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trents

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Everything posted by trents

  1. trents
    Proton Pump Inhibitor. Omeprazole (Prilosec) , Protonix, etc. A class of meds that actually blocks the production of stomach acid as opposed to neutralizing it like Tums or Gaviscon. There are also H2 receptor inhibitors like Zantac and Pepcid which aren't as strong as PPIs but may create less dependency. Yes, I was taking the PPI on a daily basis. Took care...
  2. trents
    And yet, B vitamin supplementation is also a recommendation for treating migraines. I have always heard that supplementing with B vitamins is safe because they are water soluble and we just excrete any excesses in our urine. Is this no longer a valid concept? Maybe the science around this has changed.
  3. trents
    Tracy66, just be careful and get vitamins and supplements that are gluten free. Not sure where you live but Costco is a great source for gluten-free vitamins and supplements through their Nature Made line if your are in the USA and near one.
  4. trents
    I'm sorry but your doctor was incorrect when saying that you only have to be eating gluten for two weeks to get a valid antibody test. Unfortunately, many general practitioners and more than a few GI docs are not up to speed when it comes to diagnosing and advising patients with regard to celiac disease. Two weeks may have been acceptable for the endoscopy...
  5. trents
    Tracy66, also be aware that serum vitamin and mineral level testing may not tell the whole story since they don't measure what is actually getting to the tissues. Deficiencies can also be masked in some cases by supplements. A case in point is a B12 deficiency being masked by folate supplementation. Really, it can be better to observe the effects on the body...
  6. trents
    Niacin supplementation gives me tummy burn. I know it has a reputation for doing that for some people. It's supposed to be transient but having just recently gone through PPI elimination withdrawal and come out on the other side I'm still very wary of things that irritate my gut.
  7. trents
    Good stuff, PB! Thanks. It was a much needed post.
  8. trents
    Amaryllis3, welcome to the forum! First, I wonder which serum antibody tests your doctor ran as many doctors don't run the full panel of tests that can be done. Do you have that info? Second, I would pursue an endoscopy and a biopsy of the small bowel to check for villi damage. But realize, that with both the blood tests and the endoscopy/biopsy...
  9. trents
    Have you been checked for a peptic ulcer? And if you are only taking Omeprazole PRN, why not try something less likely to cause other health problems like Tums as needed? Please keep in mind that, a far as I know, there haven't been any good longitudinal studies done on the safety of melatonin. And if, as you say, it has a similar chemical structure...
  10. trents
    Have not heard of this problem with nausea before in connection with celiac disease. But if I were to take a wild guess I would suspect it may have to do with vitamin and mineral deficiencies. Celiac disease damages the villi of the small bowel where most all of our nutrients are absorbed. This typically results in vitamin and mineral deficiencies. Are you...
  11. trents
    Thanks for sharing your experience. It serves as a good warning to others in the sense of realizing that labs can make mistakes and so it's a good idea to go at it from different angles.
  12. trents
    Tracy66, knitty kitty gives good advice. Many of the medical condition spinoffs from celiac disease are nutritional deficiency related. The damaged villi in the small bowel causes reduction in the ability to absorb vitamins and minerals. Also, I wanted to say that celiac disease is not an allergy. It is an autoimmune condition. That can be a little difficult...
  13. trents
    Not at all. Just wanted to get your attention. Sorry if I came across too harshly.
  14. trents
    You are most welcome and I hope what I have shared will prove to be of help as you seek to get a handle on your daughter's health issues. Concerning the anaphylactic reaction to egg protein the same way as you would a bee sting in so far as how it engages the immune system.
  15. trents
    Nothing bakes as well as the old cast iron wood stoves my grandma used on the farm. The thickness of the oven chamber walls was much greater and contributed to more even heating.
  16. trents
    I believe that anaphylaxis involves a different immune system pathway than does celiac disease or other food intolerances. Very many people with celiac disease have few or no GI distress, at least in the beginning. We call that "silent" celiac disease. Has your daughter been tested for "pernicious" anemia? This is where there is a lack of something...
  17. trents
    Sounds like you have a good plan. You might also need to consider some lifestyle changes like avoiding caffeine and acidic spicy foods, avoiding bending over soon after eating, etc.
  18. trents
    They are naturally gluten free but that doesn't rule out cross contamination with wheat, barley or rye in handling and packaging. Could be an issue for more sensitive celiacs and gluten intolerant people. Chia seeds make me quite ill but I think it's not a gluten issue but an insensitivity to the natural defense chemicals in the seed coat such as saponins...
  19. trents
    CBKilpatrick, you are blessed to have a gastro doc who has an open mind and doesn't just operate on by the book autopilot and who is willing to listen to you and work with you.
  20. trents
    I think you are fooling your self when you say, "I was previously gluten intolerant but not quite celiac." Whether it's gluten intolerance or celiac disease you are talking about you don't get over either. They are life-long medical conditions baked into your genes. And gluten intolerance is often a precursor to celiac disease. What kind of testing have you...
  21. trents
    And yet most of us celiacs make up for these several enrichment vitamins with supplements and iron is found in abundance in red meats. Even without supplements it is easy for most people without celiac disease to get all of these nutrients in a well-rounded non wheat diet. I think enriched bread is a carryover from a bygone era when when poverty was more...
  22. trents
    Very valuable input, ravenwoodglass, as it seems to definitively answer the question of whether or not one can have celiac disease without the classic genetic profile generally associated with the disease.
  23. trents
    I have some age-related hearing loss and found the audio to be very muddled. Only caught a word here and there. However, the broad themes of the message were still easily discernable through the acting and the cinematography. It does a good job of conveying the huge adjustments the newly diagnosed celiac must undergo - learning to shop and cook all over again...
  24. trents
    To be honest, I don't think he cares enough to be interested in doing anything about it.
  25. trents
    I've tried. He's a very social person who dines out frequently and it's clear to me that he has decided that is more important to him than enduring the health risks posed by continuing to consume gluten. In addition, I think he is largely asymptomatic.
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