gluten. Same with meds and supplements.
  10. trents
    Posterboy, I don't see other signs of an ulcer. I would think if I had an ulcer it would produce pain at other times.
  11. trents
    Encouraging news, Tracy66! Thanks for sharing your victory. I think you will soon be getting to the bottom of this and your daughter will be on the road to healing.
  12. trents
    Proton Pump Inhibitor. Omeprazole (Prilosec) , Protonix, etc. A class of meds that actually blocks the production of stomach acid as opposed to neutralizing it like Tums or Gaviscon. There are also H2 receptor inhibitors like Zantac and Pepcid which aren't as strong as PPIs but may create less dependency. Yes, I was taking the PPI on a daily basis. Took care...
  13. trents
    And yet, B vitamin supplementation is also a recommendation for treating migraines. I have always heard that supplementing with B vitamins is safe because they are water soluble and we just excrete any excesses in our urine. Is this no longer a valid concept? Maybe the science around this has changed.
  14. trents
    Tracy66, just be careful and get vitamins and supplements that are gluten free. Not sure where you live but Costco is a great source for gluten-free vitamins and supplements through their Nature Made line if your are in the USA and near one.
  15. trents
    I'm sorry but your doctor was incorrect when saying that you only have to be eating gluten for two weeks to get a valid antibody test. Unfortunately, many general practitioners and more than a few GI docs are not up to speed when it comes to diagnosing and advising patients with regard to celiac disease. Two weeks may have been acceptable for the endoscopy...
  16. trents
    Tracy66, also be aware that serum vitamin and mineral level testing may not tell the whole story since they don't measure what is actually getting to the tissues. Deficiencies can also be masked in some cases by supplements. A case in point is a B12 deficiency being masked by folate supplementation. Really, it can be better to observe the effects on the body...
  17. trents
    Niacin supplementation gives me tummy burn. I know it has a reputation for doing that for some people. It's supposed to be transient but having just recently gone through PPI elimination withdrawal and come out on the other side I'm still very wary of things that irritate my gut.
  18. trents
    Good stuff, PB! Thanks. It was a much needed post.
  19. trents
    Amaryllis3, welcome to the forum! First, I wonder which serum antibody tests your doctor ran as many doctors don't run the full panel of tests that can be done. Do you have that info? Second, I would pursue an endoscopy and a biopsy of the small bowel to check for villi damage. But realize, that with both the blood tests and the endoscopy/biopsy...
  20. trents
    Have you been checked for a peptic ulcer? And if you are only taking Omeprazole PRN, why not try something less likely to cause other health problems like Tums as needed? Please keep in mind that, a far as I know, there haven't been any good longitudinal studies done on the safety of melatonin. And if, as you say, it has a similar chemical structure...
  21. trents
    Have not heard of this problem with nausea before in connection with celiac disease. But if I were to take a wild guess I would suspect it may have to do with vitamin and mineral deficiencies. Celiac disease damages the villi of the small bowel where most all of our nutrients are absorbed. This typically results in vitamin and mineral deficiencies. Are you...
  22. trents
    Thanks for sharing your experience. It serves as a good warning to others in the sense of realizing that labs can make mistakes and so it's a good idea to go at it from different angles.
  23. trents
    Tracy66, knitty kitty gives good advice. Many of the medical condition spinoffs from celiac disease are nutritional deficiency related. The damaged villi in the small bowel causes reduction in the ability to absorb vitamins and minerals. Also, I wanted to say that celiac disease is not an allergy. It is an autoimmune condition. That can be a little difficult...
  24. trents
    Not at all. Just wanted to get your attention. Sorry if I came across too harshly.
  25. trents
    You are most welcome and I hope what I have shared will prove to be of help as you seek to get a handle on your daughter's health issues. Concerning the anaphylactic reaction to egg protein the same way as you would a bee sting in so far as how it engages the immune system.
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