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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Good stuff, Kate333. Thannks! I can understand your frustration and pain. There is so much being learned about Celiac Disease these days. We know so much more that we did 15-20 years ago when I was first diagnosed. Slowly, doctors are catching up to the research but that seems to be the way it is with most every disease. Personally, I developed celiac...
  2. trents
    My apologies if I misrepresented what you said but the remark about Big Pharma seemed to qualify your previous remark and imply (to me at least) that Big Pharma studies did show a link. Granted, I have not researched this. But what I can tell you from my own personal experience is that PPIs did give me release from extreme discomfort (heart burn) and...
  3. trents
    Some studies may never happen if not for "big pharma". Just because studies are done by big pharma doesn't automatically disqualify them as being legitimate. For all their evils, it may also be true that we owe a lot to the big pharmaceutical companies. And whereas you might find doctors who claim BE and EC are not linked to long term acid reflux, I don't...
  4. trents
    I wouldn't know about that. But I think 20mg of Omeprazole is the most commonly prescribed dosage for that med. I believe it would be considered the "standard" dosage. But traditional antacids such as Tums and Gaviscon can be helpful in bridging when you are trying to get off a PPI and they should be well-tolerated. Ultimately, the way any of those things...
  5. trents
    I caution you against going off a PPI "cold turkey". I you have been on a PPI for any length of time you are likely to get a gastrin rebound, a well-documented effect. I have tried going off my PPI cold turkey twice but with painful results that took a week or more to get back under control. Getting off a long term administration of a PPI can be very difficult...
  6. trents
    Scott, are there cosmetics that have gluten-free on the label? I have not seen that but I don't look for it either in those kinds of goods so maybe I just missed it.
  7. trents
    I also think it is true that transdermal delivery of any substance is less, much less efficient than ingestion or inhalation.
  8. trents
    Found this: https://www.mayoclinic.org/diseases-conditions/celiac-disease/expert-answers/celiac-disease/faq-20057879#:~:text=Some people develop a form,by skin contact with gluten. According to this article from the Mayo, transdermal guten exposure is not a danger.
  9. trents
    Kate333, I'm not so sure about that. If consumers would start asking, "Where is this made" and refuse to purchase meds and personal health products not made in the USA I think over time it would happen. But of course, this presupposes there are options available. I seem to remember early in his tenure, President Trump leaned on some automakers to keep their...
  10. trents
    Have any studies been done on the actual effect on Celiacs of exposure to gluten transdermally? I could be very wrong but it strikes me that this might be an unfounded fear as long as hands are washed after application and it is kept away from the lips and the mouth.
  11. trents
    Yeah, as CL said, pharmacies change suppliers (especially for generics) like you and I change socks. It's all about where they can get them the cheapest at any given point in time. Also, there's no guarantee that even with name brands the formulations won't change. And it can be difficult to get a definite answer when trying to determine if a med has gluten...
  12. trents
    Sorry, CL I see that I misread your post the first time.
  13. trents
    CL, why do avoid gluten in shampoo but are not concerned about it in lipstick and toothpaste?
  14. trents
    I think it also needs to be said that this is one of the hardest concepts to grasp for newly diagnosed Celiacs, that something you are eating is causing the body to attack itself. I think that's why it's so hard for those new to the experience to grasp that it is not an allergy.
  15. trents
    People can have an allergy to gluten (as they can to almost any protein) but Celiac disease is classified as an autoimmune disease. When you read food labels gluten is found in the allergy information but that's because the food companies don't have a category for autoimmune disease triggering ingredients. Antibodies are produced anytime the immune system...
  16. trents
    That sounds like a plausible theory. Ranitidine (Zantac) is not a PPI but it has the downside of users developing tolerance to it such that the dosage needs to be increased. Have you tried different PPIs and would your insurance cover alternative PPI's or is it possible that your PPI dosage could be lowered? The bloating might be caused by too low of a PH...
  17. trents
    Let me say that your next step should be to get tested for Celiac Disease. It is not an allergy to wheat, it is not an intolerance. Celiac Disease is an autoimmune disease. The ingestion of gluten triggers an inflammatory response in the small bowel that damages the "villi" (the lining of the small bowel where nutrient absorption takes place). celiac disease...
  18. trents
    I would not think a PPI would cause these symptoms. If anything, it should eliminate it being an esophagial issue as long as the PPI dosage is giving you good coverage.
  19. trents
    Have you been officially diagnosed with Celiac disease? I'm just wondering why you would purposely eat something with wheat in it if you know it gives you headaches.
  20. trents
    Not to alarm you, but upper back pain and nausea can be associated with a heart attack in progress. Particularly in women, heart attack symptoms can be atypical. That is, not in the chest where you would expect. And we all know too many people who went in for a physical and the doc said, "Your heart is in good shape," and they drop dead the next day.
  21. trents
    But you also said the pain is associated with arm movement. That doesn't add up to gastritis. It sounds more like a neuro-muscular problem to me. I sometimes get pain in my back around the scapula area. My physical therapist tells me it is referred pain from nerve irritation in the facets of the cervical spine. I can push on the spot where I feel the pain...
  22. trents
    But there was no evidence of esophagial ulceration or neoplasm? Correct?
  23. trents
    When is the last time you have had an upper GI done?
  24. trents
    Commercial Playdough does contain gluten so if after handling it you put your fingers in your mouth or touch the straw/spout on your water bottle you might be getting a small amount of gluten contamination but given your state precautions, it seems unlikely. Having said that, I would look for other sources of possible glutening such as changes in the...
  25. trents
    There are often various withdrawal symptoms when going off gluten. Endoscopies are done to check for Celiac Disease. Damage to the villi (tiny finger-like projections in the mucosal lining of the small bowel) is the defining characteristic of Celiac Disease as opposed to a gluten allergy. The villi create surface area for the absorption of nutrients...
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