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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I just want to add, because this was not clear to me from your narrative, that alcoholic beverages are not to be considered gluten free by default. All spirits can contain at least traces of gluten unless they are produced from gluten free grains/plants and stored in containers not contaminated by gluten. As an example of the latter, wines are sometimes stored...
  2. trents
    Good questions and there are not necessarily definitive answers. First, many true Celiacs are asymptomatic or have very minor symptoms in reaction to the ingestion of gluten. That doesn't mean there is not damage to the small bowel villi going on. They are finally diagnosed as having Celiac disease usually because other things are getting out of whack...
  3. trents
    http://theceliacmd.com/2016/02/gluten-and-keratosis-pilaris-chicken-skin/ "There are no studies indicating a direct correlation between gluten ingestion and keratosis pilaris. However, it can be caused by vitamin A deficiency or essential fatty acid deficiency, both of which can occur with impaired absorption. If you have celiac disease or gluten sensitivity...
  4. trents
    Out of ideas. Doesn't sound like fibro to me as there is the asymmetry thing and you don't mention other FM symptoms like fatigue. Doesn't sound rheumatoid in nature either.
  5. trents
    That is bazaar! Have you had any neurological testing done, say like scans of the spinal column or brain? The asymmetrical nature of it makes me wonder if there is a neuro basis to your symptoms. Shingles is another possibility that comes to mind.
  6. trents
    To answer your question, the finger prick test is accurate as far as I know. I don't know why that would be any different than a lab draw with syringe. Both get blood. Anemia is extremely common with Celiac disease. The damaged lining of the gut caused by the auto immune driven inflammation characteristic of Celiac disease significantly reduces the...
  7. trents
    How long have you been gluten free? There can be an adjustment period, sort of withdrawal, after going gluten-free. May we ask your relative age? All of the things you describe have been associated with Celiac disease but usually not all at the same time. Have you been tested for rheumatoid processes and fibromyalgia?
  8. trents
    I just did some hasty research that didn't turn up a connection necessarily between the drug and having Celiac disease. What I did find was that for some people the drug caused "Celiac sprue like enteropathic symptoms." One article mentioned that one such patient was tested for Celiac antibodies but the results were negative. Nonetheless, I would be skeptical...
  9. trents
    I think something cyclinglady said bears repeating and that is the absence of overt GI symptoms such as pain or "D" is not a reliable indicator of something being gluten free. Many Celiacs are largely asymptomatic but gluten is still damaging their bodies.
  10. trents
    Yes, as you mentioned, adding an apple very day is an excellent move. Apples not only are a good source of fiber but they also help with GERD and settle stomachs. There is some truth to the old saying, "an apple a day keeps the doctor away." And instead of prune juice I would use whole prunes.
  11. trents
    If the liver and gall bladder checked out then I would be looking at a stomach ulcer. The pain locus seems to high for IBS. I would inquiring about an upper GI endoscopy. Also, when they investigated the gall bladder did they do a hida scan? Gall bladder problems can be difficult to run down. An ordinary ultrasound would only show stones but stones are...
  12. trents
    I was diagnosed almost 15 years ago and have been conscientious about avoiding gluten. Yet, follow up endoscopies during those first three years showed continued SB inflammation. Other issues, like elevated liver enzymes resolved, however. So there was partial victory but also some disappointment. Another impact of Celiac on my body was that my total protein...
  13. trents
    Bigchan, welcome to the forum! Your narrative is not an uncommon one. Many report that after going gluten free they still show inflammatory disease markers in followup testing. I wish it were the case that going gluten free is the magic bullet that we all have expected it to be at the outset of the Celiac journey. As more evidence mounts over the years...
  14. trents
    Good point, Posterboy about the lag time between research and findings becoming common knowledge in the medical community.
  15. trents
    That article cites a pretty dated study. Doesn't necessarily make it invalid but does make me a little cautious about buying into the premise.
  16. trents
    Do you have references that support this assertion? Oats producing a Celiac reaction has always been a controversial topic, anecdotally, anyway. But as far as I know all the studies done have not supported this when cross contamination with wheat is ruled out. Here is an example from a pretty recent study: https://www.livescience.com/59002-can-celiac-disease...
  17. trents
    There is a question in my mind as to whether the canker sores are actually caused by your celiac disease. Sounds like the doctors pinned it on celiac disease as there was laboratory evidence proving you were a Celiac. And having canker sores is in fact one of the documented medical conditions associated with celiac disease. But there are many other possible...
  18. trents
    Before I say anything else I just want to make sure you realize that Celiac Disease is not an allergy. Neither is gluten intolerance and allergy. I could not be sure from your question whether or not you understood this. Celiac Disease is an autoimmune disorder. People who have it get an autoimmune reaction that does damage to the lining of the small...
  19. trents
    If you are not getting any cooperation from your healthcare providers you can also just try a gluten free diet for a few weeks/months and see if symptoms improve. You would need to educate yourself on where gluten is found, especially how it is hidden in prepared foods like canned soups and condiments. You would need to become a dedicated fool label reader...
  20. trents
    If this is a pattern I would see an gastroenterologist but I would not put much emphasis on one incidence of abnormal colored stool. Many things we eat as well as certain medications can change the color of our stools but so can certain diseases. If this is a pattern I would certainly get liver enzymes checked and gall bladder.
  21. trents
    I tried to quit PPI cold turkey this summer. Went without them for 3 weeks and by then I thought the rebound would be past but my symptoms just got worse. I can go without the PPI for two days and the heartburn starts to come back. Not sure if a more gradual titration would have helped or not but it would have to be very incremental to work at all. And I...
  22. trents
    I'm very skeptical of food allergy testing. I had an eye opening experience with it when I had two different labs evaluate the same test samples but report vastly different results. I also saw poor correlation between symptoms and test results. And I think if you do some research you will see there are a number of variables that often render food allergy...
  23. trents
    So I'm not clear on a couple of things after reading your narrative. First, are you a confirmed Celiac or are you saying you are suspecting you have Celiac disease? Second, is this excessive mucous a new phenomenon after being put on the anti Gerd meds or was it present before?
  24. trents
    Sure sounds like low thyroid symptoms to me. I understand thyroid level assessment can be tricky and the tests ordered by most doctors often aren't much help. Do you have access to an endocrinologist? And concerning B12, are you taking folate? Folate supplementation can render B12 level testing invalid.
  25. trents
    Long post and, excuse the pun, there's a lot to digest there! How many grams of fiber per day do you figure you are getting with all that? I would look at the 1500 mg of C you are taking. That's a lot of ascorbic acid and may be changing the PH of your gut to contribute to the soft stools. Same with coffee/caffeine.
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