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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    I found this enlightening: https://www.glutenfreewatchdog.org/news/gluten-free-foods-still-contain-barley-malt/ Apparently, there is the ELISA "Sandwich" test and the "competitive R5 Elisa" test, the latter being more stringent since it will pick up gluten peptides that have been fragmented by fermentation and hydrolizing.
  2. trents
    I share the concern about malt extract and malt flavoring, which i have seen on breakfast cereal boxes where the cereal itself was not a gluten grain, say corn.
  3. trents
    What heartburn meds are you on now, candace13849? Before, I was put on a PPI for acid reflux I would wake up choking on stomach fluid sometimes, had hoarseness in the mornings and frequent sinus issues. Recently, I have weaned myself off the PPI and so far so good.
  4. trents
    The breath test was probably mentioned because it can be a key in diagnosing Small Intestine Bacterial Overgrowth (SIBO) which is a condition often found in conjunction with Celiac Disease. Have you frequently been on antibiotics during your life or long term proton pump inhibitor therapy?
  5. trents
    First of all, I would get another PCP who will take you seriously and is willing to learn about Celiac Disease. If your PCP is up in years it might be wise to shop for a younger one who has more current training and exposure to the celiac phenomenon. Or get a referral to a GI doc. If you have been eating gluten free for a while now, blood testing or...
  6. trents
    I would agree Scott but OP did not mention abdominal pain as being part of her current symptoms. Diverticulitis is very painful.
  7. trents
    Do you have a reference for that? Is it processed on the same equipment as wheat items or just in the same facility?
  8. trents
    Many celiacs had minimal or no GI distress before diagnosis. That was me. But now that I have been gluten-free for some years I have less tolerance to gluten than when I was consuming it regularly. If I get glutened now, I get violently ill with vomiting and diarrhea for hours.
  9. trents
    David, welcome! Are you still allowing gluten into your diet from wheat, barley or rye products? You state you have been diagnosed with Celiac Disease but you do not say if you are yet eating gluten free. Learning how gluten is hidden in pre-packaged foods, supplements and medications even is a real educational process. It can be disguised in terminology...
  10. trents
    Hi, Shirely and welcome. Did you mean to type "diverticular disease"? I cannot find anything for divicular disease when I google it. Could your weight gain be caused from water accumulating in your tissues such as might happen with heart, kidney or liver disease? Are you having regular bowel movements and normal amount of urination? Do you have...
  11. trents
    The driver behind my Celiac dx was elevated liver enzymes. My GP had no clue what was causing this but when I finally went to GI doc he tested me right away for celiac disease. After I then started the gluten-free eating journey, the liver enzymes normalized within 3 months. I surely was thankful that no lasting liver damage was done.
  12. trents
    Unfortunately, there aren't good alternatives for Cipro, the big gun of antibiotics, when other antibiotic options have failed or for some conditions.
  13. trents
    All of the symptoms you mention are common with celiac disease. Many of them are probably the result of the nutritional deficiencies brought on by the damage to the small bowel villi.
  14. trents
    "The IgA-tTG is the best choice for both the adult and most pediatric populations." https://www.questdiagnostics.com/home/physicians/testing-services/condition/celiac/starts_with_test/ Yes, you would need to be eating gluten liberally again before blood tests and/or endoscopy/biopsy are done to get accurate results. Not sure how long but I would think...
  15. trents
    According to Wikipedia: "Aperol is a classic Italian bitter apéritif made of gentian, rhubarb, and cinchona, among other ingredients." So, the ingredient foundation of this beverage should not cause concern for those needing to avoid gluten. But it's the "other ingredients" that raise concern. And those other ingredients may vary from one producer to ...
  16. trents
    Okay then. If you feel better when avoiding gluten it is likely it is gluten sensitivity. But you really need to educate yourself on how gluten is hidden in prepackaged foods, meds and supplements, particularly when you consider the issue of cross contamination, even when wheat, barley or rye are not intentional ingredients.
  17. trents
    All the symptoms you describe are classic symptoms of Celiac Disease and not just gluten sensitivity. So, I would be surprised if you do not have Celiac Disease. Please ask your doctor to run a Celiac antibody blood panel but it would not be accurate unless you are still consuming gluten.
  18. trents
    No offense intended. I just didn't make sense to me that a diagnosed Celiac would intentionally eat wheat bread, sourdough or otherwise, unless you were under the impression that it was okay for Celiacs and hence read that into the article.
  19. trents
    Tough steak?
  20. trents
    Thanks. Great info and gives me more confidence in the compliance end things. And no, I did not realize you founded and ran the gluten-free Mall.
  21. trents
    Good information, Scott, but did you mean these products were from Europe for potential sale on the USA or vice versa?
  22. trents
    A class action suit or two would go along way towards ensuring those FDA regs were followed by the importers.
  23. trents
    Just a note. I don't know if this applies but just in case: Peptobismol is contraindicated if you are on blood thinners and if you have GERD peppermint tea would be contraindicated. Peppermint relaxes the lower esophagial sphincter.
  24. trents
    Please note from the article that the sourdough fermentation effect benefit is not touted for Celiacs but for non Celiacs with other gluten-related issues.
  25. trents
    I'm not sure going back to eating gluten for two weeks before the endoscopy is a long enough period. Was that per GI doc instructions?
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