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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I was diagnosed with celiac disease about 16 years ago but a couple of upper GI endoscopies within the first three years of diagnosis showed villi blunting still unchanged. I was discouraged then because I was making every effort to eat gluten-free. I had pretty much concluded I had the refractory type of celiac disease. A couple of weeks ago, however, I...
  2. trents
    Will do. I'm already taking loads of B vitamins and some magnesium supplementation. I have to be careful with magnesium and zinc supplementation because they definitely have a laxative effect on me.
  3. trents
    Also found this: https://www.ncbi.nlm.nih.gov/pubmed/29475774 The link above particularly relates low DAO with migraines, which is what I need help with as a Celiac. Sounds promising and I note there seemed to be no side effects with the supplementation: "No adverse effects were registered in patients treated with DAO enzyme." Where can...
  4. trents
    Scott, What does the testing involve?
  5. trents
    It's no secrete that foods high in nitrates (found in bacon and other processed meats, for example) seem to trigger migraines in some people. Now there is research to indicate that an abundance of certain bacteria in the digestive system may be the key to this phenomenon. These bacteria convert nitrates into nitrites that then enter the blood stream and are...
  6. trents
    No, I do not use aspirin but do use other NSAIDs occasionally. I am on warfarin for a genetic blood clotting disorder and that, together with the damage to SB already caused by Celiac Disease, I am very careful to not use NSAIDs frequently. I do use them occasionally for ortho-related pain because they work so well and are non-narcotic. Acetaminaphen doesn...
  7. trents
    I suspect the same thing, notme! There are times when I can eat something and it doesn't bother me and other times it makes me quite ill. I think there are a lot of variables here. One of them is how things are processed. There are several seed foods that give me no problem if they are washed and/or cooked. But they reliably make me ill if I consume them...
  8. trents
    Our systems are all so different. Corn (and rice) are easiest on me whereas I know corn and corn products give lots of others issues. Good suggestion, notme! about varying the diet to avoid histamine buildup. I've thought about that. I tend to get in ruts with my menus.
  9. trents
    https://www.beyondceliac.org/research-news/View-Research-News/1394/postid--114197/?utm_campaign=Research Opt-In&utm_source=hs_email&utm_medium=email&utm_content=72478196&_hsenc=p2ANqtz-8cBCeWpQSG8tjxT3AC5kO9JlVU9sKiGcArKDefDbz0UI0-FrJiSWvmuEAJ7HWszix_3WVyFj1AaK8h8iqwb5bG0LBdew&_hsmi=72478196 A potpourri of issues discussed in this...
  10. trents
    Meat and dairy seem to be the easiest things for me to digest. I know that is the opposite of many peoples' experience. I can do essentially all veggies as long as they are cooked well. I don't do good with "woody" things. Posterboy, sometimes it just boils down to pick your poison. None of us likes taking these prescription meds but it might...
  11. trents
    What were you originally put on H2 antihistamines for if I might ask? Was this done to to treat reflux issues or some other allergic condition?
  12. trents
    The problem with H2 blockers has always been you build up a tolerance to them whereas that is not a problem with PPI meds. In addition, PPIs are considered more appropriate for GERD whereas H2 blockers are generally used for peptic ulcers: https://www.healthline.com/health/gerd/h2-blockers#h-receptor-blockers-vs-proton-pump-inhibitors-ppis
  13. trents
    Meat and dairy seem to be the easiest things for me to digest. I know that is the opposite of many peoples' experience. I can do essentially all veggies as long as they are cooked well. I don't do good with "woody" things.
  14. trents
    Thanks for the links. Lots of reading there for me to do. Concerning low stomach acid and inability to digest proteins, I am on long term PPI therapy for GERD. Tried going off of them but just can't. Lab work always shows my total protein and albumin are borderline low but I have always attributed that to leaky gut, i.e., losing protein to the lumen...
  15. trents
    Posterboy, your analysis agrees with my experience with some of these seeds in that the difference maker can often be how they are prepared and the effect that has on the plants/seeds natural defense mechanisms. At least, I can see that very clearly with quinoa in my real life experience. I have not really experimented with chia or flax. Last I tried it,...
  16. trents
    I have had three episodes of protracted emesis and diarrhea in the past two and a half weeks. I realized the common denominator was that this happened within a couple of hours of eating a gluten free snack containing hemp protein called JoJo's Guilt-Free Chocolate. Looking back about a year ago I remember having the same problem after consuming a health shake...
  17. trents
    For quite some time I have been looking for a vendor that sells corn bran without success. There must not be much of a market for it. Eureka, I finally found one and they were able to confirm with their supplier that it meets the current gluten-free standard of <20ppm of gluten. In case anyone is interested, here's the link: https://shop.honeyville...
  18. trents
    https://www.beyondceliac.org/research-news/View-Research-News/1394/postid--113788/?utm_campaign=Research%20Opt-In&utm_source=hs_email&utm_medium=email&utm_content=72057667&_hsenc=p2ANqtz-8yrOYJPTT1rDzm2fM-8c6LNDfji6dWJBX6wgzPHwxkG5NAnnnX8dB-mRkjQxwnBpdS6lACeNHo_2tE-jEk-0ThBe1yEw&_hsmi=72057667 This study provides information that...
  19. trents
    For me, seems like there are times when the immune system just gets cranky for some reason and I get extra aches and pains until it settles back down. It's good to keep in mind that people with celiac disease have dysfunctional immune systems that seem to have a mind of their own. It's also extremely common to develop other autoimmune diseases once you get...
  20. trents
    All this continues to point to the need for an effective vaccine or gluten neutralizing oral agent. We're losing the battle with regard to gluten-free eating.
  21. trents
    One of the dynamics in these things for couples and households is having to compromise with the other people involved so as not to be able to tailor your diet to the degree you would like to. And I don't find it very practical to try to eliminate canned and processed foods from your diet when you live in a place where fresh foods are not available much of...
  22. trents
    FruitEntusiast, I appreciate your post as it made me think histamine intolerance may be be causing my headaches and migraines that I seem to get during the night when I'm sleeping almost every night, especially in the spring season. I'm thinking my histamine levels are always elevated from various low level food-related allergies and various environmental...
  23. trents
    What does NCGI stand for? We have become a culture of acronyms. I note your forum handle is FruitEnthusiast. Your probably already know this but some fresh fruits and lots of other foods either trigger the release of histamines or are antagonists for the enzymes that break them down: https://theceliacmd.com/articles/histamine-intolerance-causing-symptoms...
  24. trents
    Several of you have mentioned multiple BMs daily as a symptom of refractory celiac disease, relapse, cross contamination, etc. I just want to say that having more than one BM daily is not necessarily symptomatic of a disease process. That is quite normal for a lot of people, as is not having a BM every day. It certainly can be, particularly if it is...
  25. trents
    Better I think for the sake of input from he community if you will copy and paste the lists into a post.
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