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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Wheat provides certain nutritional elements that would need to be compensated for after going gluten free. This is especially true with commercially produced wheat containing foods because they are "fortified" with added vitamins. Does your daughter eat healthy and does she use a quality brand gluten-free multivitamin? If you live near a Costco they sell...
  2. trents
    Not sure what you mean by "celiac growth spurt." How was the celiac diagnosis arrived at? Based only on symptoms? Genetic testing? Endoscopy? Are you making sure that your daughter is strictly following a gluten free diet? Gluten is hidden in so many manufactured food products you really have to be scrupulous with checking ingredient labels and...
  3. trents
    After doing some research, apparently there is a connection between Celiac Disease and sex drive. Here are just a couple of links I found: https://www.youtube.com/watch?v=PnGq_Vz6TuE http://www.naturalnews.com/037361_sex_bread_gluten.html
  4. trents
    Are you on any prescription meds? Particularly, a statin?
  5. trents
    How old are you? Have you had your testosterone levels checked? You say it "came to light that it could be the gluten." Do you mean that it occurred to you that gluten could be causing the ED or do you mean you were told that by a physician or somehow ran across information to that effect? I personally have not heard of a connection between gluten sensitivity...
  6. trents
    Yeah, I think we need to see this kind of experimental therapy be repeated and vetted before people jump on the bandwagon and start ordering home kits.
  7. trents
    But what doesn't make sense to me is that this procedure would seem to only transfer microbiota from and into the lower intestine whereas Celiac Disease involves the upper section of the intestine. Do you suppose they crawl up?
  8. trents
    Ah, makes sense now. I was thinking that was a pretty articulate post for a 3 year old. I 'm thinking a turkey baster would work well for the transfer. People could probably do it at home.
  9. trents
    What do you mean by saying you are "actually 3 years old"?
  10. trents
    Yes, Rachel. Our thoughts and prayers are with you. Please keep us posted.
  11. trents
    I find it interesting that the doctors have ruled out congestive heart failure because most or all of the symptoms your pop is having would seem to fit with CHF. When there is fluid buildup in the body like that the serum protein levels become diluted and those numbers will be low.
  12. trents
    I wonder if he has refractory celiac disease. Also, has he been checked for pernicious anemia? Are they giving him diuretics to remove the water?
  13. trents
    10-15 years ago there was not much general awareness in the medical community about celiac disease. I was diagnosed 15 years ago with celiac disease and what actually led to the diagnosis was I had mildly elevated liver enzymes for about 15 years previous to that which could not otherwise be explained. It all started with a rejection of my donated blood...
  14. trents
    Yes, I do take a sublingual B12 supplement and B complex as well. Those are water soluble vitamins so no danger with overdose. The B vitamins play a role in iron absorption. People with pernicious anemia must get B12 injections. They lack an enzyme called "intrinsic factor" that enables them to assimilate B12 from the gut. I think folic acid comes into play...
  15. trents
    It may take awhile for your ferritin levels to catch up. If your hemoglobin level has responded so well to iron therapy it could be that going on a gluten free diet has allowed your gut to heal and now it's absorbing iron from your diet adequately. Just keep an eye on your iron levels. It could be that you just need a lower dose supplement. Chronically high...
  16. trents
    I don't know about the pyloric stenosis but the others are all auto immune conditions. One theory about pyloric stenosis is that it is an allergic reaction.
  17. trents

    Happy birthday and may God bless you today!

  18. trents
    One researcher estimates that 18-40% of Celiacs have elevated liver enzymes. This was what led to my being dx as a celiac. If those enzymes are elevated for a long time, even moderately, you risk liver damage.
  19. trents
    Jules, how old are you? Could this be "floaters"?
  20. trents
    Since going gluten free I have considerably fewer colds than I used to as well. There are days, though, even now, when I feel run down and ache all over. Maybe its just being 56 but maybe it has somenting to do with a body whose immune system is on edge. Steve
  21. trents
    I had pluerisy almost a year ago on the left side and probably a little pneumonia at the same time. I am 56 years old now. It was excruciatingly painful for a couple of days. I was put on anti inflamatories and an antibiotic. It got better after a few days but the pain persisted to some degree for about 2 weeks. Steve
  22. trents
    There is a well known connection between celiac disease and neurological problems, though not specifically MS that I know of. The connection is linked to poor vitamin and mineral absorption, esp. some of the B vitamins, that Celiacs experience. I hope it turns out to be something less serious than MS. Keep us posted. Steve
  23. trents
    Indeed, there certainly may be a connection between kypho-scoliosis and celiac disease. Here's an exerpt from an online article I just found (http://www.shands.org/health/information/article/000233.htm): Signs and tests: Typically, most people with celiac disease will have symptoms of malabsorption such as diarrhea. However, some will have bone disease...
  24. trents
    Sarah's platelet count takes a dive whenever she gets an infection, like strep. We had her on Predinsone for a short while but it gave her gastritis. We quickly discontinued it for fear she might develop a GI bleed. It really had a beneficial effect on her platelet count, however, and seemed to be the beginning of the upward trend. Have you read of any...
  25. trents
    How long have you had ITP? My daughter was orginally diagnosed with it when she was 14 but after bone marrow studies the docs changed it to aplastic anemia when she was 16, which is considered to be an autoimmune disease. At one point her platelet count was down to 25,000 when, as you know, the low end of normal is 150,000. It was scary! She is now 20 years...
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