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trents

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Latest Celiac Disease News & Research:

Everything posted by trents

  1. trents
    Your lab values seem to indicate celiac disease. The next step would be to talk to your GI doc about getting an upper GI scoping with biopsy of the small intestine villi. The villi would be blunted or worn down from the chronic inflammation characteristic of the disease in response to gluten ingestion. That has been considered the gold standard of diagnosis...
  2. trents
    Welcome to the forum, Tim! If you don't get any replies to your question from forum members, try reaching out to Walgreens itself at corporate. They can then refer you to the manufacturer they use for that product and you can ask that question. The producer may ask you for a barcode.
  3. trents
    There are some other medications and medical conditions that can cause villi blunting. Some blood pressure meds, some NSAIDS, and an antibiotic or so. I think Chron's maybe. Someone posted a link the other day addressing this issue. I would suggest googling something like, "What can cause villous atrophy besides celiac disease?"
  4. trents
    Be sure to mention these circumstances to the doctor doing the endoscopy.
  5. trents
    That's a little confusing in light of the discussion of whole wheat flour vs. white wheat flour. Have you been eating something made of some kind of wheat flour daily for the couple of weeks leading up to the planned endoscopy/biopsy?
  6. trents
    Yes, wheat flour doesn't have to be whole grain flour to have all the gluten. Less fiber but just as much gluten.
  7. trents
    The TTG IGA is one test, not testing for two different antibodies. The TTG is the most specific for celiac disease and the most important one. Absolutely, you should be retested and have this one included for sure.
  8. trents
    The equivalent of at least one slice of wheat bread daily.
  9. trents
    Welcome, Rosie18! Essentially all of the symptoms you list are common characteristics of celiac disease. Has any doctor actually tested you for celiac disease? The first tier of diagnosis is done by checking for specific antibodies produced by damage to the lining of the small bowel by the disease. This requires only a blood draw. Ask a doctor to do a "celiac...
  10. trents
    That sounds like a good plan. It is extremely challenging to eat truly gluten free.
  11. trents
    Do you really need the confirmation given by testing? Seems to me you have figured out that you must avoid gluten. Unfortunately, some health problems still seem to unfold even after going gluten free because of the dysfunction already created in our immune systems before we started gluten-free living. This is especially true for people who suffered from...
  12. trents
    Many celiacs are also soy and dairy intolerant so the combination of the wheat and the soy in the sauce may have been a double whammy. Can you safely consume soy products apart from those that also contain wheat gluten?
  13. trents
    In common use the term "gluten" has come to refer to the particular kind of gluten found in wheat, barley and rye that is famous for causing inflammation in the gut of those with active celiac disease. But all cereal grains contain some form of gluten. The gluten in oats is biochemically different enough from that in wheat, barley and rye that it is safe...
  14. trents
    Does the oatmeal give you any symptoms? Not sure if that level of cross contamination would be enough to produce a valid blood antibody test. And did you know that about 10% of celiacs react to oat gluten like they do wheat, barley and rye gluten? Maybe not the best choice of hot breakfast cereals. And how did you find out it was not gluten free...
  15. trents
    Hmm. Can you sight any research that connects nutritional problems with hernias and in particular, hiatal hernias?
  16. trents
    Also, research has shown that there are other foods and also medications that can cause villi blunting.
  17. trents
    It also needs to be pointed out that many with GERD have a hiatal hernia as a contributing factor. Changes in diet and supplements will not make a HH go away.
  18. trents
    Anemia is also a common problem tied with the aging process, apart from other identifiable medical conditions. Our gut becomes less efficient in taking up nutrients as we age and many older people simple eat much less on top of that.
  19. trents
    Certainly, treating the cause is preferable to treating the symptom when the cause is known and is responsive to functional intervention. That is not always the case, however, especially when the cause is a genetic malfunction. And it can also be true that treating the symptom may be more effective, less costly and more practical than addressing the cause...
  20. trents
    Absolutely! Celiac disease affects the digestion of many, maybe all, foods in one way or another.
  21. trents
    Be careful with peppermint. It tends to relax the LES (lower esophageal sphincter) and can exacerbate GERD. I think Zantac (ranitidine) has been pulled off shelves for sometime now, at least in the USA.
  22. trents
    Two questions: 1. When you have had the celiac blood tests done you say you were on gluten both times. But for how long before the tests? Eating gluten and then eating gluten free for less than two months can invalidate the tests. 2. With regard to dairy, have you considered you may have an issue with the casein instead of the lactose. Or that you...
  23. trents
    This is a good read about vitamin and mineral deficiency testing: https://www.vousvitamin.com/do-i-need-to-have-blood-tests-to-find-out-what-vitamins-to-take/ The author is an endocrinologist in the Chicago area.
  24. trents
    As knitty kitty pointed out vitamin deficiency testing is itself troubled by deficiencies. It can be more helpful to diagnose vitamin/mineral deficiency by symptoms.
  25. trents
    Consider the fact also that you may have developed allergies/sensitivity/intolerance to other foods. This is very common among celiacs, even those who practice due diligence to eat gluten free.
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