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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I'm sure many of you are in the situation where a celiac is living (and eating) in the same house with non-celiacs. Last night I was reminded of how important it is in these situations to extra care in packaging/labeling foods in such a way that celiacs don't accidentally consume gluten containing foods that may look very much like their gluten free...
  2. trents
    I think kareng probably hit the nail on the head. You are absorbing nutrients better. And to pick up with what cyclinglady added, for years the medical community villainized fat and we were told to eliminate as much fat from our diets (especially animal sources and tropical oils) as possible. That whole approach is now being called into question and...
  3. trents
    I have found, and I think a lot of other Celiacs would agree, that we cannot do a good job of eliminating gluten from our diets when eating out, even when being conscience food detectives.
  4. trents
    I was just using ataxia as an example of a non-celiac gluten-related neurological disorder. Yes, you would need to go back on gluten to get a valid blood test screen and if you have been off of gluten for a significant period of time so as to allow for healing of the small bowel mucosa then an endoscopy would not be definitive either. Have you totally...
  5. trents
    Zach, There are also gluten-related neurological problems (such as ataxia) that are not caused by Celiac Disease. Not all people negatively affected by gluten have Celiac Disease. If you have not done so, you need to get tested to find out if you actually have celiac disease. The first step is a blood test which if positive, needs to be followed up by...
  6. trents
    It's not unusual for me to go for months without a migraine. When I get them, they come in clusters. Too early to draw any conclusions yet.
  7. trents
    Gut health is turning out to be related to more and more medical issues as time goes on. It is a biome that is very complex, however, and we are not even sure at this point what constitutes a healthy balance of microbiota. We have been able to identify some things that apparently can upset that balance such as overuse of antibiotics and long term PPI use...
  8. trents
    CL, thanks for the clarification. I was asking liv if the h1 she was taking was making her drowsy and assuming she was using one of the first generation antihistamines. But I was confused about the h2 not being a second generation antihistamine.
  9. trents
    CL, are you responding to what I asked in quoting my post. I think you are saying what I said or what my question to live implied.
  10. trents
    Live, does the h1 make you sleepy? Why not some of the newer antihistamines (like Zyrtec) that aren't so sedative? Do they not have the same beneficial effect for the the symptoms you are treating?
  11. trents
    I have recently begun a three day rotation of breakfast foods and supper variation takes care of itself. I sometimes get in a rut with lunches (Kirkland protein bars and I ate all the oatmeal ones and now on the dark chocolate ones, unfortunately). Doing in a turkey cheese sandwich for lunch every two to four days. Haven't had a migraine of late.
  12. trents
    I'm still not seeing it in those links. The connection between tryamines and histamines, I mean. Are you equating them?
  13. trents
    Posterboy, sorry if there was confusion about what I said regarding Imitrex. To be clear, for me, Imitrex is an effective antidote for migraines. Works best if I take it at the first signs of headache coming on but if I wait longer it still works well but takes about 45 minutes to begin working.
  14. trents
    Posterboy, I did not see in this link you provided any mention of a connection between tryamine and histamine storms. "But my bet is on Tyramine ....it is connected to a histamine storm. Here is a nice Webmd article on it. https://www.webmd.com/migraines-headaches/tyramine-and-migraines#1" Did I miss something?
  15. trents
    "The reason the Imitrex triggers your histamine storm is MAO/DAO shares the same pathway." Huh? Imitrex seems to counteract the effects of histamine storms I'm thinking. It takes away a migraine which can be triggered by high histamine levels. Imitrex is a vasoconstrictor. Most medical people feel migraines are brought on by dilation of the blood...
  16. trents
    My head is spinning!
  17. trents
    My labs are all in the normal range now. Total protein and albumin are near the low end of normal but that is an improvement. For 20 years one or both were below normal. That includes about a 6 or 7 year pre celiac disease Dx span. I've been on PPI therapy for GERD/hiatal hernia for 16-17 years. But all this discussion has started me thinking that when...
  18. trents
    Yes, I am aware that the sulfites in wine can be the culprit. But thanks for the reminder. Sometimes with multiple options it can be difficult to sort out. I recently switched to Mg Gycinate and so far no issues.
  19. trents
    If the pills don't work with the wine test, I can take my Imitrex which does.
  20. trents
    Thanks for the info and the links, Posterboy. I note one factoid from the last link you gave that caught my eye and that is a risk factor for SIBO associated with low gastric acid. Since I'm on long term PPI therapy, that could be relevant to me. I wonder how hard it would be to get a primary care provider to order a breath test. But then again, those breath...
  21. trents
    Well the DAO pills came last week but I'm kind of at a loss as to how test their efficacy. I've been migraine free of late. I'm thinking I'll have to buy a bottle of wine to test this. If I drink a full glass of wine it will almost always give me a headache and alcoholic beverages are one of the high histamine foods you see in most lists. But some people...
  22. trents
    Not sure if my primary offers the FIT annually but I'm sure she would be willing to order it again seeing as how it was positive recently. Yes, it would be prudent. I agree.
  23. trents
    I assume you mean the FIT when you inquire about the GI doc repeating the test. He did not mention that and I got the impression he's not a real fan of the FIT since a positive result can be produced by so many things that are just transitory in nature. But I'm sure my primary would be open to it.
  24. trents
    I recently had an upper GI endoscopy and a follow-up visit with my gastro doc. While waiting for him in the exam room I was reading the headlines of some medical research articles he had pinned to the bulletin board that had to do with PPI research. At the end of my follow-up visit with him I asked him about some of those things on the bulletin board. The...
  25. trents
    I was diagnosed with celiac disease about 16 years ago but a couple of upper GI endoscopies within the first three years of diagnosis showed villi blunting still unchanged. I was discouraged then because I was making every effort to eat gluten-free. I had pretty much concluded I had the refractory type of celiac disease. A couple of weeks ago, however, I...
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