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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by trents
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Are you asking if a grass allergy can contribute to Celiac Disease or are you asking if Celiac Disease can contribute to a grass allergy?
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Gaviscon sold in the USA no longer specifies that the starch listed in the ingredient label is from corn. I just purchased a bottle a few days ago and it just says, "starch". There is an archived thread for Gaviscon on the forum from 2015 that states it is gluten-free. It may not any longer be gluten-free. Now the manufacturer may be using various starches...
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Is it worth getting a second opinion?
trents replied to raemdee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
raemdee, Welcome to the forum, by the way! Learning how gluten is hidden by food industry terminology is part of the celiac disease education process. For instance, any food label that lists any kind of starch is immediately suspect unless it specifies that the starch is from a non wheat/barley/rye source. The other thing is realizing that... -
Is it worth getting a second opinion?
trents replied to raemdee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Personally, I would consider the physician's advice to be wise in this case. What you don't want to happen is to ignore it and suffer irreversible damage to your body (e.g., bone demineralization) a few years down the road just because some of the indicators for celiac disease were not (yet?) positive. Something you did not address, however, is symptoms... -
Great information. Thanks! Day before yesterday I picked up the Walmart Equate equivalent of Pepcid "Complete" which has two antacids in addition to famontidine. It does not state on the bottle that it is gluten-free. Can you share more information about what the pharmacist showed you about how to look up your meds and ingredients and gluten? ...
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One issue for celiacs is that there may be no over the counter H2 blockers that are gluten free. There is a discussion about this in another recent thread. As far as thiamine goes, it's a safe supplement (if gluten free) that many celiacs probably ought to be taking anyway since since it's one of the common deficiencies. Other than that...
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It is very common for people with celiac disease to not have significant GI distress, especially previous to being diagnosed. I'm one of them. Looking back, I realize I did have some GI distress previous to diagnosis but it was never intense. Some of the symptoms you report are common to celiac disease ("celiac disease"). Many celiacs experience neurological...
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Enterolab Test Results
trents replied to christybehling's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Having a "sensitivity" to gluten is not the same as having Celiac Disease. Celiac Disease is an autoimmune disorder that is triggered by gluten ingestion. It's not a sensitivity, an allergy or an intolerance. -
It may depend on the company producing it and their particular formulation. Apparently, "pepcid" is made by more than one company. The OP states that one company making pepcid products specifically told her that their's was not gluten free. Another company, Johnson and Johnson, told her they don't test for gluten. This state of affairs is so frustrating...
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Just for the sake of clarity here, GINAGF was diagnosed with celiac disease almost three years previous to starting the use of an H2 blocker. The upcoming endoscopy should provide some helpful information about what is going on with the state of her recovery and perhaps even the unexpected weight loss.
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Yes, you don't want to purposely expose yourself to gluten before the followup endoscopy. The purpose of the followup would be to see if the villi have healed. I would be concerned if after 2+ years of maintaining a steady weight that you lose 10 lbs. in three months when nothing else about your lifestyle has changed except the addition of Pepcid AC...
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I would ask for a repeat on that test as there can be false positives: "The accuracy of blood tests can depend on the laboratory and the manufacturer, the review found. It points to a 2009 study in which 150 samples from patients with known celiac disease status were used to compare the accuracy of tTG tests at 20 laboratories in the U.S. and Europe...
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Binge eating disorder and celiac disease
trents replied to Hannah9's topic in Related Issues & Disorders
Hannah9, I just want to add, don't be afraid to advocate for yourself with medical professionals. It is really important to be assertive when you feel they are not hearing you or are blowing you off. Push back when you feel this is happening. They are busy people and tend to treat in a formulaic way unless you push them to go deeper.- 12 replies
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- binge eating
- celiac
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(and 3 more)
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Recurrent low grade fever 1 year after going gluten free
trents replied to Julia814's topic in Related Issues & Disorders
Julia, I see this was your first post. Sorry, I neglected to say, "Welcome"! You should also look at the possibility of having developed allergies to non gluten food items. Last year I experienced several periods of intractable vomiting and diarrhea. I began to look at the patterns of my eating at those times and came to realize I had developed... -
Recurrent low grade fever 1 year after going gluten free
trents replied to Julia814's topic in Related Issues & Disorders
What do you mean when you say your blood work is "almost normal"? What is not normal about it? A number of recent studies have demonstrated that many or most celiacs who believe they are eating gluten free are actually practicing "low gluten" eating because of cross contamination. This is particularly true of those who are still eating out. And gluten... -
Binge eating disorder and celiac disease
trents replied to Hannah9's topic in Related Issues & Disorders
Ditto. It sounds like to me you may need inpatient care to help you manage your various issues and get them back under control. And hiding your current struggles from your fiance is probably not good for the health of the relationship, though I understand there is probably a strong element of shame in this.- 12 replies
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- binge eating
- celiac
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(and 3 more)
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Strange new sensitivity to almost every food?
trents replied to SummerAnne's topic in Food Intolerance & Leaky Gut
If you GI doc doesn't know much about Celiac disease it's time to get a new one. There's no excuse in in the year 2020 for any physician not to have a good awareness of Celiac Disease, much less a GI doc. There is a much better general awareness, even in the nonmedical public, than there was 15 years ago. -
Strange new sensitivity to almost every food?
trents replied to SummerAnne's topic in Food Intolerance & Leaky Gut
Not sure what the latest figures are but I've read that about 10% of Celiacs react to oat gluten like they do wheat/barely/rye gluten. -
Strange new sensitivity to almost every food?
trents replied to SummerAnne's topic in Food Intolerance & Leaky Gut
I have no bright ideas about this one. That has got to be tough to live with! At least you can eat eggs and they are the single most nutritious food on the planet. But seriously, I would keep looking for a medical professional who will take you seriously. This might help get you started: http://toyourhealthllc.com/2018/12/23/the-mystery-of-mast-cell... -
Candida infection or something else?
trents replied to Ferguston's topic in Related Issues & Disorders
knitt kitty, that was quite the tome! But I agree. The traditional food pyramid we all grew up on has done our society and immense amount of medical harm and is largely responsible for the spiraling numbers of obesity (with all it's attendant vascular problems) and diabetes, just to name a few. We have shot ourselves in the foot with the emphasis on...