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Latest Celiac Disease News & Research:
Everything posted by trents
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I feel like I’m going mad!
trents replied to alexlouise's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Certainly, treating the cause is preferable to treating the symptom when the cause is known and is responsive to functional intervention. That is not always the case, however, especially when the cause is a genetic malfunction. And it can also be true that treating the symptom may be more effective, less costly and more practical than addressing the cause... -
I feel like I’m going mad!
trents replied to alexlouise's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Absolutely! Celiac disease affects the digestion of many, maybe all, foods in one way or another. -
Be careful with peppermint. It tends to relax the LES (lower esophageal sphincter) and can exacerbate GERD. I think Zantac (ranitidine) has been pulled off shelves for sometime now, at least in the USA.
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I feel like I’m going mad!
trents replied to alexlouise's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Two questions: 1. When you have had the celiac blood tests done you say you were on gluten both times. But for how long before the tests? Eating gluten and then eating gluten free for less than two months can invalidate the tests. 2. With regard to dairy, have you considered you may have an issue with the casein instead of the lactose. Or that you... -
Don’t feel hungry
trents replied to Amoretti's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is a good read about vitamin and mineral deficiency testing: https://www.vousvitamin.com/do-i-need-to-have-blood-tests-to-find-out-what-vitamins-to-take/ The author is an endocrinologist in the Chicago area. -
Don’t feel hungry
trents replied to Amoretti's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As knitty kitty pointed out vitamin deficiency testing is itself troubled by deficiencies. It can be more helpful to diagnose vitamin/mineral deficiency by symptoms. -
Consider the fact also that you may have developed allergies/sensitivity/intolerance to other foods. This is very common among celiacs, even those who practice due diligence to eat gluten free.
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Cricket Flour Makes Really Good Gluten-Free Bread
trents commented on Scott Adams's article in Gluten-Free Grains and Flours
Every food item seems to have it's upside and downside, whether it's a prepared product or home made. Anything can be both good and bad it seems, depending on how much of it you eat and what your own medical sensitivities are.- 18 comments
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Cognitive Damage-Celiac Disease
trents replied to JoelW1lls's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Great article, kk. Thanks. -
Don’t feel hungry
trents replied to Amoretti's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Probably due to damage to the villi. Even after going gluten free it can take months - even more than a year - for the villi to experience substantial rebound. And recent studies have shown that the healing may, in some ways, be superficial. There are some cellular structures that when the microscopic magnification is turned up high enough, are not repaired... -
Cognitive Damage-Celiac Disease
trents replied to JoelW1lls's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm with you on this, Scott. Finding out at an early stage in life that one has celiac disease can avoid a lot of health issues down the line. -
Gluten-free Oreos Arrive in January 2021!
trents commented on Scott Adams's article in Gluten-Free Foods & Beverages
About 10% of celiacs react to oat gluten the same way they do wheat, barely and rye gluten. You could be one of them.- 27 comments
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Have you looked into histamine intolerance/mast cell activation syndrome?
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No, I weaned myself off of the PPI last year. It was not easy.
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See my edit in the previous post in answer to your question. H2 blockers are recommended ahead of PPIs because of they produce less side effects than to PPIs and because of PPI dependency issues but they are not as effective in controlling GERD. But the H2 blocker may be enough for some people.
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Famotidine is not a PPI. Just wanted to make sure you realize that. Taking the PPI was for 18 years after celiac diagnosis. I started the med about the same time as the diagnosis so I can't say I gave healing a chance to take care of the GERD before I started the PPI.
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I tried famotidine when I was weaning myself off of 18 years of PPI therapy. It did not seem to help at all. But the issue may have been that it was not gluten free. I ditched it an went with Kirkland (Costco) extra strength calcium carbonate as a bridge. Some formulations of Pepsid/Pepsid AC are not gluten free so maybe you need to check on that. And as...
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Sometimes PPI therapy is needed on a temporary basis to get GERD under control. It really does work well for that. Just covenant with yourself to taper off of them when the situation improves. Toughing it out is not worth a peptic ulcer or Barret's Esophagitis.
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Life is like that, isn't it? Seldom falls neatly into place but you make the best decision you can with the most information you can find and then go from there. We have many people in a similar situation as you. Some of them live in areas of the world where the healthcare system is very inflexible and unresponsive. They have to schedule things like endoscopies...
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I understand your reasoning and it sounds reasonable to me but apparently it doesn't work that way. Those of us who have been diagnosed for sometime and living with celiac disease have come to realize that you have to be armed with information when you visit the doc about celiac disease or potential celiac disease because they generally just don't know that...
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Pretesting gluten consumption to ensure validation of serum antibody testing would be daily consumption of a significant amount of gluten (a slice of bread or several wheat crackers worth) daily for at least 6 weeks and for the scoping/biopsy for at least 2 weeks. I believe this is the standard recommendation. But like Scott, I feel your gluten consumption...
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Connection Between Grapes And Gluten?
trents replied to Flyingmango's topic in Food Intolerance & Leaky Gut
Grapes and especially raisins can also be high in histamines and may cause the symptoms you describe in some people who don't break down histamines well. You may want to look into histamine intolerance/mast cell activation syndrome. -
I think critics of this short production need to realize that many of their misgivings target characteristics that were intentionally built into the film. The design of the film is not so much to communicate information but to convey an experience through depiction of mood and feelings.
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