Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

trents

Moderators
 View Profile  See their activity

  • Posts

    7,640

  • Joined

  • Last visited

  • Days Won

    424

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    https://www.beyondceliac.org/research-news/View-Research-News/1394/postid--110185/?utm_campaign=Research Opt-In&utm_source=hs_email&utm_medium=email&utm_content=63728458&_hsenc=p2ANqtz-94UI2Bnq5AyVwicTvM9xl-okSsFjDZKboiy6yL3oVT1kKe0-kxMX9i7HwZUWgM66kodg0tM-Nymv9vFIDcEw_S_K0iyQ&_hsmi=63728458 Edit: Note,...
  2. trents
    I have a suggestion for you. Sit down and develop a list of more detailed, targeted questions you would like to have data on that would provide a framework for people's responses. I feel like your current questions are too vague and too general to be very helpful to people trying to provide input for your writing project or to you trying to distill and...
  3. trents
    Whatever really works, doesn't have side effects that are worse than the disease it is addressing and is affordable is fine with me, Ennis.
  4. trents
    CL, I think you miss the point the referenced article was trying to make and that I was expressing agreement with. In fact, in your response you actually reinforce the point the article was making. The article was not (nor was I) saying that celiac disease cannot be successfully controlled by scrupulous avoidance of cross contamination. What it was saying...
  5. trents
    This is truth: https://www.beyondceliac.org/community/newsletter/?utm_campaign=Newsletter&utm_source=hs_email&utm_medium=email&utm_content=63591229&_hsenc=p2ANqtz-8LamDIJvpuutXMJO2cvHeKlmhe9MWb8EOS02Ah24ZTk60vhYXJtVFQlXSshFz9beMtWnmnrjILUMQLlS9Z0NIydUdqsQ&_hsmi=63591229 We have been beating our heads against a wall for years. We not...
  6. trents
    I was thinking refractory as well and it's turning out to not be so rare as was previously assumed. You might also look at a experimenting with a ketogenic diet which would essentially eliminate starches and most of the sugar in your diet. If you are suffering candida (yeast) overgrowth it likely would really help with that. But with no eggs in your...
  7. trents
    Gary, You say you were Dx with Celiac Disease 20 years ago. Are you being compliant with the celiac disease gluten free diet? You did not mention that. I was diagnosed with celiac disease about 15 years ago. One of my blood abnormalties was low iron levels. I started taking an iron supplement and still do. My iron levels are now normal. The supplement...
  8. trents
    The thing that needs to happen is that you need to go off of the gluten-free diet for two or three weeks before having that Celiac testing done again. You may need to explain the circumstances to your care provider so they can justify a repeat of the blood work. But I would not assume anything at this point about what is causing these symptoms.
  9. trents
    Too many carbs, not fat intake as was preached to us for decades, is the main cause of obesity for most of us who live in first world countries. Lately, I have cut way back on carbs and substituted some of those calories with fat calories (eggs, whole dairy products, nuts and seeds and yes, even "spam"). This, combined with moderate regular exercise, is causing...
  10. trents
    What medication? Is there actually something out on the market for Celiacs? There's been a lot of experimentation and maybe some things in trial but is there actually a med out now that works?
  11. trents
    Tablets? Do you refer to some kind of medication or to electronic devices?
  12. trents
    I had EB at about age 20 when I was at college. Started showing definite signs of celiac disease at about age 37 (elevated liver enzymes for, at the time, no known reason) and was finally dx'd with celiac disease in early 50s. It has long been postulated that certain stressors like viral infections can trigger adult onset celiac disease but this research...
  13. trents
    Sounds like that might be the case. Having said that, do you realize that a forum for Celiac Diseases is not about allergies to wheat? Celiac Disease is not an allergy. It is an autoimmune disease triggered by ingestion of wheat that causes damage to the small bowel lining.
  14. trents
    What's interesting to me is that the hypo acidity is linked to dermatitis herpetiformis but not villous atrophy. That is if I understood it correctly.
  15. trents
    Never heard of that test. There are certainly non Celiac reactions to wheat and gluten but whatever it is it seems clear to me your daughter needs to eat gluten free if you are sure that wheat/gluten are causing these symptoms.
  16. trents
    I would push for a hidascan for gallbladder issues. How long have the pain under the ribs, jaundice symptoms been going on? The whole two years?
  17. trents
    I think your hunch about this being either problems with the gallbladder or pancreas is probably correct. If you are jaundiced that seems like a tip off to me of problems with inflammation in this area of the body. Please don't dilly dally in getting this looked into. These conditions can become life threatening. Do what you need to do, through NHS or apart...
  18. trents
    I had bi-lateral pulmonary embolis after Celicac dx and I suspect I had several small ones over the years before celiac disease dx. In my case it turns out I have a genetic condition called Factor 5 Leiden which, without going into the biochemistry of it all, causes my blood to clot too easily. After I landed in the hospital with the bilateral clots I was...
  19. trents
    I just want to add, because this was not clear to me from your narrative, that alcoholic beverages are not to be considered gluten free by default. All spirits can contain at least traces of gluten unless they are produced from gluten free grains/plants and stored in containers not contaminated by gluten. As an example of the latter, wines are sometimes stored...
  20. trents
    Good questions and there are not necessarily definitive answers. First, many true Celiacs are asymptomatic or have very minor symptoms in reaction to the ingestion of gluten. That doesn't mean there is not damage to the small bowel villi going on. They are finally diagnosed as having Celiac disease usually because other things are getting out of whack...
  21. trents
    http://theceliacmd.com/2016/02/gluten-and-keratosis-pilaris-chicken-skin/ "There are no studies indicating a direct correlation between gluten ingestion and keratosis pilaris. However, it can be caused by vitamin A deficiency or essential fatty acid deficiency, both of which can occur with impaired absorption. If you have celiac disease or gluten sensitivity...
  22. trents
    Out of ideas. Doesn't sound like fibro to me as there is the asymmetry thing and you don't mention other FM symptoms like fatigue. Doesn't sound rheumatoid in nature either.
  23. trents
    That is bazaar! Have you had any neurological testing done, say like scans of the spinal column or brain? The asymmetrical nature of it makes me wonder if there is a neuro basis to your symptoms. Shingles is another possibility that comes to mind.
  24. trents
    To answer your question, the finger prick test is accurate as far as I know. I don't know why that would be any different than a lab draw with syringe. Both get blood. Anemia is extremely common with Celiac disease. The damaged lining of the gut caused by the auto immune driven inflammation characteristic of Celiac disease significantly reduces the...
  25. trents
    How long have you been gluten free? There can be an adjustment period, sort of withdrawal, after going gluten-free. May we ask your relative age? All of the things you describe have been associated with Celiac disease but usually not all at the same time. Have you been tested for rheumatoid processes and fibromyalgia?
×
×
  • Create New...