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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Eliminating carbs in your diet also eliminated the major sources of gluten. The next step would be eliminating those processed foods, meds and supplements that contain trace amounts of gluten and to give attention to cross contamination.
  2. trents
    Some of the symptoms you describe are classic Celiac Disease symptoms. The rash for instance. Could that be dermatitis herpetiformis? Celiac Disease is an autoimmune condition and when you have one autoimmune disease it is common to have others such as RA, Lupus, diabetes, Hashimoto, etc. Bone demineralization (osteoperosis, osteopenia) is also very...
  3. trents
    Your reply is confusing. Did you mean to say, "unfortunately there is no such group"?
  4. trents
    Ruqia, Celiac does not go away. It is in the genes of your children just like the color of their eyes. One suggestion I have is to try and find other children with Celiac Disease that your kids can be friends with. Is there a Celiac support group where you live? If so, that might be the place to start.
  5. trents
    Do you know of any brands that do have gluten? Sherbert is not something I would expect to find gluten in.
  6. trents
    I agree with GFinDC. The benefit of the endoscopy/biopsy for some people at the stage you are in is more psychological in the sense of confirmation to help them stay on the band wagon. Sounds like you don't need that.
  7. trents
    For sure, even small traces of gluten from cross contamination can make some celiac suffers very ill. But not all are that sensitive. There is tremendous variation. Having said that, absence of symptoms is not necessarily a reliable indicator of no cross contamination or no stress to the gut villi.
  8. trents
    You would need to be eating significant amounts of gluten for at least 6 weeks before testing for it to be valid. A colonoscopy would not be used to diagnose Celiac Disease since celiac disease does damage to the small bowel lining. A colonoscopy is for checking the large bowel. What you need is an endoscopy, aka, upper GI scoping and biopsy. There are...
  9. trents
    Three things: 1. If you have been eating gluten-free (or trying to) for awhile, the endoscopy and biopsy may be invalid or inconclusive just as with the blood tests. 2. Dude, you must get a handle on cross contamination. You need to be more diligent about this. You are shooting yourself in the foot if you are trying to eat gluten-free but not being...
  10. trents
    All cereal grains contain gluten but the gluten is different in each one. The gluten in wheat, barley and rye (and for some people, oats also) is very similar and is what causes the celiac reaction. So in common parlance "gluten" has come to refer the gluten in wheat, barley, rye and maybe oats. The gluten in corn is dissimilar enough to the gluten in those...
  11. trents
    I've had several endoscopies performed over the years and they are a quick and easy procedure. Doesn't require bowel prep, just no food after midnight the day before. Out patient procedure, conscious or light sedation and very minimal risk. Not painful or unpleasant at all. I understand your concern about COVID but personally, I think the peace of mind from...
  12. trents
    Mail/post? Do you mean the postal service via snail mail? What country are you in? They don't do that here in the USA. For me and many others in the USA, we can check test results via our medical provider's online tool. Each patient has an account that can be accessed online where we receive messages and test results and can even schedule appointments.
  13. trents
    Cindy, what difference does living in a small town make in this matter? Are you saying you don't have many choices when it comes to choosing physicians knowledgeable about Celiac Disease? I live in a small town in the middle of a very rural county in Washington state. I don't feel handicapped by that. There is so much knowledge on the Internet about medicine...
  14. trents
    "Receive them in the post"? What post do you refer to? Do you mean in the follow up visit with the doctor? Did you have an endoscopy (aka, upper GI)? About a week I think.
  15. trents
    When you cheat it may take two or three weeks to recover. Ain't worth it.
  16. trents
    Do you get sick when you drink hard distilled spirits from other sources such as corn or potatoes?
  17. trents
    The fatty stools with dairy may be due to the fat itself in the dairy. Do you get this if you drink skim milk?
  18. trents
    I use ON Gold Standaad Chocolate flavor100% Whey sold by Costco and Bob's Red Mill Soy Protein Isolate without any issues. They are both adverstised to be gluten-free. Of course, the problem with any question like this is how sensitive to trace amounts of gluten is the individual? We know now that the FDA 20 ppm standard for gluten free labeling is not not...
  19. trents
    The problem with going gluten-free before testing is that it will invalidate the tests. You need to be eating a significant amount of gluten daily for at least 6 weeks for the testing to be valid. Another option is ordering a home test kit and send the samples off to a lab for testing. But I hear your pain. It's a dilemma in the present COVID situation.
  20. trents
    Your symptoms are classic for Celiac Disease.
  21. trents
    Accept their ignorance for what it is and don't let it become a wedge that separates you from them. Your marriage will suffer if you can't get along with hubby's parents. Aside from that, when you get home, scrub the kitchen, appliances and cookware down thoroughly. Consider getting some educational material on celiac disease into in laws' hands. Also...
  22. trents
    When going back on gluten for testing I think a minimum of six weeks of daily significant gluten consumption is recommended.
  23. trents
    Are you asking these questions because you think you might have Celiac Disease or because you think you might just be gluten intolerant? They are two different conditions.
  24. trents
    I agree with Scott's advice, Hunter. We advise getting a formal diagnosis but the delay in scheduling testing combined with severity of symptoms makes that impractical sometimes. Our concern is that people with a formal diagnosis are less likely to rationalize and cheat on their intentions to eat gluten-free. There may also be some advantages to a formal...
  25. trents
    Sarah, there have been several form participants of late whose blood tests were negative but who have definite symptoms of Celiac Disease. Some have even had positive intestinal biopsies for Celiac Disease after negative blood tests. So some questions for you. 1. Do you know what specific blood tests were done? Some doctors are not up on which ones to...
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