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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    The short answer to your question is, "yes." In fact, I've come to the conclusion that your experience is not the exception.
  2. trents
    I have not heard of any association of celiac disease with leukemia. Can you provide a link to a website? You say you saw something on the web that seems associate the two diseases.
  3. trents
    I think you are probably correct. What threw me was the clause, "an abnormal population of white blood cells in the gut." That could be taken to mean abnormal in kind or abnormal in concentration. If taken in the latter sense then it obscures the difference between "unresponsive celiac disease" and "type 1 celiac disease" since type 1 is defined as having...
  4. trents
    For sometime I haven't been keeping a close watch on celiac disease research like used to but I ran across this and it caught my attention: https://www.beyondceliac.org/celiac-disease/refractory-nonresponsive-celiac-disease/ First, I didn't realize that "non responsive celiac disease" is different than "Refractory celiac disease" and neither did I realize...
  5. trents
    First, it is very common for autoimmune diseases to come in bunches. If you have one it is very common to develop others over time. And yes, they do run in families so you come by these things honestly. Second, it is a well-established fact that many Celiacs never experience complete gut healing, even when they make a sincere effort to eat gluten free...
  6. trents
    Could there be a stress component to this? I remember how stressful the start of grad school was for me, and the gearing up for it. Stress manifests itself in different ways with different people but for it to precipitate GI issues is a common one.
  7. trents
    I wonder if you have IBS, especially since you state that before these latest issues you frequently had to use Imodium. Seems like spicy food is not agreeing with your GI system lately. I suggest putting yourself on a bland diet for a period of time and see if the symptoms improve. Do you have Celiac Disease and if so, are you being scrupulous about...
  8. trents
    Surely, some doctor thought to test her for Celiac disease. Is this made up or a real case? I'm hesitant to sign up so as to be able to offer a dx suggestion. I just don't trust that I won't get on a bunch of spam lists.
  9. trents
    Are you having a lot of diarrhea? If so, that could explain your thirst and also produce mineral depletion. Acid reflux is common among celiacs. I have that and am on medication for it too.
  10. trents
    Leg cramps are often caused by mineral deficiencies (magnesium and potassium) and dehydration. Being a celiac, you may not be absorbing these minerals well from your food because of villi damage. On top of that, if you are urinating excessively and drinking excessive amounts of water you may be flushing out from your body and/or diluting these important...
  11. trents
    Sounds like a good plan. Keep us posted from Ennis, TX.
  12. trents
    It seems clear to me that you are having gastroparesis if you are upchucking remnants from breakfast the day before. Normally, food passes from the stomach into the duodenum/small bowel within about two hours and then makes it's way down to the colon for elimination within about 24 hr. This sounds serious and I would make every effort if I were you to identify...
  13. trents
    People with celiac disease are at a statistically higher risk of developing other autoimmune conditions, many or most of them involving inflammatory processes. Things like chronic pain syndrome and lupus and RA. Perhaps this bears looking into. Edit: My other thought is that you may not be allowing the injury to heal because of your daily activity level...
  14. trents
    Feeling the need to void frequently and not feeling you have emptied the bladder completely when you do sounds like it could be a bladder infection. Is urination painful? Is their any blood in your urine? You say you "made some tests for my urinary problem" and "no ecoli infection" but has anyone checked your urine for other infections? May we ask how...
  15. trents
    I beg your pardon! I hope you will take the time to research the issue of arsenic and rice. Cycling lady has given you some good places to start.
  16. trents
    One potential risk of the gluten-free diet is arsenic toxicity because of all the rice-based substitutes we typically consume in order to compensate for not being able to use wheat. Rice is naturally higher in arsenic than other grains and this can be exaggerated when the rice-based products we use are made from rice grown in areas of the world where there...
  17. trents
    You mention not including much red meat in your diet. I wonder if your body is craving some of the nutrients red meat is rich in such as iron, B vitamins and protein. Make sure you are taking a quality gluten-free multivitamin (I use the Costco "Kirkland" brand) and are getting a good amount of protein and fat in your diet from other sources. Yes, "fat"....
  18. trents
    The gallbladder's purpose is to produce bile that helps digest fat. People with gallbladder duct blockage from stones often find that attacks are brought on when eating high fat meals. When ingesting a lot of fat the gallbladder goes into overdrive trying to pump out bile that is being blocked by stones in the duct. This causes the gallbladder to cramp up...
  19. trents
    Here's another related question for the community. Have any of you ever had chelation therapy to bind and remove heavy metals from your system? What do you think of this option?
  20. trents
    The issue is two-fold. First, rice naturally has a much higher arsenic uptake than other common grains. Second, this natural biochemical tendency of rice is exacerbated when it is grown in areas where the soil has a high arsenic content. So, as cyclinglady said, try to control #2 in that equation. If you use a lot of gluten-free riced-based prepared food...
  21. trents
    Cycling lady said everything I was going to say so, "ditto". I'm particularly curious about how you were diagnosed. You may actually have something else going on in your body besides or in addition to celiac disease. I would only add that several recent studies are showing that cross contamination is much more of a factor in keeping Celiac disease "smoldering...
  22. trents
    Ditto to what kareng said. And there is no evidence that I know of that other grains cause the same villi damaging auto immune reaction that the gluten of wheat, barley and rye produce in celiacs. There is still some controversy surrounding oats, however.
  23. trents
    I certainly would have your gallbladder checked out if you have not. Most people don't realize that gall stones are not the only problem you can have with your gall bladder. The gallbladder can also just quit producing bile (or sufficient quantities of it) which would, like stones blocking the duct, result in problems with digesting fats. But there wouldn...
  24. trents
    So it looks like the study is in the formative stages of trial and there are no results to report yet. Am I missing something? Hard to get excited about this until we see some testing results. There have been a number of Celiac oral prophylactics tested over the past several years that seemed promising but turned out to not be the ticket we were looking...
  25. trents
    Abolutely! All the issues you described have been tied to Celiac disease. Have you been diagnosed with Celiac disease yet? And if so, are you being conscientious in avoiding gluten? If you have not been diagnosed you need to have testing done. But make sure you have not gone off gluten until after the testing or the testing will not be accurate.
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