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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. Abolutely! All the issues you described have been tied to Celiac disease. Have you been diagnosed with Celiac disease yet? And if so, are you being conscientious in avoiding gluten? If you have not been diagnosed you need to have testing done. But make sure you have not gone off gluten until after the testing or the testing will not be accurate.
  2. "One of the reasons I push a Paleo, Keto, or Atkins diet at people recovering to hit as many birds as possible in one go." Agreed!
  3. Good read and very thought provoking. Something a lot of people who thought they were gluten intolerant but have been tested and found not to have the villi damage characteristic of celiac disease need to explore. But it needs to be emphasized this is only applicable to those experiencing digestive problems when consuming wheat, barley and rye who are...
  4. Fact is, very few celiacs who are making an honest effort to eat gluten-free are actually managing to do so. https://www.beyondceliac.org/research-news/View-Research-News/1394/postid--110252/?utm_campaign=Research Opt-In&utm_source=hs_email&utm_medium=email&utm_content=64072612&_hsenc=p2ANqtz-8b41qAYaG_kvewkOoyekrDyAqUp...
  5. You really do need to get tested. The earlier you catch it the less likely serious and permanent damage to your body will occur. One of the Celiac associated medical problems is osteopenia/osteoporosis because of poor mineral absorption.
  6. First, celiac disease itself is an immune disorder. Specifically, it is and "autoimmune" disorder. So it represents a dysfunction in your immune system to begin with. If you are talking about infectious diseases, the connection may have more to do with poor nutrient uptake due to damage to the small bowel mucosa (villi), which is where most nutrient absorption...
  7. Not everyone is in a situation to "cook like ma Inglalls". That in itself has to be socially limiting, even if you only take into consideration the time involved. I think what we're looking at here is those many times most of us don't have the total control we would like over what we eat as when we go to a restaurant or eat at someone else's home.
  8. https://www.beyondceliac.org/research-news/View-Research-News/1394/postid--110185/?utm_campaign=Research Opt-In&utm_source=hs_email&utm_medium=email&utm_content=63728458&_hsenc=p2ANqtz-94UI2Bnq5AyVwicTvM9xl-okSsFjDZKboiy6yL3oVT1kKe0-kxMX9i7HwZUWgM66kodg0tM-Nymv9vFIDcEw_S_K0iyQ&_hsmi=63728458 Edit: Note,...
  9. I have a suggestion for you. Sit down and develop a list of more detailed, targeted questions you would like to have data on that would provide a framework for people's responses. I feel like your current questions are too vague and too general to be very helpful to people trying to provide input for your writing project or to you trying to distill and...
  10. Whatever really works, doesn't have side effects that are worse than the disease it is addressing and is affordable is fine with me, Ennis.
  11. CL, I think you miss the point the referenced article was trying to make and that I was expressing agreement with. In fact, in your response you actually reinforce the point the article was making. The article was not (nor was I) saying that celiac disease cannot be successfully controlled by scrupulous avoidance of cross contamination. What it was saying...
  12. This is truth: https://www.beyondceliac.org/community/newsletter/?utm_campaign=Newsletter&utm_source=hs_email&utm_medium=email&utm_content=63591229&_hsenc=p2ANqtz-8LamDIJvpuutXMJO2cvHeKlmhe9MWb8EOS02Ah24ZTk60vhYXJtVFQlXSshFz9beMtWnmnrjILUMQLlS9Z0NIydUdqsQ&_hsmi=63591229 We have been beating our heads against a wall for years. We not...
  13. I was thinking refractory as well and it's turning out to not be so rare as was previously assumed. You might also look at a experimenting with a ketogenic diet which would essentially eliminate starches and most of the sugar in your diet. If you are suffering candida (yeast) overgrowth it likely would really help with that. But with no eggs in your...
  14. Gary, You say you were Dx with Celiac Disease 20 years ago. Are you being compliant with the celiac disease gluten free diet? You did not mention that. I was diagnosed with celiac disease about 15 years ago. One of my blood abnormalties was low iron levels. I started taking an iron supplement and still do. My iron levels are now normal. The supplement...
  15. The thing that needs to happen is that you need to go off of the gluten-free diet for two or three weeks before having that Celiac testing done again. You may need to explain the circumstances to your care provider so they can justify a repeat of the blood work. But I would not assume anything at this point about what is causing these symptoms.
  16. Too many carbs, not fat intake as was preached to us for decades, is the main cause of obesity for most of us who live in first world countries. Lately, I have cut way back on carbs and substituted some of those calories with fat calories (eggs, whole dairy products, nuts and seeds and yes, even "spam"). This, combined with moderate regular exercise, is causing...
  17. What medication? Is there actually something out on the market for Celiacs? There's been a lot of experimentation and maybe some things in trial but is there actually a med out now that works?
  18. Tablets? Do you refer to some kind of medication or to electronic devices?
  19. I had EB at about age 20 when I was at college. Started showing definite signs of celiac disease at about age 37 (elevated liver enzymes for, at the time, no known reason) and was finally dx'd with celiac disease in early 50s. It has long been postulated that certain stressors like viral infections can trigger adult onset celiac disease but this research...
  20. Sounds like that might be the case. Having said that, do you realize that a forum for Celiac Diseases is not about allergies to wheat? Celiac Disease is not an allergy. It is an autoimmune disease triggered by ingestion of wheat that causes damage to the small bowel lining.
  21. What's interesting to me is that the hypo acidity is linked to dermatitis herpetiformis but not villous atrophy. That is if I understood it correctly.
  22. Never heard of that test. There are certainly non Celiac reactions to wheat and gluten but whatever it is it seems clear to me your daughter needs to eat gluten free if you are sure that wheat/gluten are causing these symptoms.
  23. I would push for a hidascan for gallbladder issues. How long have the pain under the ribs, jaundice symptoms been going on? The whole two years?
  24. I think your hunch about this being either problems with the gallbladder or pancreas is probably correct. If you are jaundiced that seems like a tip off to me of problems with inflammation in this area of the body. Please don't dilly dally in getting this looked into. These conditions can become life threatening. Do what you need to do, through NHS or apart...
  25. I had bi-lateral pulmonary embolis after Celicac dx and I suspect I had several small ones over the years before celiac disease dx. In my case it turns out I have a genetic condition called Factor 5 Leiden which, without going into the biochemistry of it all, causes my blood to clot too easily. After I landed in the hospital with the bilateral clots I was...
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